Author Topic: PM (private messaging), is it working for you or problematic?  (Read 1913 times)

Spring

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PM (private messaging), is it working for you or problematic?

If anyone is experiencing problems from PMs please report them to a moderator, since we are considering altering the rules and need to know if it is necessary.

Your problems could be either technical or with content, unsolicited pitches, annoying comments, and the like. Just let us know.


Sjogren's World Staff

finallyadx

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Re: PM (private messaging), is it working for you or problematic?
« Reply #1 on: July 07, 2014, 07:12:53 PM »
I have had nothing but positive interactions with folks who have PM'd me.
Thanks for all you do!
Primary ss dx 2013, plaquenil, vitamin d, iron supplements, vitamin b12, d-mannose for chronic UTI's, magnesium for heart palpatations and Zinc

slccom

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Re: PM (private messaging), is it working for you or problematic?
« Reply #2 on: July 07, 2014, 08:54:17 PM »
Ditto. It is great!
Sharon

ohiolady

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Re: PM (private messaging), is it working for you or problematic?
« Reply #3 on: July 07, 2014, 09:15:51 PM »
Positive experience.
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

MarieB

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Re: PM (private messaging), is it working for you or problematic?
« Reply #4 on: July 07, 2014, 09:21:08 PM »
Positive experience.   :D
Diagnosed w/Sjogrens May2014
SSA >8  SSB >8 (0.0-0.9AI)H
Antichromatin Antibodies >8 (0.0-0.9AI)H
Anti-DNA(SS)IgG,Ab/Qn 37(0-19EU)H
Began Plaquenil May 2014

anita

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Re: PM (private messaging), is it working for you or problematic?
« Reply #5 on: July 07, 2014, 09:43:12 PM »
Works just fine!
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

Suslew

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Re: PM (private messaging), is it working for you or problematic?
« Reply #6 on: July 07, 2014, 10:21:09 PM »
Works for me!

litliwlowa

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Re: PM (private messaging), is it working for you or problematic?
« Reply #7 on: July 08, 2014, 02:08:11 AM »
No problems for me, and if I did have a problem with content, I'd handle it directly with the individual PMing. Only had that issue once (same person once last year trying to run me off the boards in PM and one this year same individual) which I handled by requesting the individual not contact me again.

Thus far, that individual has respected that request.

So I would say no problems
SJS-Primary; Hashi's, Post surgical hypothyroidism, Hypoparathyroidism, Spondylolithesis, L&C Facet Arthropathy, Fibro, gluten intolerance, TBI, Radiculopathies, Neuralgias, Osteopenia, GERD, Asthma, Allergies. Sphincter Dyssynergia. OSA, Fasciitis, Cervical Spondylosis, Cancer, etc etc etc

cccourt1942

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Re: PM (private messaging), is it working for you or problematic?
« Reply #8 on: July 08, 2014, 06:42:43 AM »
No problems here....great feature.
Sjogren's, Psoriasis, Hashimoto's, Osteoporosis, Osteoarthritis, Cold hands/feet,  fatigue,  pilocarpine-25 mg , Restasis, Plaquenil, Low dose Prednisone (2-3 mg daily) Xylimelt, Citrucel, Alcon-Naturale, Tears,Omega 3, Vit.D, Caltrate+D3, Fosamax, CoQ10, Zinc, Oxtellar. Levothyroxene

Ripvanann

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Re: PM (private messaging), is it working for you or problematic?
« Reply #9 on: July 08, 2014, 06:22:49 PM »
I love the PM feature! ! I hope that I am not part of the problem....annoying people! Thing is, everyone I PM (and they back) could, and I believe would, either ignore me or just simply ask me to stop. That's what adults do. =) PM s are nice BECAUSE there are less rules than the boards.
Primary SjS, Steroid Induced Cushing's Syndrome, RA, Thyroiditis, Hyperparathyroidism, Raynaud's, Autonomic & Small Fiber NLeuropathy, Fibro. Osteoporosis, & other fun stuff associated w/ the afore mentioned. ~Meds: prednisone, Plaqu, Citracal D & Pain Meds, Compazine, phenergan, Iberogast.

eija

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Re: PM (private messaging), is it working for you or problematic?
« Reply #10 on: July 09, 2014, 04:42:06 PM »
All good :)



Female, 52, in Finland
Sjögren's, fibromyalgia, Hashimoto, depression, migraines, pressure urticaria, mild Raynaud's, MCS...
Cymbalta, Tyroxin, Oftagel drops

anita

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Re: PM (private messaging), is it working for you or problematic?
« Reply #11 on: July 09, 2014, 04:53:10 PM »
I don't think we need more rules.  Let people resolve problems (if they have any) like adults.  Moderators can be contacted for those few instances when there are some who cannot be adults.  Blocking any unwanted PM's can also be done.
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

warmwaters

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Re: PM (private messaging), is it working for you or problematic?
« Reply #12 on: July 09, 2014, 04:59:46 PM »
OK for me - Everyone I've dealt with via PM has been very nice. I also appreciated when someone reached out to me by PM to let me know that I had said something in a way that might be misunderstood - I was able to clear it up immediately.

Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers