Author Topic: Do your bones ache?  (Read 1504 times)

Gorn

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Do your bones ache?
« on: April 04, 2019, 06:06:57 AM »
When I am having a flare up, besides fatigue, aching in my bones is one of my worst symptoms. Does anyone else get this?
I am not talking about joint pain.  I mean aching deep down in the long bones of my arms and legs. 
I did a search on the forum and didn't find anything about this.

If this is a typical Sjogren's symptom, I guess I will just add it to my list of lovely symptoms and move on. 

Joe S.

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Re: Do your bones ache?
« Reply #1 on: April 04, 2019, 01:21:24 PM »
I do not know if it is a symptom of Sjogren's but after having it in my left leg for years, my leg did break.
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Skylar

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Re: Do your bones ache?
« Reply #2 on: April 04, 2019, 05:12:54 PM »
Gorn, I?ve never seen that as a common issue.  Did you mention it to your Dr?

I?ve had terrible bone pain when I was growing bone thanks to a parathyroid problem. It?s very different from joint pain. I had X-rays which clearly showed the bone growth. I can also feel the growth when I palpate the areas.

irish

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Re: Do your bones ache?
« Reply #3 on: April 04, 2019, 05:47:34 PM »
Sjogrens can affect the bone marrow so that might be what the pain is from. I would mention it to your doctor. Good luck Irish

araminta

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Re: Do your bones ache?
« Reply #4 on: April 05, 2019, 02:53:53 AM »
I get aching in my arms and hands, it's not always easy to say if it's the joints or the bones, often seems to be both.   
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Jenny

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Re: Do your bones ache?
« Reply #5 on: April 05, 2019, 04:23:55 AM »
I used to have terrible bone pain. I told my GP about it and he ran a blood test for various things. It turned out my Vitamin D count was extremely low. I was put on a extremely strong prescription supplement for several months and my bone pain went away. I now take over the counter supplement of 2000 mg daily. It could have been a coincidence, but it?s worth a try.
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Carolina

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Re: Do your bones ache?
« Reply #6 on: April 05, 2019, 05:32:30 AM »
Yes, When I am in a flare, my long bones (arms and legs) ache.  It is a sickening pain.  And since I also have severe osteoarthritis, every joint in my body lights up with pain.  Flares are horribly painful for me.

Regards, Elaine
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Bobbie

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Re: Do your bones ache?
« Reply #7 on: April 06, 2019, 03:03:42 PM »
Yes, me too.  I am going through it right now.  My whole body is in a flare.  My episcleritis is flaring too  :(    Bobbie
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Scottietottie

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Re: Do your bones ache?
« Reply #8 on: April 08, 2019, 04:00:26 PM »
Hi  :)

My bones ache. They have since childhood. I used to tell my mother that my legs had toothache when I couldn't sleep. She just used to tell me not to be so stupid. Anyway - they still ache and they hurt when they are pressed. Massage is my idea of torture.

Just seems to be one of those things.

Take care - Scottie  :)
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SjoGirl

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Re: Do your bones ache?
« Reply #9 on: April 11, 2019, 12:57:24 PM »
It seems I have at one point had every symptom in the book, I'm pretty sure this one included. At one point I had a bone marrow biopsy done and learned that I had zero storage iron, I had all sorts of symptoms then. It was not until I eventually had the right treatment for seronegative RA and my SJS that my iron levels rebounded, that is because my anaemia is caused by my autoimmune diseases, not by a lack of taking or being able to process iron.
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Bigleyj

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Re: Do your bones ache?
« Reply #10 on: April 15, 2019, 12:10:51 AM »
Yes my bones ache. Worse at night. My Dr has recently put me on Tramadol and it has stopped!  Knock on wood.

It took a while to get the dosage right.  Normal painkillers did nothing.

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SjoGirl

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Re: Do your bones ache?
« Reply #11 on: April 17, 2019, 01:33:05 PM »
Bigleyj I used to use Tramadol and found great relief from it. It did not prove to be a useful long-term solution for me but did help during the early stages of these diseases.
Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

Sooki

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Re: Do your bones ache?
« Reply #12 on: April 19, 2019, 08:42:18 AM »
I haven't had the problem mentioned here, exactly.  But, maybe to put a name to a similar condition, I sometimes get intense, aching, boring pain at points on my long bones. These are the places where tendons and ligaments attach to the bone - entheses - and the inflammation enthesitis.  Mid calf, either side of my elbow, mid forearm, ankles, and other locations.  These usually arrive at night and last for a few days.  But I haven't found any relief from them except for general flare relief.
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Gorn

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Re: Do your bones ache?
« Reply #13 on: May 31, 2019, 04:31:03 PM »
Thanks all of you for the replies! I did mention this recently to my rheumy, and we are currently working on making some changes...

Carolina

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Re: Do your bones ache?
« Reply #14 on: May 31, 2019, 05:06:38 PM »
Scottie!  I feel the same way about massage.  I thought I was the only weird one.  I had one massage and I wanted to jump off the table, but I felt embarrassed.

And now that I have severe Small Fiber Neuropathy every inch of my skin hurts when 'touched'.  ( I can touch my skin, of course).

Sometimes I think we live in a completely different 'universe' than most people inhabit.

Regards, Elaine
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