Author Topic: Couple of new online articles about SjS  (Read 566 times)


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Couple of new online articles about SjS
« on: May 02, 2019, 09:33:40 AM »
Hi all,

I found these on Twitter this morning

Both are pretty good. I did comment that pointing to Venus Williams is a misnomer because she has the resources to access care that many can never dream of receiving.

Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.


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Re: Couple of new online articles about SjS
« Reply #1 on: May 04, 2019, 02:42:11 AM »
Thank you for posting these.   I agree about Venus Williams, it's not clear how she copes, I wish we knew.
Dry eyes (MGD), nose, mouth, labyrinthitis, rashes, dry skin (occasional eczeme), mouth ulcers, constant but fluctuating fatigue.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Flax oil, multivitamins,  saline nasal spray, Hylo forte, Lacrilube, organic castor oil for eyes, moisturisers.