Author Topic: Asking for Help on a Stats Project still looking for 21 responses  (Read 198 times)

ghostkiwi

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Hello everyone!

I moved back to the states and I?m back in school. I?m in a statistics class. Unfortunately due to coronavirus, my classes are all online now and I can?t venture out to collect data for my project. So I thought I?d ask you guys, if you could help me and I can post my findings so we all learn something about our disease. I welcome as many people to respond as possible, but I need at least 25 people. I?m excited to learn the results and it?s something fun to do while we?re quarantined.

I need:
1. Your gender
2. Your ethnicity(you can specify more than one ethnicity if applicable)
3. The number of years it took to be formally diagnosed with sjogren?s by a doctor(Estimate as best you can)
4. The number of doctors you saw looking for a diagnosis of your symptoms before being formally diagnosed with sj?gren?s by a doctor.

If you have any questions please let me know!
Thanks in advance!!
« Last Edit: March 27, 2020, 08:20:19 AM by ghostkiwi »
25 years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Linda196

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Re: Asking for Help on a Stats Project
« Reply #1 on: March 19, 2020, 02:52:28 AM »
Excellent and inventive use of isolation time!

I understand that, as statistics, you can't post this in the form of a poll, becaues you need more precise numbers, so, how would you like to receive responses, as replies or as personal messages?

Posting your findings at completion is a nice touch, thanks.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

ghostkiwi

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Re: Asking for Help on a Stats Project
« Reply #2 on: March 19, 2020, 03:32:24 AM »
Replies or personal messages are ok! Which ever individuals feel the most comfortable with.
25 years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Carolina

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Re: Asking for Help on a Stats Project
« Reply #3 on: March 19, 2020, 03:54:29 PM »
It is possible to set up an actual poll with your questions.  The numbers will tally as people answer the questions, as well.

I don't know how it's done but someone here knows.

Regards, Elaine
Female-Elaine,76-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-Knee/Shoulder Degeneration-SIBO-Intertrigo-Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-Achalasia-IVIG Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-Omega 3

ghostkiwi

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Re: Asking for Help on a Stats Project
« Reply #4 on: March 19, 2020, 04:14:09 PM »
Unfortunately, the poll only seems to allow me to ask one question at a time with 5 predetermined options of answers, but I?m asking 4 joint questions(the questions are paired together with an individual) with possibly more than 5 options of answers.
25 years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Linda196

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Re: Asking for Help on a Stats Project
« Reply #5 on: March 19, 2020, 04:54:56 PM »
1. Gender- female
2. Ethnicity- Irish
3. time from onset of noticible symptoms to formal diagnosis- 6 months
4 Doctors seen before diagnosis- 3: optometrist, GP and Rheumy
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

Kathy57

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Re: Asking for Help on a Stats Project
« Reply #6 on: March 22, 2020, 10:18:09 PM »
I?d like to help:

Gender:  Female
Ethnicity:  Irish and German
Number of years til diagnoses:  about 3  but I?ve had symptoms well over 10 years
Number of doctors seen:  Internist (2), ENT (4) Oral Maxillofacial Specialist (1)  Gastroenterologist (1)
                                      Allergist/Asthma/Immunologist (1)  Optometrist (1)  Ophthalmologist (1)
                                      Rheumatologist (1) Dentist (1) Also a couple of ER visits

I hope this helps,

Kathy
62 yr old female - Diagnosed Sjogrens Aug. 1st 2014.  Plaqinil, Evoxac, Prevacid, Lexapro, Hypothyroid, Esophagel Reflux, Gastritis, Barretts Esophagus, failed sinus surgery with 3 nasal septal perforations.  (Can't see it from the outside)  Asthma, albuterol, Dulera, Nebulizer, Osteoporosis.

ghostkiwi

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Re: Asking for Help on a Stats Project
« Reply #7 on: March 23, 2020, 02:28:39 AM »
It helps a lot! Every bit of data paints a picture. Thank you!
25 years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Liz D.

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Re: Asking for Help on a Stats Project
« Reply #8 on: March 23, 2020, 06:05:38 AM »
Gender -  Female
Ethnicity -  American with Italian and Scottish background
Years to Diagnosis - About 4 years
Number of doctors seen before diagnosis - at least 8 that I can remember.    2 Family Medicine doctors, 1 Internal Medicine doctor, ENT doctor, ophthalmologist, dentist, chiropractor, then finally a rheumatologist to get diagnosis.  And an ER visit in there too.

Hope this helps your study.

Liz D.
56 year old female
Sjogrens Syndrome (diagnosed 2004), Hypothryoidism, Asthma, Osteoporosis
Meds:  Plaquenil 400 mg; Synthroid 100mcg; Evoxac, Flovent, Flonase, Protonix 40 mg.,  Prozac 40 mg. Naproxen 500 mg., Hormone Replacement Therapy, vitamins, calcium, flaxseed, biotin