Author Topic: 5th shoulder surgery  (Read 340 times)

Jenny

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5th shoulder surgery
« on: January 06, 2019, 04:11:35 AM »
The first two surgeries were about 12 and 5 years ago. Those two were ?just? Arthroscopic to clean out Arthritis and spurs. Two years ago was Total Shoulder Replacement. Went great for about 8 months, then a lot of pain. Turned out the prosthesis had broken. So a year ago I had a revision TSR. I have total range of motion (at least upwards), but always had a lot of trouble in therapy with pain just below the front of my shoulder. I had just about resigned myself to the pain, but then my shoulder started dislocating (popping out of joint). Sometimes when I shut a door or some such motion, usually reaching behind me. Extreme pain, but it only lasted about 20 seconds, although excruciating. Then it would be a lot more painful for the next day or two. It was only when it happened when I was doing simple things, like hugging someone or putting on a coat did I realize how serious it probably was. My doctor finally did a high powered Ultrasound and did some tests on me to tell me that my Supscapularis was severely ripped. (It is the largest muscle of the rotator cuffs). Surgery is the only cure. He is going to try to put it back together with cadaver tissue since mine is too destroyed. When he looks at it during surgery, he may decide to do a Reverse Shoulder Replacement if he feels the Rotator Cuff surgery won?t work. He is going to have a prosthesis there to use to be safe.  Luckily it?s my left, non dominant shoulder. My only bit of luck. My surgeon feels Sjogrens could partially be to blame for all my bad luck.
63 year old female with back, shoulder, neck and knee pain, dry mouth, losing teeth, dry sinuses,Blood test positive for Sjogrens. Fibromyalgia, Osteoarthritis .
Maloxicam, Lisinopril, Norco, misc.vitamins
4 discs in low back fused. Shoulder replaced 2015 & 2017 Need knee replaced.
4 hand surgeries

araminta

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Re: 5th shoulder surgery
« Reply #1 on: January 06, 2019, 04:46:56 AM »
This all sounds very difficult, Jenny, I hope the next procedure gives you a good result.   One of my neighbours had a lot of trouble with her shoulder, however that was due to rheumatoid arthritis.

How does the Sjogrens cause this type of problem?
Dry eyes (MGD), nose, mouth, labyrinthitis, rashes, dry skin (occasional eczeme), mouth ulcers, constant but fluctuating fatigue.  Blood tests and Schirmers negative,no Sjogrens dx yet.   Flax oil, multivitamins,  saline nasal spray, Hylo forte, Lacrilube, organic castor oil for eyes, moisturisers.

Carolina

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Re: 5th shoulder surgery
« Reply #2 on: January 06, 2019, 06:16:47 AM »
Dear Jenny,

I'm so sorry you're going through this.  The pain is so limiting and exhausting.  And repeated surgeries are a nightmare.

I agree with your surgeon's comment:  Sjogrens could partially be to blame for all my bad luck

Osteoarthritis is more common in those with Sjogren's and other autoimmune/immune disorders.  The causal link is not clearly defined, however.

Sjogren's and other autoimmune/immune disorders are clearly linked to damage to tendons and ligaments in the body.

Damage to tendons and ligaments is called an enthesopathy which refers to a disorder involving the attachment of a tendon or ligament to a bone.

https://www.ncbi.nlm.nih.gov/pubmed/28646319

The success of your shoulder replacement depends on the recovery of the tendons and ligaments that hold your shoulder in place, Jenny.  This is clearly described in the article linked below:

thecenteroregon.com/pain-injury-services/shoulder-pain/total-shoulder-replacement/

Therefore, shoulder replacement surgery, or any joint replacement surgery, would be more risky in patients with Sjogren's and any autoimmune/immune disorder.

Both of my shoulders are damaged to the point that joint replacement is indicated.  I had arthroscopic surgery on my right shoulder to remove a bone spur, almost 20 years ago.  That shoulder is the worst.  I have serious pain, and sleeping is difficult.

I was told recently that I am NOT a candidate for knee replacement surgery, which I need, because of the profound neuropathy in my legs, AND because my Immune Disorder would seriously hinder recovery due to the inflammation related to my Disorder.

