Author Topic: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!  (Read 10577 times)

Linda196

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #15 on: March 31, 2016, 06:45:53 PM »
Spring and AlienDog are aware that there is a problem, and are working on it. Sorry for the inconvenience.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

SjoDry

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #16 on: March 31, 2016, 06:48:53 PM »
What is the channel? Some type of password?

SjoDry
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Female 55 y/o; SJS Primary; CVID; Autonomic Neuropathy: Chronic Digestive/G.I. issues; Leukopenia;Tachycardia; Bronchiectasis; High Blood Pres; R.A.;Chronic Pain; Sub~Q IVIG infusions~Hizentra; Plaquenil; Restasis; Gapapentin; Breathing/nebulizer meds; Pain meds;

Judie P

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #17 on: March 31, 2016, 07:07:21 PM »
Go under this topic and it will tell you how to sign in.  You will need a nickname and the channel name.  It will tell you what the channel name is.  Hope to see you next week on the chat!
Primary SJS, SS-A >8, fibromyalgia, neuropathy, asthma, Effexor, Vitamin D 1,000mg, magnesium, Motrin, Ayr Nasal Gel, Ayr nasal mist, Optique 1 eye drops

Deb 27

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #18 on: July 16, 2016, 08:43:46 AM »
 Sorry I missed chat last Thursday. I had a problem either with my computer or connection-:(
Sjogrens and RA,  Morphea (skin scleroderma), Hashimoto's, 
Nexium, synthroid, HRT, plaquenil,  prozac, Restasis, Maxi-tears supplement, L-glutathionne, CoQ10, alpha lipoic acid, multi vitamin.

Judie P

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #19 on: July 21, 2016, 12:21:32 PM »
You didn't miss it Deb27.  We were both disconnected during the chat and I finally figured it out 10 minutes after the fact!  Hope to hear from you tonight.  Sjoggiemama
Primary SJS, SS-A >8, fibromyalgia, neuropathy, asthma, Effexor, Vitamin D 1,000mg, magnesium, Motrin, Ayr Nasal Gel, Ayr nasal mist, Optique 1 eye drops

Linda196

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #20 on: December 20, 2016, 05:42:57 PM »
We are taking a holiday break from hosted chat until January 5, 2017. If any members want to drop in and chat with each other, feel free, but there won't be a host.
We wish you a very Happy Holiday, and Very Best Wishes for a Happy, healthy New Year!
« Last Edit: December 20, 2016, 05:44:57 PM by Linda196 »
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

airons

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #21 on: August 06, 2017, 09:57:17 AM »
Is this still happening? Would be very useful for me.  Thanks!
Extreme xerostomia (160 mg Bethanecol [Duvoid], 75 mg Sialor daily); extreme dry eyes, lower ducts cauterized, upper pending; Restasis 2X daily, Hi-Lo gel (non-prescription), Thera-tears drops daytime, Ocunox gel night. General fatigue, onset of hand, shoulder pain.

Linda196

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Re: TWO HOUR CHATS!!! LOTS OF TIME TO VISIT!!!
« Reply #22 on: August 07, 2017, 02:54:13 AM »
Thursday evening chat is still active, check the link in the first post of this thread and join us! We'd love to "meet" you i a more direct conversation!
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld