Author Topic: Overwhelmed  (Read 352 times)


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Re: Overwhelmed
« Reply #15 on: April 11, 2018, 08:22:59 PM »
I have been on Methotrexate at one time and I had no problem working. My son has been on 25 mgn a day for 3 years and he works in commercial construction which is demanding. In am guessing that you are really overwhelmed by all that is going on and we all understand that.

Sometimes a person just has to as for help....such as asking for a week off to start on the methotrexate and at the same time check out with social services at the hospital or clinic, county, etc to see what services there are to help you through this rough patch. Also, go on line and check on drug companies who offer cut rate on their meds. Ask you pharmacist and your doctor also. It time to make the change in your treatment to improve your life.

Methotrexate is a very popular drug for autoimmune diseases and people have had tremendous luck. If it doesn't work, dont give up as there are quite a few others that can be tried. We all have to go through this trial and error so to speak. Also, you are stretched thin and at the end of your rope you might want to ask you doc about low dose antidepressant to help sleep. You are probably depressed also as chronic illness drags us down and sjogrens and lupus patients are affected with anxiety and depression very often. Hang in there, you will make it. It is tough but getting the right treatment and some sleep can help a lot. Irish


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Re: Overwhelmed
« Reply #16 on: April 11, 2018, 09:03:50 PM »
Thank you Irish, the things I?ve heard and researched about the med are scary.  I?m glad u told me about you and your sons experience. That makes me feel better.  And I agree with you.
Female, 37, Sj?gren?s, RA, SLE, SVT, IBS, diverticulitis, asthma, frequent pleurisy, shingles with PHN, plaquenil, propranolol, carafate, pilocarpine, turmeric, vit C, vit D, vit B12, probiotics, fish oil.


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Re: Overwhelmed
« Reply #17 on: April 12, 2018, 02:45:32 AM »
It might be worth considering if there are any aspects of your life you could simplify or delegate.   For instance are there times when you mother might be able to look after the children for a day or two?   Who does the shopping - if it's you, could someone else do it?   Are there any outgoings that could be reduced?   Would downsizing your home be an option?   It's worth looking at all sorts of options, even the ones that seem far-fetched.  And as Sunshine has been saying, looking at other medically-related jobs is a good idea, perhaps you could visit one or two employment agencies for a general chat about what is available - we don't always know what's out there.
Dry eyes (MGD),dry nose, dry mouth, labyrinthitis, rashes, dry skin, mouth ulcers, constant but fluctuating fatigue.  Blood tests and Schirmers negative and no Sjogrens dx yet.   Flax oil, multivitamins,  saline nasal spray, Hylo forte, Lacrilube, organic castor oil for eyes.


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Re: Overwhelmed
« Reply #18 on: April 12, 2018, 05:34:22 AM »
I retired before the worst of my symptoms developed, although I did retire early due to severe coronary artery disease.

I take Low Dose Naltrexone for pain and it works very very well for me.  I have severe osteoarthritis, with joints that need replacement, but that is an issue due to other health problems, so I haven't had any surgery so far.

My theory about meds is that you can try a med to see if it helps, and you can stop if it doesn't help or if it causes a problem.  I don't take methotrexate, but my understanding is that methotrexate can take time to work.  And there are other drugs including biologicals that can be effective. 

I have developed some reactions to meds over my lifetime (I'm 76) and have had to stop taking them, of course.

But just as you would probably take an antibiotic if you had an infection, or deal with a dental cavity, or a broken bone, meds are there because they can help us in many cases.

Regards, Elaine
« Last Edit: April 17, 2018, 09:34:49 AM by Carolina »
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Re: Overwhelmed
« Reply #19 on: April 12, 2018, 09:30:34 AM »
Regarding not working while on MTX, I completely understand; it has nothing to do with the demands of the job or the physical side effects of the drug. I was a critical care nurse as well, in a Medical unit that handled "unknowns" and communicable diseases. I was temporarily reassigned while I was just on steroid therapy (not that I could have worked at that time anyway due to illness) but once I was prescribed permanent steroid and MTX therapy, I was advised to take a long term medical leave, with the option of returning to a "clean" area or research when my health improved.

Considering that, due to increasing cognitive difficulty making it impossible for me to trust my skills, calculations and judgement at the time, it was time to let go anyway.

With time, I had come to the decision that I could return to my concurrent part time job, plasma exchange therapy, which would mean part time salary as well, but the same time factor had brought me to the age where I could retire without financial penalty, so I chose to officially retire.
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Re: Overwhelmed
« Reply #20 on: April 12, 2018, 07:51:09 PM »
In a different message board I just saw a nurse is looking for career change and there are these two suggestions that involved using prior knowledge and experience in new setting:

"Look at healthcare supply chain, they like to hire nurses as buyers and product specialists or analysts since they have a better understanding of what's going on."

"Not even medical supply companies but your own healthcare company needs to source product. Buyer, sourcing manager or purchasing agent or such need RNs."
Sjogren's, lupus, OAB and osteopenia
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Re: Overwhelmed
« Reply #21 on: April 16, 2018, 02:06:47 PM »
Late to the party, but... a couple of other thoughts.

If you are working, are you eligible for short or long term disability? If you could take a few weeks off (need your doctor to support you with this), you could a) just get some rest, b) take some time to lay out your options, including other forms of work, c) take some time to explain more to your friends and family who don't understand.

Some people around will never understand. They don't get that when you say "I'd love to come, but I'm wiped out today" what you mean is that it feels like you've had the flu for 3 days, or been run over by a truck. Some people will get it eventually.  And we have to learn new behaviors too. We have to say when we need help, learn to say no to things we now find hard to handle, and learn to accept help, even when things aren't done exactly how we would do them. I've had this health problem for 9 years, and I'm still practicing these new behaviors.

It's a shock when essentially a doctor says "I'm worried" by suggesting a more substantial treatment. I hope you've had a couple of days to deal with the shock.   Good thoughts heading your way.
Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers


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Re: Overwhelmed
« Reply #22 on: April 16, 2018, 05:25:26 PM »
I will add that nurses have the ability to assess things----there are so many things to assess and nurses have been rained in this process of assessment, be it objective, subjective, etc. plus nurses are exposed to so many types of nationalities, educational levels, types of businesses, etc. 

Nurses sort of fall into many categories and each nursen needs ton probably get some assessment done prior to changing vocations. If you know what your strengths are you are ahead of the ball game but sometimes we can feel a little unsettled about what we should pursue in our next endeavor. Good luck. Irish