Author Topic: Anyone from Victoria, Australia  (Read 3128 times)

Jus

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Re: Anyone from Victoria, Australia
« Reply #30 on: January 21, 2017, 07:17:26 PM »
Hi everyone,
I have just joined forum and thank Dawnmist very much for her message of where to find your posts.  I am not forum trained as yet!  This is the first one I have been on.  I joined as I felt connected to what I read of your experiences in the posts.  The quest to find just something that makes life more comfortable.  The cost of one health consultation after another.  Mostly, the sense of hope and willingness to keep going regardless.  To give you a bit of a picture of me, I was diagnosed with Sjorgens, SLE, and various other complaints about 8 years ago after not being diagnosed for several years before.   I am a single Mum of 2 healthy teenage great kids.  I work full time in Education.
I can relate to health impacting on job choices and others perception of you.  My eyes blink lots due to eye sensitivity, dryness, glands not functioning.  This seems to put off prospective employers even though I am well qualified and experienced for the job.  I use lots of drops through the day but only with momentary relief. 

I would love to meet up with you near Frankston in March.  I can only make after work hours though so an evening or weekend would enable me to come.  Perhaps Sat 4th or Sun 5th March would work?  Lotus1, I don't know any cafes within walking distance from where you are staying but there are plenty nearby and I would be happy to pick you up and take you back to your accommodation if it works.  I live on the Mornington Peninsula so fairly close to Frankston (about 30 mins drive). 

Look forward to chatting with you all here.

Jus

SS post RAI Thyroid

Lotus1

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Re: Anyone from Victoria, Australia
« Reply #31 on: January 21, 2017, 08:50:39 PM »
Welcome to the forum Jus!

Glad Dawnmist was able to help you find this thread.

People here are good listeners & we all seem to have an input.

I'm sure the other ladies as well as myself would love you to join us if possible on the weekend (4th or 5th March),  which you said is best for you.
I'll fit in with you all.

Jus, thanks for the info re cafes and your offer of a lift also.
It's looking like I'll need to be picked up.

I hear Mornington Pen is beautiful.

This is exciting planning getting together.

I look forward to meeting you along with the other ladies if possible.

Lotus1







Bigleyj

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Re: Anyone from Victoria, Australia
« Reply #32 on: January 24, 2017, 12:15:21 PM »
Hi all

I'm fine for the Saturday or Sunday. Prefer about lunch time.

Shall we go to Fratelli?

Lotus1 you will need a lift. Will your partner come?

Cheers
Jo

Female, 44 Yrs, Victoria, Australia. 
Diagnosed SJS Nov 2014, diagnosed skin-only Lupus Dec 2014, overactive thyroid medicated since 2011.
 plaquenil, carbimazole, escitalopram (esipram), second generation oral saliwell stent, vitamin D.
Came off low dose Valium mid-2015 😀

Lotus1

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Re: Anyone from Victoria, Australia
« Reply #33 on: January 24, 2017, 08:44:46 PM »
Hello Ladies

Yes, the Sat or Sun for lunch is fine with me.
I'll go with your choice, ladies.
Thanks for your generosity whoever transports me (possibly hubby too) depending on the day.
Hubby is unable to come Sat & won't mind if I just meet with you ladies should Sat be the date.
This is exciting meeting sjogren's friends!

I had tooth root canal treatment on Monday.
I'm not happy because I wanted the patched crowned tooth pulled out (2nd from back of top teeth), wouldn't miss it, wouldn't remove the tooth.
Since I was in such pain, face up into hair, had to go along with the surgery.
The pulp was inflamed & calcium build up.
I took 2 days off work & had to cancel meeting up with someone this morning due to lack of sleep/pain.
Oh well, I'll get over it.  I've never had tooth pain before despite having crowns/fillings.
I hardly ever use panadol which affects me, clashes with my sleeping pills making me spaced out the next day.
Sorry to whinge.

I'll dream about our date.
Look forward to hearing when the meeting time is.

Take care all.

Lotus1


Bigleyj

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Re: Anyone from Victoria, Australia
« Reply #34 on: January 30, 2017, 02:05:37 PM »
Ok lets make a decision...

Saturday 4th March
12 noon
Fratelli (Cranbourne-Frankston Road)

Jus can you pick up Lotus1?

Is this ok for everyone?

Cheers
Jo
Female, 44 Yrs, Victoria, Australia. 
Diagnosed SJS Nov 2014, diagnosed skin-only Lupus Dec 2014, overactive thyroid medicated since 2011.
 plaquenil, carbimazole, escitalopram (esipram), second generation oral saliwell stent, vitamin D.
Came off low dose Valium mid-2015 😀

Lotus1

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Re: Anyone from Victoria, Australia
« Reply #35 on: January 31, 2017, 04:18:38 PM »
Thanks, Sat 4th, 12 noon sounds great if everyone is fine with it.

Thank you Jus if you are able to pick me up at Frankston Guesthouse, 12 Bondi Ave, Frankston.

