Author Topic: Sjogrens groupings -- there are four  (Read 447 times)

SjoGirl

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Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

Joe S.

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Re: Sjogrens groupings -- there are four
« Reply #1 on: January 13, 2020, 05:47:11 PM »
Wow, Statistical Analysis of Symptoms, an Artificial Intelligent approach. Now maybe we will start to see effective treatment models from the medical establishment.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
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irish

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Re: Sjogrens groupings -- there are four
« Reply #2 on: January 13, 2020, 10:49:25 PM »
Dome people finally figured out how many of us there were and how significant out disease process is. Some things take longer than others. Thanks. irish

Maria3667

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Re: Sjogrens groupings -- there are four
« Reply #3 on: January 14, 2020, 01:39:34 AM »
At last some progress is made into a better classification of our syndrome!  :) Although I feel there still is no universal consensus as the biological cause & manifestation can be so hugely different.

Also none of these categories fit me.

Quote:
"This resulted in four subgroups, which the researchers dubbed: low symptom burden (LSB), high symptom burden (HSB), dryness dominant with fatigue (DDF), and pain dominant with fatigue (PDF)."

I feel my category should read: dryness & pain dominant high symptom burden. So rather a combination of 3 out of 4 than a single one.

Thanks for sharing!
52. DES-daughter ('67), Lyme's ('98), GAD ('98), Sjogren's ('02), hypothyroid ('04), endometriosis ('14), osteoarthritis ('16), blepharitis ('18), frozen shoulder ('19). Pilocarpine, thyroid meds, 25mg quetiapine, 5% testosterone. Allergies: sodium hydroxide, nickle, methylisothiazolinone, latex

araminta

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Re: Sjogrens groupings -- there are four
« Reply #4 on: January 14, 2020, 02:56:15 AM »
Thank you for posting this link, Sjogirl.

I've always felt there are different manifestations of this disease, for instance I can still cry tears (!) and still have some saliva, however I have sore eyes with MGD, dry mouth at night, a lot of fatigue, and all sorts of other dryness symptoms.

Let's hope this is the beginning of some better research and treatment.
Dry eyes (MGD), nose, mouth, labyrinthitis, rashes, dry skin (occasional eczeme), mouth ulcers, constant but fluctuating fatigue.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Flax oil, multivitamins,  saline nasal spray, Hylo forte, Lacrilube, organic castor oil for eyes, moisturisers.