Author Topic: When your doctor retires  (Read 614 times)

Bucky

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When your doctor retires
« on: January 23, 2019, 08:18:26 AM »
Next month, I will be seeing my doctor that I've been seeing for the last 25 years, for the last time.  She's retiring.   :(

When you're been seeing this same doctor year after year for a quarter of a century, it's sad to know you will have to find a "new" doctor.  I don't want a "new" doctor, I want the same one who took care of me in my child bearing years.  The same doctor who delivered our son.  The same one who was with me through menopause and post-menopause.  The same doctor who knows I have Sjogren's and that makes me a little different than her other patients.

With some doctors, you're just another patient . . . get in, and get out.  Other doctors know who you are by name, they don't have to look at your chart to see who you are.  They know your medical history.

I like things that are routine and familiar, I'm not real fond of change.  Just to clarify, routine is not always a good thing and change can bring new, unexpected things into your life.  I guess being in my early 60's, I've had too many changes in recent years that I had no control over - too many losses, and this is just one more loss I have no control over.

I imagine, before too long, my primary care doctor will be retiring too.  He's been my long time provider for 25 years too.

Everyone deserves to retire - to enjoy more family time, leisure time, traveling, sleeping in, or trying a new adventure.  I'm just not ready for the change and having to start over.

Dr. B, I will miss your smiling face and your compassionate care you've given me for the last 25 years - enjoy your retirement!

Bucky
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irish

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Re: When your doctor retires
« Reply #1 on: January 23, 2019, 10:48:51 AM »
Bucky, So sorry to hear of your loss......and it is a huge loss when we lose a good doctor.

I just lost my internist of about 8 years. She took care of me and my hubby and knew our family and its ups and downs. Like you I am sad but I could understand. My doc has 2 children in the 7 through 10 age group and she was finding that they needed more support. Her husband is also a doctor. I told her that she would never regret taking time off to help her kids through the tough years that school can bring. Gave her a hug and that was it...…..BUT is so miss her. So I get what you are going through especially after all those years.

So hard to find a doc to replace those we live but have to hope that the one we choose will fill the bill. Good luck in these huge endeavor, Bucky. Hugs, Irish

Joe S.

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Re: When your doctor retires
« Reply #2 on: January 23, 2019, 03:14:54 PM »
The first time I had to go through this it took me several years to find a new doctor. I ended up with a female doctor. She was willing to look up Sjogren's and not say it was just dry eyes and dry mouth. Now with the VA, I never know who I will see. i usually see a female MD. She seems good and finds me a bit strange. Most people here may find me a bit strange.

Do your best to have an advocate go with you to see your new doctors. You may have to do some shopping and your advocate will be a good sounding board as to how your appointment went. 10 or 15 minutes for an appointment is very limited. It may take several appointments for you to make your choice. But I am sure you know this. Good luck!
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SjoDry

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Re: When your doctor retires
« Reply #3 on: January 24, 2019, 05:51:13 AM »
Oh Bucky,

Can I relate to this! My pcp of many years retired a few years ago..she was one of the few docs who really believed my issues were real in spite of the seronegative tests. I did not replace her until last week because my complex history is so crazy...I did not want to go to just anyone.

Then my amazing neurologist (year & half wait to get in to him) became ill & took a medical retirement a couple of years ago. I am in waiting mode to see new neurologist now (can't get into the movement disorder specialist until next May). And now my pcp wants me to see a neurosurgeon as well.

Next my wonderful Rheumy (who trained under Vivino) informed me last week that he accepted a job at the Univ. of Kansas and will be leaving in July.

I am down to one original member of my doctor dream team. It took me years to find & establish that team. I know it was an opportunity that he could not pass on. He is so sharp that he is really starting to get a lot of recognition in Sjogren's professional medical circles. I wish him well...but am very sad to see him go.

It is so hard for us to find really great docs who listen and hear us. I hate having to start this process over. I have been in avoidance mode in finding new docs until my body won't let me avoid it anymore.

Good luck in finding your new doc(s). I definitely know how you are feeling..and am with you on that.
SjoDry

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Madison Granny

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Re: When your doctor retires
« Reply #4 on: January 24, 2019, 05:17:02 PM »
My first Rheumy retired to July of 2016.  He was so great.  He listened to me and would try and work with me on what we should do next.  The Rheumy that replaced him is not very friendly.  He tries to bully me into doing everything and take everything that he wants me to.  I have several condition that would me made worse if I did everything he wanted.  I am thinking about trying to find a new Rheumy at a different practice.  This Rheumy is 76 years old so I hoping he retires soon so I don't have to find another.
Primary SJS, dRTA, Osteroporis, OAB, stage 3 kidney disease, hypothyroid and high blood pressure.  Medicine I take are plaquenil, bicarb, prolia, synthroid, toprol and amolipine, citracal and vitamin D.  I use Arex and Azasite and Prolia.  I also have Reynaud's and osteoarthris of the toes

warmwaters

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Re: When your doctor retires
« Reply #5 on: February 04, 2019, 08:16:34 AM »
Finding a new doctor is real work. If you also see other doctors, see if they have any recommendations. I also read online reviews.