Looking forward to seeing you all, my special sjogrens friends.
Must warn you I've a very good appetite, despite being built like a bean pole lol

Oh, my new replacement android tablet just arrived by courier & it's white in colour which I was hoping for.
Now to work out how to get it set up.  Took me ages last time.
I went to a retirement seminar last year & was given an android tablet which stopped working a few months ago.
Decided to let the organizers know & they replaced the faulty android tablet even though I never signed up to any plans.  We don't earn enough $$ lol

My tooth gum wouldn't settle so I took to it with salt water rinses which soothed the gum, nice.
Of course my eyes got so dried out I couldn't drive to the Dr to get a medical certificate for the rest of the week.
Hubby was too fatigued, had to sleep so my lovely 81 yr old neighbour drove me to the Dr.
She is wonder woman even though she has a form of chronic fatigue, no problems driving, chatting all the way.  She sat in the car using her ipad while I was in with the Dr.
Don't think I'll be like her when I'm 81 yrs!!

Catch you soon.

Lotus1

Dawnmist

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Re: Anyone from Victoria, Australia
« Reply #36 on: February 05, 2017, 08:00:07 PM »
12pm on Sat 4th is good for me (and my husband) too.

Lotus1 - if Jus cannot pick you up, we should be able to. So you don't need to worry about not being able to get there. :)

Looking forward to chatting a while with everyone!

Cheers,
Janeene (Dawnmist)

Diagnosed Sjogrens + Fibro March 2015, SFN Confirmed March 2016, LFN (sensory) Confirmed Dec 2016, ANA 1:640 Sep 2016, SSA+/SSB+, wheat intolerant (not gluten intolerant - rye/barley are ok), Vit D, Omega3 (fish), Gabapentin, Tramadol, Celebrex, Lidocaine patches, Plaquenil, Duloxetine, Primolut

Lotus1

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Re: Anyone from Victoria, Australia
« Reply #37 on: February 07, 2017, 02:51:28 AM »
Thank you Dawnmist.

You are all very kind.

I'll be looking out for a sjogrens person lol -  Frankston guesthouse, 12 Bondi Ave, Frankston.

If hubby ends up being able to come it would be nice for your hubby Dawnmist.

I'll let you all know my mobile number nearer the time ladies in case needed.

So looking forward to meeting you all for a good old chat.

I see the opthalmologist tomorrow.
Reckon he'll suggest plugs - scarey!

Take care.

Lotus1


Jus

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Re: Anyone from Victoria, Australia
« Reply #38 on: February 15, 2017, 01:03:43 AM »
Hi everyone,

Sat 4 March is great.  I will pick up you and hubby if he comes Lotus1.
Thanks again Dawnmist for keeping me connected. Maybe you can all give me some forum tips when we meet.

Cheerio,
Jus

SS post RAI Thyroid

Lotus1

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Re: Anyone from Victoria, Australia
« Reply #39 on: February 15, 2017, 02:30:49 AM »
Thank you Jus, very much appreciate your kindness.

Look forward to meeting each of you lovely & special ladies soon now!

Opthalmologist is arranging blood plasma eye drops for me.
Can only try.....

Take care.

Lotus1

Lotus1

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Re: Anyone from Victoria, Australia
« Reply #40 on: February 25, 2017, 02:01:37 PM »
Morning Ladies

I'm looking forward to seeing you all next Saturday 4th.

Hope it's a pleasant sunny day.

Thank you for picking me (& possibly hubby) up Jus.

Enjoy your week.

Lotus!

Jus

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Re: Anyone from Victoria, Australia
« Reply #41 on: March 03, 2017, 01:42:59 AM »
Excited about meeting you all tomorrow! 
Been telling all my family about it ;-) 
See you soon

Jus
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Lotus1

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Re: Anyone from Victoria, Australia
« Reply #42 on: March 03, 2017, 03:22:41 PM »
Yes, I'm excited about seeing you all too!

Only 1.5 hours before my 'taxi' arrives to pick me up!

Thanks heaps, Jus


See you all real soon.....

Lotus1

Lotus1

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Re: Anyone from Victoria, Australia
« Reply #43 on: March 05, 2017, 03:21:59 PM »
Hi Ladies

It was lovely meeting you all & chatting while eating lunch together.

You are all brave ladies coping with SS.

I'm enjoying Melbourne behaving itself with nice weather.

Dawnmist, please thank your husband again for the tablet cord, so kind.
Never know what men have stored away!
 
Thank you so much Jus & Bigleyj for transporting me & your offer Dawnmist.

We took Glen's daughter to Frankston Beach yesterday.
Quite an experience for hubby driving the wheel chair.
I was asked by my step daughter to drive the wheel chair back to her room last night after tea.
I was nervous, but not her, brave girl she is.  I finally got her there safely.
We are certainly learners with the 24 hr care. 
Hubbby is worn out & sunburnt so having a well deserved sleep in today.
Carers deserve a medal working with 'demanding' patients and appear to be real carers.

Today hubby & I plan to check out Bayside shopping centre
Hear it's huge!
Off to find out what bus will get us there lol

Keep in touch.

Lotus1



Bigleyj

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Re: Anyone from Victoria, Australia
« Reply #44 on: March 10, 2017, 09:49:40 PM »
Well I definately had a good time. A few laughs too 😀

Hope we can do it again.

Cheers
Jo
Female, 44 Yrs, Victoria, Australia. 
Diagnosed SJS Nov 2014, diagnosed skin-only Lupus Dec 2014, overactive thyroid medicated since 2011.
 plaquenil, carbimazole, escitalopram (esipram), second generation oral saliwell stent, vitamin D.
Came off low dose Valium mid-2015 😀