Author Topic: We're Expecting - but what can we expect?  (Read 174 times)

Shelly

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We're Expecting - but what can we expect?
« on: January 12, 2018, 09:22:49 AM »
Hi all,

It's been a very long time since I've posted on here and I hope you all are doing well!  My husband and I found out we are expecting and I am about 9-10 weeks along at this point.  We have our first prenatal visit next Friday and couldn't be more excited!  :)

I am, however, fairly nervous about the SS-A antibodies I have in my system and what they will mean for my little one.  I have a very high titer of SS-A (normal: <1.0, my value: 91.6) and I read that high positives can increase the risk of neonatal lupus and congenital heart block even moreso.  I guess I am writing this post to see if any of you have dealt with this through pregnancy and what we can expect?  After my appointment next Friday I will see a maternal-fetal medicine doctor and, from what I read, will have weekly fetal echos and EKGs for weeks 16-32 of my pregnancy.

I would love to hear from anyone who has gone through a pregnancy knowingly having these SS-A/SS-B antibodies!  How did the pregnancy go and how did your providers (and you) handle having the antibodies?  Were you nervous because you had them like I am?

-Shelly

SunshineDaydream

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Re: We're Expecting - but what can we expect?
« Reply #1 on: January 12, 2018, 02:21:06 PM »
I have no personal experience with Sjogren's pregnancy but just wanted to say congratulations and I hope all goes well!

It is my understanding that all lupus pregnancies are considered high risk and quick search reveals that could be the same for Sjogren's pregnancies. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5267941/  Good move on getting a maternal-fetal medicine doctor!
Sjogren's, lupus, OAB and osteopenia
Rx: Evoxac and Myrbetriq
Vitamins and Supplements: A, B complex, C, D3, E, calcium orotate, magnesium glycinate, D-Mannose, curcumin, fish oil, probiotic

irish

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Re: We're Expecting - but what can we expect?
« Reply #2 on: January 12, 2018, 05:55:55 PM »
I had 3 pregnancies and am sure I had Sjogrens way back them too. My third pregnancy I was having lots of health issues such as gastric issues that doc thought was from gall bladder. I had testing after delivery and things were all better and nothing showed up.

I had vaginal yeast through out my pregnancy which went away after I delivered. I had a lot of back and joint pain and could not hardly sleep or lay down the last 4 months. It seemed to be one thing after another. Delivery went well and baby was fine. I improved slowly and had a lot of bad fatigue and body pain for about 6 months. After being ill off and on for about 40 years I was finally diagnosed at age 60 with Sjogrens. I had 2 pregnancies with no symptoms and all three ofd my babies had not problems related to Sjogrens. Back then we had no clue about Sjogrens or any of the autoimmune diseases. This was in the 1960's. I do think that my doc knew that I had a possible unidentified autoimmune disease because of the things he said to me. He told me never to work nights as it was too hard on my system.

This doc seemed to always know what to do with me treatment wise when I was having what I now know were flares. Unfortunately, I only had him for a few years before I moved out of state. HO9pe all goes well with you. Do not worry. Just take one day at a time and think positive thoughts. It is good you have a specialist to keep track of things so that will ease your mind. Good luck. Irish