Author Topic: Medical Mystery -- Stiffness/Tight Muscles Anyone?  (Read 257 times)

SjoGirl

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Medical Mystery -- Stiffness/Tight Muscles Anyone?
« on: January 10, 2018, 05:05:26 PM »
So I went off of Gabapentin a few months ago due to side effects. I felt great for several months and now am at times so stiff and my muscles are so sore I can't stand it. My fatigue waxes and wanes and when it waxes is not quite, but is starting to stop me in my tracks.

Does anyone else suffer from this extreme stiffness and tight muscles along with pain? FYI I've been checked for M.S. I'm not weak and I have range of motion, I'm just achy, sore and my muscles are extremely tight. I also don't have great balance left to right (I'm oddly better front to back) but was able to walk up a long hill today.

I do also have some minor swelling of hand joints and my wrists ache like the dickens (as do the base of my thumbs).

This has gone on off and on for years, since I got sick really (nearly 10 years). I and doc are still trying to figure out what is happening. I will have blood work done before going on steroids, which I want to avoid doing if I am able.

Thoughts?
Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

Maria3667

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Re: Medical Mystery -- Stiffness/Tight Muscles Anyone?
« Reply #1 on: January 11, 2018, 03:49:19 PM »
Hi Sjogirl,

I experience similar pain & stiffness to yours. So far I've found that there are a many potential supplements, but many give me unexpected side effects such as anxiety. So far I've found green tea extract excellent against typical weird Sjogren's pain such as muscle pain and stiffness - works quickly too like within first day & is cheap if you fill your own capsules. However, I can only stomach half a capsule because more gives me insomnia and increases dry mouth. So better to start off low & slow.

Good luck!
50. Lyme's (1998), Sjogren's (2003), hypothyroidism (2004), osteoarthritis (2016), DES-daughter, GAD. Pilocarpine, natural thyroid hormones, 25mg quetiapine, low dose testosterone, 2.5 mg dhea, supplements. Endometriosis, cherry angiomas, macules. Allergies: nickle, methylisothiazolinone, latex

Sharon

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Re: Medical Mystery -- Stiffness/Tight Muscles Anyone?
« Reply #2 on: January 11, 2018, 04:38:50 PM »
How long were you on Gabapentin for before you stopped SjoGirl?
The pain you describe reminds me of my RA pain and I see in your details that you were diagnosed with RA as well.
Could it have been that the Gabapentin was just covering up your pain before?
I take a biological med for the RA and it has literally saved my joints (and my sanity).
Sjogren's (+ RA?) positive ANA, RNP, RNP-A, APCA salivary gland swelling, dry mouth & eyes,, eyelid swelling & redness, photosensitivity, fatigue, severe joint pain, multiple sensitivities and allergic reactions 
Orencia, Restasis, Paleo Diet, Vit. D & C, Ubiquinol 200mg, Omega 3...

SjoGirl

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Re: Medical Mystery -- Stiffness/Tight Muscles Anyone?
« Reply #3 on: January 17, 2018, 04:38:53 PM »
Hello Sharon,

Ah biologics, I've asked my rheumy about them, but he wanted to try other options first because I am so medication sensitive. I do believe meds often just mask symptoms or mitigate them, but don't address the real issue. That said, my SED rate was recently tested and is normal as normal can be (really normal).

Then again, my Hemoglobin was low, so was hematicrit, so was RBC, and WBC (WBC always low). He did not check RF which I realized after I got results. I wonder if I'm not getting enough oxygen to my muscles or they are not repairing themselves. I need to ask my rhuemy what he thinks but have been holding off because I'm having carpal tunnel surgery tomorrow.

As I just told Irish in a post about shoulder pain that I have been having I had tears in my labial muscles years ago and would say that this pain is in some ways similar, just much more severe. I have been too occupied prepping for surgery to pursue this + my husband has been coughing for four weeks and my sister is dying from cancer and I am working several jobs so I can only handle so much.

I see my rheumy in March and will ask again about other treatment options. Thanks for the thoughts and for your support.
Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

Judie P

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Re: Medical Mystery -- Stiffness/Tight Muscles Anyone?
« Reply #4 on: January 20, 2018, 12:34:50 PM »
Oh man, this post is exactly what I needed today.  Been dealing with what I believe is stiff muscles from the waste down.  I began having this symptoms two weeks ago.  Went to see my PCP who did an anal and pelvic exam and found nothing.  He was more worried about my blood pressure.  Started a blood pressure medicine last night and woke up with muscle cramps in both legs, having to urinate all night, and this morning the pain was so bad I could not walk.  I did find out last month that I had multilevel arthritis, degenerative disc disease and stenosis in C5, 6 & 7 in my neck.  No one seems to want to do an MRI on my back.

Anyone out there have this problem when they started amLODIPine (Norvasc)?  Anyway, I feel for you and I think this is all Sjogren's related.  I am going to make an appointment with my rheumy for this mess.  Pain is horrible!!!!  I will keep looking on this post for similar advice.

Primary SJS, SS-A >8, fibromyalgia, neuropathy, asthma, Effexor, Vitamin D 1,000mg, magnesium, Motrin, Ayr Nasal Gel, Ayr nasal mist, Optique 1 eye drops

bluegardenia

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Re: Medical Mystery -- Stiffness/Tight Muscles Anyone?
« Reply #5 on: January 22, 2018, 11:30:19 AM »
i take a medicine called NORMAST, it contains palmitoylethanolamide, and its great for pain. no side effects. please try to google  this substance
60,primary sjs, diverticulosis,ibs,atrioventricular blocks 2 degree first type, acid reflux.
omeoprazole, vit c, flack seed, omega 3, b complex, nac,systane ultra, pineapple seeds