Author Topic: Bowel incontinence - warning TMI  (Read 327 times)

Carebear

  • Hero Member
  • *****
  • Posts: 1715
Bowel incontinence - warning TMI
« on: October 02, 2019, 11:31:02 AM »
Dear friends,

This is an embarrassing, disturbing topic.  I have thought for some time about reaching out to this knowledgeable group, and I guess it is the right time.

I hope to hear about possible answers or solutions, or maybe people can share their similar experience.  Or maybe I'm just venting.

For several months I have had bowel issues - diarrhea often with severe urgency, and frequently resulting in "accidents ".  The worst is not being aware I need to go to the bathroom and I discover this the next time I urinate.  It can happen a dozen times each day.

I've had a barium swallow which only showed moderate acid reflux.   I say only because that isn't causing my current bowel issues.

A colonoscopy is scheduled for next month.  Maybe the specialist will see something.

Any thoughts?  It can't be from medication.  Any possible culprits have been reduced or eliminated.  Health and stress wise,  I am relatively stable.  So now what?  I'm only 62 years old and hope this isn't my future.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

sixty

  • Full Member
  • ***
  • Posts: 151
Re: Bowel incontinence - warning TMI
« Reply #1 on: October 02, 2019, 12:11:51 PM »
I used to have urgent diarrhea when I was working and it was so embarrassing.  It totally stopped when I quit so I'm thinking it must've been stress.  Now I have times when I've gone in my pants without knowing it occasionally.  It's always a small amount but surprising none the less.  I also take magnesium to help with my constipation because I take opiates for pain.  I sometimes take more than usual so that's what it turned out to be.  I forget and take it twice or three times instead of once, so my bowels get loose I guess.  Getting old is no joke!!  I hope you can find out what's causing this and you are not alone.

irish

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 13405
Re: Bowel incontinence - warning TMI
« Reply #2 on: October 02, 2019, 01:17:49 PM »
I am sorry that you are going through this cause it really is not easy to deal with. The one thing I noticed is that you say you don't feel this when it occcurs much of the time. This makes me wonder if it is a neuropathy related to autoimmune disease. I don't remember if you are diabetic but I have seen bowel issues in people with the neuropathy of diabetes.

I would be surprised if a colonoscopy would totally nail this problem. I think there are gastrointestinal drs who specialize in the type of problem you speak of. I don't know what they are called but I think that Linda196 could come along and give you information that would help you out.

I also wonder if taking magnesium could be causing the whole problem. Magnesium is known to cause muscle weakness. I have Myasthenia gravis and magnesium is a no-no for me. I have muscle weakness much of the time and it can be quite bad at times. Taking magnesium when one is a myasthenic patient can put us into crisis mode.

It would be good to see if you could replace this magnesium with another type of stool softener. Sometimes a stool soften with a dose of milk of magnesia to stimulate the colon every other day or so does the trick. The best thing I saw years ago when working as a nurse was dried fruit ball eaten every night or so.

You can probably do a search and find a bunch of recipes. I know that our dietary department used to grind up apricots, prunes, raisins, etc ( the dried fruits of choice)and mix with some bran. You can ask your pharmacist about the type of bran powder cause there are several kinds available. Mix bran powder with the ground fruits and roll in balls and store in refrig. Because of the opiates you might have to use a combination of stool softener caps, fruit balls and milk of magnesia to find the desired effect. The milk of magnesia gives the colon the kick to move the stool along after it is softened. Just some thoughts, Good luck. Irish

Also, drinking the fluids is important as we hear from all our docs. :)

Linda196

  • Administrator
  • Hero Member
  • *****
  • Posts: 5064
Re: Bowel incontinence - warning TMI
« Reply #3 on: October 02, 2019, 01:54:54 PM »
Like Irish, when I saw that you weren't aware of the passage, my mind immediately went to a nerve problem, and when i saw that you have both osteoarthritis and cervical stenosis, I have to wonder if there may be some lumbar stenosis or osteo causing degeneration around L1-3 or the S 2-4.

Of course Celiac can cause some fecal incontinence, but it's more a case of urgency, and there is no masking of the feeling.

Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

Carebear

  • Hero Member
  • *****
  • Posts: 1715
Re: Bowel incontinence - warning TMI
« Reply #4 on: October 02, 2019, 02:10:59 PM »
Good suggestion about the magnesium possibly being the cause.  I stopped taking magnesium about two months before this all began so unfortunately that's not it.

