Author Topic: Bowel incontinence - warning TMI  (Read 902 times)

irish

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Re: Bowel incontinence - warning TMI
« Reply #15 on: October 05, 2019, 05:03:08 PM »
If a person is wondering about gluten intolerance (not celiac)or IBS read up on Bile acid malabsorbtion. I have this and it sure is bad enough that I could think it was going to ruin my life at time. It is also known as BAM. Basically the bile acids do a job on the colon and cause such bad cramps and loose stools.

By reading up on this I found that the IBS and lactose intolerance are also included in this. Docs have discovered so much the past few years and are classifying a lot of these into one disease process. I am having problems this weekend as I ate candy, ice cream and some other higher fat foods and that really kicks it up. The powder I am prescribed really doers help. Mix it in a liquid and I take it two times a day and it acts like it soaks up the liquid stool in colon and decreases the gas, pain and diarrhea. My GI doctor figurers this out. I guess it is becoming very common.

It is called Cholestyramine and comes in a packet. I can get by with taking 1/2 the prescribed dose. It slows my colon down fast enough that taking the whole dose can almost give me constipation. A lower dose works great and the stool doesn't get as hard as with metamucil. I put my powder in diet coke about 3 ounces then be sure to drink movre fluids. If I know I am going out to eat I will take my morning to evening dose prior to going out and this helps to prevent bad symptoms. Have to take meds 1 hour prior to the powder or 4 hours after the dose. Once you get the hang of it works great. Irish

toad3737

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Re: Bowel incontinence - warning TMI
« Reply #16 on: October 14, 2019, 08:28:08 AM »
I was dx with microscopic colitis. My accidents were a way of life . . .until I did an elimination diet and realized I had a sensitivity to gluten and dairy. UGH!! So, I do my best with diet, and I also take a maintenance dose of Budesonide. I went from 3 x's a day to 3 x's a week (once I changed my diet).

Have the tested for C-Diff??

 Pull-ups might not be a bad idea until your colonoscopy. Sorry, I know it sucks.

susanep

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Re: Bowel incontinence - warning TMI
« Reply #17 on: October 14, 2019, 10:01:45 AM »
I have sometimes where when I go to pee I end up doing the other with no sign before that.

susanep :)
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

irish

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Re: Bowel incontinence - warning TMI
« Reply #18 on: October 14, 2019, 03:49:34 PM »
Microscopic colitis is a colitis that accompanies Celiac disease. My hubby had this also. It affects less of the mucus membrane than the ulcerative colitis does so there is less shedding of membrane and bleeding than U.C. Also, Celiac disease patients often have lactose intolerance. My hubby had that also. Thanks goodness for the almond milk.

When my hubby was first diagnosed with Celiac sprue in 1978 he was also diagnosed with ulcerative colitis cause he was in tough shape. A few years later he had biopsy of colon and was told by his GI doc that he had the Microscopic colitis and that it had just been identified. So, yes, the years go by and new testing does come out. Irish

irish

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Re: Bowel incontinence - warning TMI
« Reply #19 on: October 14, 2019, 06:49:53 PM »
Susan, I was just looking at you med list and you have picked up more drugs over the years haven't yoy. I am getting on the band wagon about meds and trying to keep an eye on what I take. Big intake of meds can also cause weakness and loose stools. Is there a pharmacist at your clinic or drug store who does drug  assessments to make sure yoy are not taking meds that can cause increased weakness, etc. This is such a problem for us "older" folks cause we have diabetes and kidney function that isn't quite up to par as it was years ago.

Man, sure disgusting how much work it takes to take care of ourselves with our poor health. Take care. Irish

Deb 27

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Re: Bowel incontinence - warning TMI
« Reply #20 on: October 22, 2019, 01:51:33 PM »
Hi Carebear, it sounds like you are getting lots of information here. I would ask for a stool culture, if they haven't done one already. You could have an infection of some sort. I would ask for one, just in case. I don't know why they don't order a culture before they put you through a more expensive colonoscopy.

I also find it interesting that you do not feel when the incontinence happens. That does sound like a nerve thing. Have you had any other symptoms of neuropathy?

I hope you get an answer soon and get this resolved.
Sjogrens and RA,  Morphea (skin scleroderma), Hashimoto's, 
Nexium, synthroid, HRT, plaquenil,  Restasis, Maxi-tears supplement, L-glutathionne, CoQ10, folate, trintillex,  multi vitamin. lisinopril.

