Do not dismiss nor take the Dx of Fibro lightly. I questioned more than once if it was correct. It is. The combination SJS/Fibro is a double whammy impact on self and family. Good news is they can be managed.
Rhuem Director @ one of the few SJS clinic in country.
Dr. confirmed Fibro along with SJS. As did original Rheum Chief at Medical hospital.
SJS and Fibro have different treatment protocols.
Pain gets confusing because it tends to radiate. Pain in but one symptom.
Tender points are used, but, today so are quadrants and history. Some believe Fibro patients are help by Neurologist (depends on specialists areas)Symptoms of fibromyalgia include:
Widespread pain. The pain associated with fibromyalgia often is described as a constant dull ache that has lasted for at least three months. To be considered widespread, the pain must occur on both sides of your body and above and below your waist.
Fatigue. People with fibromyalgia often awaken tired, even though they report sleeping for long periods of time. Sleep is often disrupted by pain, and many patients with fibromyalgia have other sleep disorders, such as restless legs syndrome and sleep apnea.
Cognitive difficulties. A symptom commonly referred to as "fibro fog" impairs the ability to focus, pay attention and concentrate on mental tasks.
Other problems. Many people who have fibromyalgia also may experience depression, headaches, and pain or cramping in the lower abdomen.
At higher tier of SJS med, Fibro was left untouched, those symptoms where then obvious, presently singularly.http://www.hopkinsmedicine.org/healthlibrary/conditions/orthopaedic_disorders/fibromyalgia_85,P00913/
"Fibromyalgia and joint pain related to SS may be hard to differentiate. Fibromyalgia pain is present on a nearly daily basis, with flares of increased pain triggered by exertion, lack of sleep and stress." https://www.hopkinssjogrens.org/disease-information/sjogrens-syndrome/joint-pain/
PennMed (where I go) and Hopkins have Sjogrens Clinics, and continue their research.