Thanks, Irish. But I am not diabetic.

I have Celiac but it's 100% managed, verified by bloodwork because my doctor thought I was cheating on gluten.   I wasn't.

I thought of nerve damage too.  Any idea how this could be verified or ruled out?

Do you think it could be ulcerative colitis or crohn's?  I had a 10 day bout of night sweats back in May that made me think it was possible.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

Carolina

  • Hero Member
  • *****
  • Posts: 5750
  • —if it ain't one thing, it's another." Roseanne R.
Re: Bowel incontinence - warning TMI
« Reply #5 on: October 02, 2019, 03:04:15 PM »
My husband has microscopic colitis with those symptoms.  He wears a pull-up which gives him some protection.

No fun at all! 

Elaine
Female-Elaine,76-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-Knee/Shoulder Degeneration-SIBO-Intertrigo-Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-Achalasia-IVIG Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-Omega 3

irish

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 13405
Re: Bowel incontinence - warning TMI
« Reply #6 on: October 02, 2019, 06:26:45 PM »
I had a husband, now a son and grandson with celiac. Neuropathy is very common with this disease. I guess I would pursue GI with questions and/or neurologist. I would bet in this day and age there is a specialist in GI/neuro cause everyone is expanding their specialities. Good luck with this. Irish

Carebear

  • Hero Member
  • *****
  • Posts: 1715
Re: Bowel incontinence - warning TMI
« Reply #7 on: October 02, 2019, 08:32:58 PM »
Irish,  I was not aware that neuropathy and Celiac could be related.  I have a question.   If I have eaten gluten free since diagnosis, could I still develop neuropathy?

Of course I don't know how many years I had Celiac prior to diagnosis.  My guess is at least five years.  Is there a chance that this plays a role too?
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

Carolina

  • Hero Member
  • *****
  • Posts: 5750
  • —if it ain't one thing, it's another." Roseanne R.
Re: Bowel incontinence - warning TMI
« Reply #8 on: October 03, 2019, 06:35:31 AM »
How could I have forgotten neuropathy? 

I have neuropathy of my small intestine which causes SIBO (Small Intestine Bacterial Overgrowth).  Fortunately SIBO has an easy, definite test, and is treated with antibiotics (10 days) and then is gone (until it may return as the bacteria build up again). 

I have been symptom free for two years!  I was suffering terribly, tho' the FODMAP food elimination play did help.  Near the end of my misery I couldn't tolerate either glucose or lactose because they increased the activity of the bacteria.  NOW I can eat anything, even beans!

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3099351/

Regards, Elaine

Female-Elaine,76-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-Knee/Shoulder Degeneration-SIBO-Intertrigo-Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-Achalasia-IVIG Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-Omega 3

Carolina

  • Hero Member
  • *****
  • Posts: 5750
  • —if it ain't one thing, it's another." Roseanne R.
Re: Bowel incontinence - warning TMI
« Reply #9 on: October 03, 2019, 06:36:24 AM »
How could I have forgotten neuropathy? 

I have neuropathy of my small intestine which causes SIBO (Small Intestine Bacterial Overgrowth).  Fortunately SIBO has an easy, definite test, and is treated with antibiotics (10 days) and then is gone (until it may return as the bacteria build up again). 

I have been symptom free for two years!  I was suffering terribly, tho' the FODMAP food elimination plan did help.  Near the end of my misery I couldn't tolerate either glucose or lactose because they increased the activity of the bacteria.  NOW I can eat anything, even beans!

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3099351/

Regards, Elaine
Female-Elaine,76-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-Knee/Shoulder Degeneration-SIBO-Intertrigo-Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-Achalasia-IVIG Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-Omega 3

irish

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 13405
Re: Bowel incontinence - warning TMI
« Reply #10 on: October 03, 2019, 11:23:25 AM »
Carebear, I guess I don't know for sure about the neuropathy. I do know that my hubby was having symptoms of Celiac in 1964 when we got married and I asked a dr one time about Celiac and he just poopod me. Well he was diagnpsed in 1977 with the Celiac. He had a lot of leg pain and other pains that were ongoing and diagnosed as neuropathy.

He had been eating gluten free since 1977. The first few years were difficult as he was a traveling salesman but into the 80's it became so much easier to control his diet. He had to quit working in 1994 due to health and he ate a very good gluten free diet but still developed more neuropathy.