Now, after reading of your experience with shoulder replacement surgery, I fear that I would not be a good candidate for that surgery, due to my Immune Disorder.  My Immune Disorder acts on my body exactly like Sjogren's but is not related to autoantibody attack on my organs/systems.

I may consult a shoulder replacement surgeon.  I plan to deal with the osteoarthritis in my neck first, which causes constant pain.

I wonder if I will have to accept my pain because, due to my Immune Disorder, I cannot recover well from surgery on my joints?

Perhaps my focus should be on better management of my pain, and acceptance of the limitations of severely damaged joints.

Thank you for your post, Jenny.  I wish you success and freedom from pain.

Elaine


« Last Edit: January 07, 2019, 04:03:59 AM by Linda196 »
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lighthouse33

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Re: 5th shoulder surgery
« Reply #3 on: January 06, 2019, 09:22:51 AM »
Jenny, I am so sorry to hear of your difficulties. 

Quoting Carolina:

Sjogren's and other autoimmune/immune disorders are clearly linked to damage to tendons and ligaments in the body.

This is exactly what the foot and ankle specialist told me about my pirineal tendonitis.  Caused by a Sjogren's flare.  This is the tendon that is attached to my ankle bone that runs under my food. 

Also, while researching fibromyalgia on the Internet, it said it was linked to damage to tendons and ligaments in the body.  So, I am getting attacked from two angles. 

I wish you well!
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Tharrell

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Re: 5th shoulder surgery
« Reply #4 on: January 06, 2019, 11:05:59 AM »
Well heck, wish I had known. I had three surgeries on my right hip, well four. The first was arthroscopy. The second was a year later for total hip replacement. After 6 weeks I was presenting with all the symptoms of loose hardware, but xray said all was fine. Doctor had me go back on walker for 4 weeks non weight bearing. When that didn’t work he thought maybe cup had slipped and opened me back up, replaced cup and added another screw. He said he yanked pretty hard on the femoral stem to be sure it was tight and it was. Things did not improve and 8 month later he did a neuclear scan which showed femoral stem loosening. So third surgery to replace stem with a much longer stem and doctor said it was the problem all along, just not visible on xray. He has to this day no clue what happened. After much research I did come across an article that did mention autoimmune diseases and hardware loosening. The premise was that anti tnf was attacking the metal hardware preventing the bone ingrowth needed for full integration thus causing loosening of hardware. My rheumatologist said my orencia should help with that and as I pointed out to her I was already on orencia and that I really want to try enbrel. She finally agreed. I had my left hip replaced 4 month ago and I start the enbrel this week. My surgeon this time used a very fat stem hoping that this one will either intergrate or other wise stay put. I’m hoping that with the enbrel my body will not reject the implant. I’m still having a lot of issues with my left hip which I shouldn’t have at this point. Here is to hoping!
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irish

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Re: 5th shoulder surgery
« Reply #5 on: January 06, 2019, 04:55:13 PM »
Yes, the autoimmune collagen diseases affect the muscles, tendons and ligaments by weakening them and causing all these tears ands injuries from just plain daily use. Do something fancy like pitch a back ad you can take out a shoulder. My son was in his 30s when the fire alarm went off at 3AM in the morning and when he hit the floor he had ruptured his achilles tendon and had surgery and missed 6 months of work. He has bad Hashimotos and probably some unidentified AID also. The destruction is at the very cellular level so that the tissues themselves are fragile and get torn so easily.

I wish I knew what to tell people to make life better but we can only watch what we do and at times sort of shield ourselves from doing things that will traumatize our muscles, joints etc.

This sounds like a complicated surgery and my thoughts and prayers go out to you. Keep us updated please. Irish

Jenny

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Re: 5th shoulder surgery
« Reply #6 on: January 07, 2019, 04:28:49 AM »
Thanks all. I had no idea Sjogrens could cause so much damage.  In the past few years I?ve had at least 5 cases of bursitis or tendonitis in various joints. Hoping this is my final surgery!
63 year old female with back, shoulder, neck and knee pain, dry mouth, losing teeth, dry sinuses,Blood test positive for Sjogrens. Fibromyalgia, Osteoarthritis .
Maloxicam, Lisinopril, Norco, misc.vitamins
4 discs in low back fused. Shoulder replaced 2015 & 2017 Need knee replaced.
4 hand surgeries

Carebear

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Re: 5th shoulder surgery
« Reply #7 on: January 07, 2019, 03:44:09 PM »
Jenny, I'm sorry to hear that you have been having such a terrible time with your shoulder.   I'm filing this away for future reference.

