Author Topic: Fish oil, how many of you still take it?  (Read 524 times)

ohiolady

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Fish oil, how many of you still take it?
« on: December 27, 2017, 06:18:42 AM »
 how many of you still take fish oil? I took it for 10 years and for the last year so I have not been very faithful at taking it. It occurred to me that my pain level has been much worse since I stopped. My question is how many of you feel that it helps with arthritic and muscle pain?

Thanks!

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

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bluegardenia

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Re: Fish oil, how many of you still take it?
« Reply #1 on: December 27, 2017, 06:42:23 AM »
i always take it for dry eyes
60,primary sjs, diverticulosis,ibs,atrioventricular blocks 2 degree first type, acid reflux.
omeoprazole, vit c, flack seed, omega 3, b complex, nac,systane ultra, pineapple seeds

Carolina

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Re: Fish oil, how many of you still take it?
« Reply #2 on: December 27, 2017, 06:50:13 AM »
Dear Anna,

Wow, how timely.   My new doctor for Pain suggested Omega 3 therapy for PAIN. 

I've been taking a high dose (1400 mg twice daily) for my Coronary Heart Disease.  But the NEW therapy for pain involves making sure that the Omega 3 is high in EPA and DHA levels.  This is what I've ordered:

HIGH DOSE AT 2250MG – Higher EPA and DHA levels than other brands with a total of 2,250mg Omega 3 Fatty Acid content.

The requirement is to take 4 of these very high dose capsules a day, much more than I've been taking.

The new Omega 3 Fish Oil capsules haven't arrived yet.

I'm also doing LDN (Low Dose Naltrexone) for pain.  I started just over a week ago, and I'm increasing slowly.  I started at 1 mg and I'm now at 2 mg.  Last night was the first night without pain, so I think it's working.

I can't wait to try the new higher dose Omega 3, as well.

Regards,  Elaine

Female-75-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-IBS-Knee/Shoulder Degeneration-Intertrigo,Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-IVIG-Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-Copper-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-FishOil

ohiolady

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Re: Fish oil, how many of you still take it?
« Reply #3 on: December 27, 2017, 06:55:17 AM »
Elaine,

Thank you for replying.  I saw that your doctor has a list of things to try you on to help with your pain. I am on a mission to try as many things as possible to relieve some of my pain. Please keep me posted on the things that you feel are helping the most

Thanks again!

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

SjoGirl

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Re: Fish oil, how many of you still take it?
« Reply #4 on: December 27, 2017, 08:55:54 AM »
Wish I could, but fish oil does something to my blood counts, very weird, but true.
Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

Carolina

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Re: Fish oil, how many of you still take it?
« Reply #5 on: December 27, 2017, 12:51:49 PM »
Ah SjoGirl, we are all so different, while alike in suffering Immune Disorders.

I note that you and I have many 'conditions' in common, none of them much fun.  And yet we cope, of course, as best we can.

Regards, Elaine
« Last Edit: December 27, 2017, 12:53:27 PM by Carolina »
Female-75-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-IBS-Knee/Shoulder Degeneration-Intertrigo,Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-IVIG-Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-Copper-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-FishOil

Sharon

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Re: Fish oil, how many of you still take it?
« Reply #6 on: December 27, 2017, 01:45:45 PM »
I take about 3000mg of Omega 3 daily (Solgar) and I can't say I'm certain it's doing anything for me.

Elaine- What brand of Omega 3 did you order? I'm ready to try a new brand.
Sjogren's (+ RA?) positive ANA, RNP, RNP-A, APCA salivary gland swelling, dry mouth & eyes,, eyelid swelling & redness, photosensitivity, fatigue, severe joint pain, multiple sensitivities and allergic reactions 
Orencia, Restasis, Paleo Diet, Vit. D & C, Ubiquinol 200mg, Omega 3...

