Author Topic: Night sweats, low body temperature, feel cold all the time, please help  (Read 1421 times)

Bucky

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Carebear - how are you these days?  Thinking of you!

Bucky
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Carebear

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Thanks, Bucky.  It's the craziest thing.   After two weeks of night sweats and diarrhea, it stopped abruptly.  I still feel cold and have a low body temperature,  but that's all.

Now the crazier part.  It fells like my body has somehow been "reset".  I feel more energetic than I have in many,  many years. I can't explain it but I'm enjoying it while it lasts.

As for my doctor,  she did run lots of bloodwork and my TSH (thyroid) is plummeting again,  without a change in my synthroid dose for a few months.  I think it is 0.2 now.  6 weeks earlier it was 1.20, and 2 months before that it was 1.65.  It's been running below 0.3 for much of the last year regardless of how low my synthroid dose went.  I'm taking 75 mcg right now.  The lowest I've ever taken.

On my last visit we talked about the possibility of my thyroid "working " on it's own 24 years after radioactive iodine treatment.   She has seen it happen before.   I don't know where that leaves me.   I see her again in a few days to discuss my results.

The only other test that was out of range was my ALP (Alkaline Phosphatase), which was high.  This may also be pointing to hyperthyroidism.  My white blood cells are low,  but they always are.

Hopefully I will have a game plan very soon.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

Nancy1950

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Hi Carebear,

I am just seeing your post now - 2 months late!

You might want to look up Wilson's Syndrome (or disease) of the thyroid. Apparently it's a hypothyroid condition in which the standard thyroid tests come back normal, but in which cells can't hold onto the thyroid hormone. Therefore, you can be hypothyroid, but everything looks normal on blood work. The symptoms are exactly as what you describe. It might be worth checking in to.

Nancy

irish

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Re: Night sweats, low body temperature, feel cold all the time, please help
« Reply #18 on: August 01, 2019, 02:42:38 PM »
Pardon my long post on the first page. I was trying to thin of everything and anything that could be affecting you.

However, Linda is right about falling asleep at the red lights. Have yoyo been checked for narcolepsy? This is a condition that can reallyt ruin you life is left untreated. My DIL has it and when in college her need to study screwed her up even worse as she had undiagnosed narcolepsy. She ended up on a very regulated drug for about 1+ years to reorganize her brain so that she could sleep. She also sweat at night just terribly.

Also, as Linda said a hormonal study would be wise. There are a lot more secreting glands that affect our health than our thyroid.I think in view of all your issues ( would make a copy of this post and show your doctors) I would be very insistent on further studies and if need be get second opinions from experts at a teaching college/hospital that caters to medical students of all types. Good luck. Irish

Carebear

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Re: Night sweats, low body temperature, feel cold all the time, please help
« Reply #19 on: August 01, 2019, 04:58:09 PM »
Dear friends,

This is a very difficult issue to update.  And so complicated.  Every time I think I am in the clear, something flairs up.

I am no longer falling asleep at red lights, thank goodness.  The night sweats disappeared, and now I just get grotesquely overheated without sweating.  Always at night, coincidently.  After many, many tests and adjusting/eliminating medications, we are now zeroing in on the gastrointestinal system.

As I said, I have had SO MANY tests.  Hormonal panel including thyroid, liver enzyme tests, echocardiogram, 48 hour Holter test, ultrasound and x-ray of my abdomen, chest x-ray, stool cultures, I was even tested to see if I have been eating gluten (which I am not because I have Celiac disease).

Here are some significant test results: 

Heart related - I have Premature ventricular contractions and mild leaking heart valve - these tests confirmed my symptoms but fortunately are "harmless".

Bloodwork - Consistently Low White Blood Cells and Consistently Elevated Alkaline Phosphatase.

Everything else was well within normal range, or was only slightly out of range for a singular test.

My family doctor is referring me to the GI specialist for a swallowing study and an endoscopy.  Maybe a colonoscopy, but oh how I hope that isn't necessary.  I am having a barium swallow in the meantime just to get the ball rolling.

So, liver is good, heart is good, bones are good.  The next culprit to investigate specifically for elevated ALP is the gastrointestinal system.

But really, I haven't any concrete answers yet. 
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

irish

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Re: Night sweats, low body temperature, feel cold all the time, please help
« Reply #20 on: August 01, 2019, 09:24:57 PM »
Have they checked out vagus nerve involvement? The GI tract can also be affected by vagal nerve issues. Good luck with this. Irish

P.S. I also wondered if anyone has considered a low grade simmering infection. Irish

Carebear

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Re: Night sweats, low body temperature, feel cold all the time, please help
« Reply #21 on: August 01, 2019, 10:34:44 PM »
Excellent questions, Irish.

Yes, a low grade simmering infection in the GI tract has definitely been considered by my Family Physician.  She had a stool culture done which included GIARDIA LAMBLIA, CRYPTOSPORIDIUM PARVUM/HOMINIS, SALMONELLA, CAMPYLOBACTER JEJUNI/COLI, SHIGELLA, and Enteroinvasive Escherichia coli.  All negative.

I almost never have a body temperature over 97.5 degrees Fahrenheit even while I was having night sweats or when I feel so overheated I could melt.  But maybe that means nothing with Sjogren's. 

How is the vagus nerve checked out, Irish?  I hadn't thought of that one before.  You may be onto something.  What sort of specialist would address the vagus nerve?  A neurologist?  GI specialist?



Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

irish

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Re: Night sweats, low body temperature, feel cold all the time, please help
« Reply #22 on: August 02, 2019, 11:53:52 AM »
I have no idea which doctor is the one to see. Since you are doing a GI workup ask that doc and see what he says. This nerve is known for a lot of weird things. Sometimes the episodes will come, last a couple seconds or minutes and not show up again for a long time. It is something that can be very hard to nail down. Do a search on vagal nerve dysfunction and do not go into panic mode. Lots of info documented but elusive as heck.

There are some things that are well known but I can't say that I read much about a "cure". Seems like it can be sort of like autoimmune.....hard to identify. The nausea, dizziness, etc swell known. I have had "spells with vagal nerve dysfunction with diarrhea, nausea, etc and thot I was going to die. Profuse perspiration, etc that passes. Knowing that my symptoms were most likely vagal nerve issues gave me hope for living in the midst of the severe nausea, etc.

Every doctor will give you different info and none of them will be wrong.....that is why I asked the question. Such issues and improved at times can often be related to the nerves of the body. So if it sounds like I am talking a lot and not saying a heck of a lot just wait til you see all the info under vagal nerve dysfunction. Good luck. Irish