Carebear

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Re: Bowel incontinence - warning TMI
« Reply #21 on: October 22, 2019, 02:06:27 PM »
Hi Deb,

I did have a stool culture done about six weeks into this saga. It was clear of all the usual suspects.

As for neuropathy,  I do have some symptoms but it has never been diagnosed.  I did find that once I began using gabapentin,  it felt like a wet blanket had smothered a raging fire.  My doctors just raise their eyebrows and say "interesting ".

This issue continues to change, waxing and waning like so many things do for those of us with autoimmune diseases. I can say for sure it is not food related though.  I have the colonoscopy scheduled for two weeks away now. Not feeling optimistic right now. But maybe they can rule out more causes.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

susanep

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Re: Bowel incontinence - warning TMI
« Reply #22 on: October 22, 2019, 02:56:49 PM »
Yes irish
I sure have picked up more meds. My husband brought up to me that the drugstore guy said that I can make an appointment to go over them all. I want to do that. I will have to plan it out.
Thank you,
susanep :)
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

bloodless

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Re: Bowel incontinence - warning TMI
« Reply #23 on: November 18, 2019, 12:43:14 PM »
I'm right there with you, but haven't had the courage to bring it up to anyone including my dr.  I do take nuerontin for neuropathy, so maybe it is related. Thanks for the post and giving me the guts to admit the problem. I don't feel so embarrassed and alone now.
I miss the good old days. Things were more like they used to be back then.

Sjogrens, Lupus, Fibro, GERD

irish

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Re: Bowel incontinence - warning TMI
« Reply #24 on: November 18, 2019, 05:03:02 PM »
bloodless, I am an old RN as most of you know and I have told my docs my problem. I want you to know that doctors and nurses have seen and heard it all and are prepared to talk about whatever problem we have. We humans look so fixed up and all together most of the time but every one of our bodily functions can go awry and many times there is a serious reason. Letting our doctor know is important cause they can help us sort it out. It also gives us someone to talk to about it. Some spouses can talk about these problems but not all so a doctor who will listen is very necessary.

Also, there are other specialists who deal with the problems of the colon who can do testing and figure out in pretty good detail what is going on and what to do about it.

My issue was pretty darn bad at times and it was a long winter and spring this year. Things are better now and my medication is the thing that really helped plus the diet is very important. I eat what is bad for me and I do pay for it!!!! Be patient and brave and life will get better.  The other thing to remember when we suffer with this is it isn't the end of the world and not get too serious about it. .Good luck. Irish

Carebear

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Re: Bowel incontinence - warning TMI
« Reply #25 on: November 18, 2019, 06:49:59 PM »
It is embarrassing to talk about incontinence, even with our doctors.  But they were all concerned when I brought it up and took this seriously. It made me regretful that I hadn't mentioned it months sooner.

I finally had my colonoscopy a couple of weeks ago.  Soon I will know the results of the biopsies taken. The specialist found nothing serious. Only an internal hemorrhoid and diverticula were observed. And that didn't cause my issues.  Irish told me the colonoscopy would not find anything. You were right  Irish.

One thing he suggested was that I increase my fibre, which I knew would cause me problems.  I did it anyway because I thought it was worth another try. WRONG!  I was careful to drink plenty of fluids and just increased the fiber by 2 grams, but it caused constipation.  I don't have to tell anyone here what that's like. And my hemorrhoid was not happy with me either!

My follow up appointment will probably result in nothing much. But I will talk about my suspicion of nerve damage.  Something I have also noticed is that my bladder doesn't empty like it used to. So we will see.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

irish

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Re: Bowel incontinence - warning TMI
« Reply #26 on: November 18, 2019, 07:33:52 PM »
Dont want people to think I have divine ability to predict colonoscopy outcomes!!! Chances are I said "chances are everything will be ok". I do have a good chance of predicting the positive outcome because as many of you nave noticed, we all worry endlessly about out ailments and it is seldom that many of us have a negative outcome. Or at least a life changing outcome.

It is always better to get something checked out. The hard thing is trying to figure out when to seek attention. If we go too soon we worry they will think we are a hypochondriac and if we wait longer than we should we are afraid doc will think we are either afraid or not very smart. Can't win sometimes. Irish