Maria3667

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Re: Fish oil, how many of you still take it?
« Reply #7 on: December 27, 2017, 04:07:24 PM »
I also take 3.000 mg daily. Helps a little against dryness issues, but I find it mostly beneficial against depression.
50. Lyme's (1998), Sjogren's (2003), hypothyroidism (2004), osteoarthritis (2016), DES-daughter, GAD. Pilocarpine, natural thyroid hormones, 25mg quetiapine, low dose testosterone, 2.5 mg dhea, supplements. Endometriosis, cherry angiomas, macules. Allergies: nickle, methylisothiazolinone, latex

Carebear

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Re: Fish oil, how many of you still take it?
« Reply #8 on: December 27, 2017, 07:43:30 PM »
I did take it for a year or so.  5000 mg daily.  But I had to stop because I developed some sort of allergy to the fish oil, which caused me to choke and have a difficulty in swallowing.  At least my throat didn't close up totally!

I actually didn't notice any improvement in pain during that year, nor in the eye dryness which was my reason for taking it in the first place.

We are each so different, aren't we?

Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Joe S.

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Re: Fish oil, how many of you still take it?
« Reply #9 on: December 27, 2017, 08:01:49 PM »
I take 5800 units of Omega-3 Flaxseed oil a day.
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Carolina

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Re: Fish oil, how many of you still take it?
« Reply #10 on: December 28, 2017, 03:43:46 PM »
right now I'm taking 2,400 mg of Omega 3, as recommended by my Cardiologist.

I have ordered (from Amazon) 
Omega 3 Fish Oil 2250mg | HIGH EPA 1200MG + DHA 900MG Triple Strength Burpless Capsules | 120 Pills | BioScience Nutrition
Sold by: BioScience Nutrition

So that's what I'll try next, for pain relief.

Regards,  Elaine
Female-75-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-IBS-Knee/Shoulder Degeneration-Intertrigo,Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-IVIG-Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-Copper-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-FishOil

Sharon

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Re: Fish oil, how many of you still take it?
« Reply #11 on: December 28, 2017, 04:55:16 PM »
Thanks Elaine  :)
Sjogren's (+ RA?) positive ANA, RNP, RNP-A, APCA salivary gland swelling, dry mouth & eyes,, eyelid swelling & redness, photosensitivity, fatigue, severe joint pain, multiple sensitivities and allergic reactions 
Orencia, Restasis, Paleo Diet, Vit. D & C, Ubiquinol 200mg, Omega 3...

Deb 27

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Re: Fish oil, how many of you still take it?
« Reply #12 on: December 28, 2017, 05:40:30 PM »
I take MaxiTears 2-3,000 mgs/ day. I like it and feel like it makes a difference but I also have RA.  It's enteric coated too.
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Lotus1

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Re: Fish oil, how many of you still take it?
« Reply #13 on: December 29, 2017, 03:31:30 PM »
I use high dose krill oil, read it is less likely to get contaminated.

I'm sure it helps my arthritis, maybe my dry eyes slightly.
Helps keep away mouth ulcers since radiation.
If I lower the dose I get an ulcerated tongue on the radiation side of my face, a nuisance as I didn't need high dose before radiation.

Now I'm finding borax powder helpful for arthritis, helps heaps of things (lupus) apparently like magnesium.
Borax is a golden oldie & we buy both borax & magnesium cheaply from the Polio Clinic which helps support their work.

I find  refined white sugar and dairy aggravate arthritis, not good for SS in general, so rarely eat it.
A healthy diet does help ailments.

Lotus1

ohiolady

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Re: Fish oil, how many of you still take it?
« Reply #14 on: December 30, 2017, 10:27:55 AM »
Thanks Lotus!!! Does Borax irritate stomach?  I tried glucosamine and chondrotin for arthritis pain and it really helped but irritated stomach terribly.

To all:  I have used Carlson fish oil for 11 years.  It is a high quality and Dr. Mercola and Jordan Rubin used to,recommend. It has a light lemon flavor.

I hope I see some benefits  by being more faithful.

Thanks as always!!!

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62