Author Topic: Trigeminal neuralgia or atypical face pain  (Read 237 times)

happylife

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Trigeminal neuralgia or atypical face pain
« on: June 08, 2018, 09:55:56 PM »
Please share more details if possible.
« Last Edit: June 09, 2018, 06:15:22 AM by happylife »

Navigator

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Re: Trigeminal neuralgia or atypical face pain
« Reply #1 on: June 09, 2018, 05:10:29 PM »
My very first flare involved excruciating pain along the back of my head.   For a few days.  The doctors were stumped and I had multiple tests. Eventually they diagnosed SJS.   It went away by itself.   I was left with some hearing loss.  Since then I occasionally have teeth that ache for no reason.   Or a spot in the back of my head that will flare up when a flare is coming.
Hashimotos thyroiditis, Primary SJS, IBS, autoimmune hearing loss, leucopenia, arthritis,asthma.
Synthroid, Plaquenil, Crestor, Evoxac,Vit D , Fish Oil, Restasis, Daily Walking, Sleep, Baby aspirin, Probiotic, avoid gluten,dairy and sugar, hearing aide, gratitude, big dog

Nomad

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Re: Trigeminal neuralgia or atypical face pain
« Reply #2 on: June 09, 2018, 07:38:35 PM »
I replied but it was removed or disappeared.

I developed atypical facial nerve pain involving the trigeminal nerve a good five years ago after dental work.

SLE, Sj.  Syndrome, IC, Atypical Trigeminal Neuralgia, ITP (low platelets)... Various meds and lots of vitamins. Trying to eat healthy; seems to help a little.

happylife

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Re: Trigeminal neuralgia or atypical face pain
« Reply #3 on: June 09, 2018, 11:49:39 PM »
Hi nomad

Do u have atypical face pain only? Or has it changed into trigeminal neuralgia?

Nomad

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Re: Trigeminal neuralgia or atypical face pain
« Reply #4 on: June 12, 2018, 01:37:00 PM »
Although at times it still can be severely painful and does involve the trigeminal nerve,
I would still think it would be classified as atypical.
SLE, Sj.  Syndrome, IC, Atypical Trigeminal Neuralgia, ITP (low platelets)... Various meds and lots of vitamins. Trying to eat healthy; seems to help a little.