If you do research on celiac you will find info on the site http://www.celiac.com

This site is an older one and has info on many things people don't even think of. People with celiac even can get a specific skin disease. There is also cases of neurological changes in the brain tissue from celiac. All of this is individual and not everyone gets all of the neuro or skin issues and if they do everyone is different is symptoms. Thanks, Irish
« Last Edit: October 03, 2019, 11:25:44 AM by irish »

Judie P

  • Hero Member
  • *****
  • Posts: 657
Re: Bowel incontinence - warning TMI
« Reply #11 on: October 03, 2019, 03:36:27 PM »
Hi, Carebear.  I started going through this when I took antibiotics for MRSA.  The one antibiotic, clyndomycin gave me C. Diff.  It is a form of colitis.  After taking 6 weeks of vancomycin, it stopped.  I just had a colonoscopy three weeks ago to rule out colitis and Crohn's.  What my GI found was internal bleeding hemorhoids and one polyp.  I never had a fever with the C. Diff, but it did cause diarrhea (about 10 times a day), with pus and blood.  Sometimes all people have is diarrhea.  I had to stay on a diet of boiled eggs, bananas, white toast, and white rice.  I lost 22 lbs, but needed to anyway.  I think a colonoscopy is in order. 
Primary SJS, SS-A >8, fibromyalgia, neuropathy, asthma, Effexor, Vitamin D 1,000mg, magnesium, Motrin, Ayr Nasal Gel, Ayr nasal mist, Optique 1 eye drops

Judie P

  • Hero Member
  • *****
  • Posts: 657
Re: Bowel incontinence - warning TMI
« Reply #12 on: October 04, 2019, 01:17:42 PM »
I hope I didn't scare you, Carebear.  I am not saying you have C. Diff.  The colonoscopy can rule out so many things that I just thought it was wise to get it.  I am normally constipated with my primary sjogrens, so it took 2.5 gallons of Garilyte and 3 days of just clear liquids to get me to being NEARLY clean.  So my diarrhea was more like semi-soft marbles.  I call it dry diarrhea.  I had a really good GI doc who told me that especially Crohn's, is not a normal thing for someone in their 60s to get.  You may very well not have that.

As far as neuropathy...  well, I have been trying to tell my docs for years that I have it.  Cervical and Lumbar stenosis, degrenerative disc disease and arthritis.  I am one of the lucky ones that is constipated, so I don't normally get soft stools unless I eat a ton of squash or avacado.  Then I do have bowel accidents and many times never feel it coming out.

Keep us informed on what happens.  Hugs.
Primary SJS, SS-A >8, fibromyalgia, neuropathy, asthma, Effexor, Vitamin D 1,000mg, magnesium, Motrin, Ayr Nasal Gel, Ayr nasal mist, Optique 1 eye drops

irish

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 13405
Re: Bowel incontinence - warning TMI
« Reply #13 on: October 04, 2019, 08:04:41 PM »
Interestingly enough if you read a lot about the Celiac you will learn that some people don't have colon issues with their disease. Everyone is different of course and the neuropathy also occurs in some and not others.

The diarrhea is really one of the more common symptoms along with the cramping and nausea. Most people who talk about gluten intolerance don't realize that the diagnosis of Celiac disease is a very specific thing that needs certain blood work done and scoping of small bowel with biopsies of the villa found in the small bowel. This villa gets damaged in celiac and is what causes the inability to absorb food. Celiac disease is the inability to absorb the protein gluten found in oats, wheat, rye and for some people oats.

Celiac patients can't eat gluten because to do so would actually make them much more ill and can be fatal. It is not an allergy for celiac patients, it is the bodies inability to absorb the bodies nutrients found in the gluten. It is an autoimmune disease. Most patients had a very poor future with this disease until the second world war and the depression when there was hardship and food shortages.

At this time a lot of people had a very sparse diet and rice was their staple food. This was when doctors started putting all this info together and began figuring the disease out. The people with the celiac who ate the rice diets improved significantly and those who ate wheat rye and sometimes oats didn't do as well. Irish
« Last Edit: October 06, 2019, 03:55:43 PM by irish »

markt

  • Full Member
  • ***
  • Posts: 195
Re: Bowel incontinence - warning TMI
« Reply #14 on: October 05, 2019, 10:00:11 AM »
I struggle with this... changing my diet (no refined sugar, wheat, processed meat, dairy) helped the most.  I also lost 30lbs.

I use senecot and digestive enzymes as well.