This is a very interesting topic.

I've had tears in my rhomboid and shoulder muscles for a number of years that no one can really help me with - yet.  The pain has traveled around to my pectoral muscles now.   

While physio and physiatry haven't helped a ton, there is comfort in knowing that Sjogren's may be involved.  And it's not something I'm doing wrong.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

angeldancer

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Re: 5th shoulder surgery
« Reply #8 on: January 07, 2019, 06:26:42 PM »
Wow, this has been so informative.  My joints and tendons are gone as well but regular xrays are not picking anything up but getting ultrasounds and MRIs are a battle.  I am sending prayers and good thoughts your way for successful treatment.  I don't know how to send this posting to self but it would sure help my doctors get on the band wagon and get me some help.

You are not alone and we are hopeful for some good news.

Angeldancer
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Jenny

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Re: 5th shoulder surgery
« Reply #9 on: January 08, 2019, 04:34:09 AM »
Angel Dancer....to send this thread to yourself to show your doctor, highlight the bar at the top of the page, click copy, and then paste it on an email to yourself. Good luck to us both!
63 year old female with back, shoulder, neck and knee pain, dry mouth, losing teeth, dry sinuses,Blood test positive for Sjogrens. Fibromyalgia, Osteoarthritis .
Maloxicam, Lisinopril, Norco, misc.vitamins
4 discs in low back fused. Shoulder replaced 2015 & 2017 Need knee replaced.
4 hand surgeries

irish

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Re: 5th shoulder surgery
« Reply #10 on: January 08, 2019, 10:07:42 PM »
I have not had any scans of my tendons, only the test done for muscle weakness with carpal tunnel issues. I have learned that certain pains in certain areas are probably inflamed tendons. I have also done a search for images tendons feet.....examlpe and the images give you an idea where there are tendons.

I had an inflamed tendon in one foot on the inner ankle area that almost did me in. I told every doctor I went to and got little attention. I could hardly walk. Saw a foot doctor and wore a fancy support plus had to wear only certain shoes. The pain almost ruined my life. I finally told my neurologist and she gave me a taper dose of prednisone and it went away. I had that bad pain for 8 months and I am not sure, but I think it probably helped build my character up a little. lol

The one thing I can say is that I could literally place my fingers on the tendon and press some and follow the inflammation pain. This experience has made me much more aware of my tendons and I can usually identify when they are inflamed and I tend to rest that area more as constant use feeds the inflammation.I learned years ago that if I get up in the morning and place my feet on the floor and notice sore or stiff heels that I had better tread slowly and not make any sudden moves. My achilles tendons are probably inflamed again and they need to loosen up on their own without too much physical activity. Irish

Carolina

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Re: 5th shoulder surgery
« Reply #11 on: January 09, 2019, 03:24:46 PM »
I also had tears in the meniscus of both knees.

The meniscus is the cushion of cartilage between major parts of your knee joint.

So I guess my inflammatory disease damages tendons, ligaments and cartilage.

The right meniscus was torn in 2006, and eventually stopped hurting and I didn't need surgery.  But for a long time (2-3 years) the torn edge would 'catch' and I had horrible pain and didn't know which way to move to stop the 'catch'.  But as I say, it's ok now.

The left meniscus was torn in 2010 and a piece jammed in my knee joint.  The pain was terrible and after much waiting and testing I had the piece removed 12 weeks later. 

Both knees are a mess now.  But no surgery is planned, as I noted earlier.

I did see the neck specialist today, and he's ordered an MRI since the last MRI of my cervical spine is from 2013.

Stay tuned!

Regards, Elaine.
Female-Elaine,76-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-Knee/Shoulder Degeneration-SIBO-Intertrigo-Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-Achalasia-IVIG Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-Omega 3

Carebear

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Re: 5th shoulder surgery
« Reply #12 on: January 09, 2019, 03:51:04 PM »
This all continues to inform me.

My right knee "catches" when I ride my stationary bike and walk on my treadmill, and it hurts like heck.  But it is just above my knee not the meniscus.  I'm guessing that's a tendon although I've never had anyone exam it.  Suppose I should at some point.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis