Author Topic: brain fog  (Read 171 times)


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brain fog
« on: February 11, 2018, 07:56:43 AM »
Hi, is severe brain fog normal with Sjogren's syndrome? i feel sometime as if i was completely drunk, unable to think etc. plus sometimes my face feels like its hot or burning.
I am only on plaquenil, iv'e seen about three doctors before it became so severe and all three were reluctant to prescribe steriods or anything else. Is there anything i could do? thanks

p.s i am young so it's not an age issue
p.s2 also i have little black dots in my sight sometimes, is it due to eye dryness or is is a neurological symptom?

Joe S.

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Re: brain fog
« Reply #1 on: February 11, 2018, 01:17:41 PM »
You may be having a reaction to plaquenil. Search web for side effects. If you are taking any supplements check for counter indications and drug interactions also.

The first dose for me left me blind until I got it out of my system.
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Re: brain fog
« Reply #2 on: February 13, 2018, 05:18:44 PM »
I also have severe brain fog. It impacts my life badly.
I take these drugs:
1) Provigil: this drug is very expensive in the USA (what else is new?). The FDA changed it from a Class 2 to a Class 3 drug. Now it's tightly controlled.
    It was sold in Canada at 70% off, but now it's unavailable, because of its reclassification in the USA. Ridiculous. You could try to get it in India or Mexico.
    Truly, it changes your life.
2) Try Adderall (amphetamine and dextroamphetamine). It is a Class 3 drug, but not expensive (about $30 per month). Wakes you up, & gives you your old life back. A new 
    prescription every month is needed (as per our all-knowing, all-controlling government).

Good luck.
Sjogrens;Polymyositis;Polyneuropathy;Gastritis;GERD, Autonomic Neuropathy, Neurological complications, Gamma 3 globulin low;Multiple infections;Brain fog; Ocular problems - blepharitis, scleritiis, dry eye,severe eye pain. Possible Inclusion body Myositis.Currently Endstage


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Re: brain fog
« Reply #3 on: Today at 07:07:21 AM »
Brain fog is the symptom I fear most. It was worst around the time of my diagnosis; since I began my treatment regimen, it has lessened considerably. it generally just pops up when I'm unable to think of a word that I should know. Still annoying, but better than feeling totally out of it.

Do the little black dots move when you turn your eyes? If so, they are probably just floaters, which are somewhat common. I've had floaters for many years preceding my diagnosis; I'm not sure if they are related to SS or not. If they are in a fixed position when you move your eyes, you should bring them up to an optometrist/ophthalmologist.
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