Author Topic: What seems to really help other than the major meds?  (Read 420 times)

helloz

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What seems to really help other than the major meds?
« on: April 07, 2020, 09:07:45 AM »
I thought it might be helpful for the community (and me :) ) to see what everyone has found to be most helpful for them other than the normal prescription meds like (plaquenil, evoxac).

Maybe we could list our top 2 or 3 things instead of the entire list of things that provide "some" relief,

It might be other meds, supplements, gadgets, strategies, etc.

* Neilmed Extra Strength Sinus Rinse - allergies and sinus infections
* Whole Home Humidifier on HVAC - in my opinion, it reduces the number of sicknesses during winter months
* Sinex - when I have cough, bronchial issues this seems to help


araminta

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Re: What seems to really help other than the major meds?
« Reply #1 on: April 08, 2020, 01:31:28 AM »
My top three nonmedical things are sugar-free chewing gum, Instituto Espanol 10% urea skin cream, and Vaseline for lips at night.
Dry eyes (MGD), nose, mouth, labyrinthitis, rashes, dry skin (occasional eczeme), mouth ulcers, constant but fluctuating fatigue.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Flax oil, multivitamins,  saline nasal spray, Hylo forte, Lacrilube, organic castor oil for eyes, moisturisers.

angeldancer

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Re: What seems to really help other than the major meds?
« Reply #2 on: April 09, 2020, 04:17:33 PM »
I use Aveeno cream, Essential Oils to help all the dryness.  I use heating pads for my pain and last I use waterfall, ocean, rain and thunderstorm sounds to relax my spirit.
eagles flight//

Sjogrens, Arthritis, colonrectal cancer survivor, Diverticulosis, fibromyalgia, chronic sinus, chronic pain, kidney stones,  chronic allergies, digestive tract issues, norco, plaquenil, ativan, ambien, lyrica, claritan, neuron tin, celexa,predinisome,

helloz

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Re: What seems to really help other than the major meds?
« Reply #3 on: May 04, 2020, 11:50:35 AM »
Thank you for the responses!

Joe S.

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Re: What seems to really help other than the major meds?
« Reply #4 on: May 04, 2020, 01:12:45 PM »
Check the supplements in my signature. Before you try anything, check for counter indications, drug interactions and side effects.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

jazzlover

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Re: What seems to really help other than the major meds?
« Reply #5 on: May 04, 2020, 09:28:11 PM »
LDN .. Low Dose Naltrexone
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

Gorn

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Re: What seems to really help other than the major meds?
« Reply #6 on: May 05, 2020, 03:28:03 PM »
Exercise.

It's really hard some days to make myself do it. But I feel much, much better if I get exercise.

If I'm having a flare and things are too bad to do some kind of workout, I at least make the effort to get my dogs out for a walk. 

Kathy57

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Re: What seems to really help other than the major meds?
« Reply #7 on: May 06, 2020, 12:16:28 PM »
Xylomelts, Genteal eye gel, and Ambien.  Can?t seem to do well without.

Kathy
62 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations.  (Can't see it from the outside)  Asthma, albuterol, Dulera, Nebulizer, Osteoporosis.