I've moved several times recently, and the worst is re-establishing medical care. In one move, I had to try 3 PCPs before I could find one who a) mostly believed me, and b) whose office was mostly competent on the boring stuff like sending referrals and prescription renewals.
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jazzlover

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Re: When your doctor retires
« Reply #6 on: February 04, 2019, 08:29:46 PM »
So sorry to hear this! I agree .. it is not a fun change!

My PCP (internist) has been our doctor for about 13 years. He's vital to my good care, I know that for sure!

He diagnosed me with SJS, he knows all about Lyme disease (which I've had), he also knows a lot about Mast Cell Activation Syndrome, which I have.

He was willing to learn about the MCAS from me and even read the expert's book so he could help diagnose some of his patients that he "knew" had it.

I worry all the time about his retiring. He is approaching 70, I think. Not really sure of his age. He almost died a few months ago and spent a month in the hospital. He has a clotting disorder and his abdominal aorta took a hit.

So .. I just count my lucky stars every day that he is still around.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

vrystaat

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Re: When your doctor retires
« Reply #7 on: February 05, 2019, 07:48:57 AM »
I have had constant problems with my Rheumatologists.
Rheumatology is not a popular specialty for MD's. They generally make a poor wage.
Initially I had a total ignoramus doctor in my early disease (1992). His neglect caused me to go in to renal failure.

I had also started at a West-coast University 10 years after my initial diagnosis, and their Rheumatologist was a dream. She saved my life.
Later she left for the next State. The follow-up Staff were pretty poor, so after that, I needed a private practice Rheumatologist.

Now, there are only two of them in my county, and they are not good clinicians. Getting IVIG from them is like pulling teeth. None of them
will give this essential treatment.

The whole story is pretty complex, but I have still not found a knowledgeable MD, who can give IVIG.
Good luck all!
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jazzlover

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Re: When your doctor retires
« Reply #8 on: February 08, 2019, 11:31:32 AM »
vry ... Have you tried an immunologist for the IVIG?
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

Deb 27

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Re: When your doctor retires
« Reply #9 on: February 09, 2019, 07:04:14 AM »
Bucky, I know the feeling! I've had two good rheumies retire and I have moved twice. I will say that in my move and having to get a new rheumy, I actually got diagnosed with SJS. So, it was a good thing for me. She turned out to be really excellent. Now, I have moved again and had to find another rheumy....... The jury is still out on him. My last rheumy was so awesome.
So was my PCP and now I've had to change that as well. Not as happy......

So, I am hoping you will have good luck in finding a new rheumy.
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Bucky

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Re: When your doctor retires
« Reply #10 on: February 22, 2019, 08:32:01 PM »
Well, the dreaded day came this week - my last appointment with my gynecologist that I've had for the last 25 years. 

After my appointment, with teary eyes I thanked her for being a great doctor and she gave me a hug.  She told me, "don't cry on me, or I'll be crying too".

And so, one chapter closes with this doctor and we'll see what happens from here.  Dr. B said one of her nurse practitioners would be taking over her patients and she can do everything but deliver babies (which I am loooong past that stage, so no worries there).

Best wishes, Dr. B - I will miss having you as my doctor.  Happy Retirement!

Bucky
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Skylar

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Re: When your doctor retires
« Reply #11 on: February 27, 2019, 11:00:46 AM »
I?m sorry your favorite doctor retired. Lots of memories tied up with that doctor

Hopefully you will like your new one.

ktfabian

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Re: When your doctor retires
« Reply #12 on: March 11, 2019, 03:07:40 PM »
I can relate to all of you. I've been seeing a wonderful Sjogren's specialist in Philadelphia for 12 years (Not sure if we're supposed to name names but I think a lot of you know who I'm talking about.) I got the letter late last year that he was retiring from seeing patients so that he could dedicate his time to research. I was told I would see one of 2 doctors he'd trained at my next appointment.

I was devastated! I live 2-1/2 hours from Philly so I have a Rheumatologist here at home, but I don't like him anywhere near as much as I like my other doctor. He really turned my Sjogren's around when no one in my area even knew what it was.

Imagine my surprise when I got the notice that my Feb. appointment was going to be with my original doctor! Apparently, someone jumped the gun in sending out the notices, so I'll be able to see him at my  next appointment at least, and then he'll help me choose the doctor who will follow him.

So I still have to deal with change, but it seems a little  less harsh this way at least. Fortunately, I have a fantastic PCP who has followed everything this specialist has done so I know she'll stay on the local rheumatologist to keep the level of care up to par.

Best of luck to all of you with your changes. I hope you find the very best doctors you can,
Tracy
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