Author Topic: Cavities, cavities, all in 6 mos.  (Read 6083 times)

Tinker

  • Hero Member
  • *****
  • Posts: 763
Cavities, cavities, all in 6 mos.
« on: January 31, 2014, 11:32:11 PM »
Hi all,
I went to the dentist and he lectured me like a child.  I had 7 new cavities.

He asked what I changed with my dental hygiene.  WHAT?? That was difficult to take because I kinda obsess about my teeth.  Flossing, brushing, rinsing, etc.  I know if I don't , I'll get cavities.

He knows about the Sjs, and the hygienist noticed and mentioned I was very dry.  Yeah, I've been dry and using the biotene.

He scoffed at this explanation and said I wasn't doing my part.  I don't even want to go back.

I wanna know how I got 7 cavities in 6 mos. (I just saw him 6 mos ago for my regular check up and all was well,)

I didn't like his attitude, didn't like him blowing off the Sjs, and don't believe I developed 7 cavities in 6 mos.  Perhaps he is making a little money off me.

Has this happened to any of you?


Ripvanann

  • Hero Member
  • *****
  • Posts: 887
  • "A DESIRE FULFILLED IS A TREE OF LIFE"
Re: Cavities, cavities, all in 6 mos.
« Reply #1 on: February 01, 2014, 12:52:44 AM »
Tinker, this really stinks! Sorry! How long have you been seeing this dentist? I would definitely get a second opinion. You need a new dentist anyway, regardless of whether he's lying to make some money or not. He's a jerk who doesn't understand SjS, nor does he care about you.

I will say that this is what happened to me. My dentist was the first one to flat out say "You have Sjogren's" but left the Dx to my rheumy. My parotid glands were clogged when I met him and he couldn't get any saliva at all. I had a couple of cavities and that was the beginning of the end.

Went back for a six month check-up and needed 2 teeth pulled and 2 crowns. When I went back 3 month later to have the crowns, those two teeth needed to come out, along with 2 others. At that point he wasn't accusing me of bad oral hygiene, but said that I couldn't have any sugar period. No juice, nothing at all. Said there was so much decay that he would expect to see it in someone who slept with candy in their mouth for 15 years. I was also on Rx toothpaste, and OTC things, etc.

Went back 9 months later and 14 more needed pulled, with the remaining 8 needing extensive work. We decided then to pull them all. My decay was rapid because not only do I have SjS but I also have Cushing's which definitely contributed to the decay a great deal. Still, most sjoggies who have dental problems, have big dental problems.

Go to a new dentist. Hopefully the cavities are the result of a shark who wants your money. Worst case scenario, you need to have 6 teeth filled, but you'll have someone who will be more concerned about treating you and your SjS. Hope it's the former.

Take care now. Keep us posted.
~Andrea
Primary SjS, Steroid Induced Cushing's Syndrome, RA, Thyroiditis, Hyperparathyroidism, Raynaud's, Autonomic & Small Fiber NLeuropathy, Fibro. Osteoporosis, & other fun stuff associated w/ the afore mentioned. ~Meds: prednisone, Plaqu, Citracal D & Pain Meds, Compazine, phenergan, Iberogast.

litliwlowa

  • Hero Member
  • *****
  • Posts: 1780
Re: Cavities, cavities, all in 6 mos.
« Reply #2 on: February 01, 2014, 02:19:14 AM »
Hi Tinker

It's happened to me to get a LOT of cavities in a short period of time. One year (after my near fatal car accident), I had 22 cavities out of nowhere. Prior to MVA, I had great teeth. Then they were fine for a few years, then wham ten cavities at once. Couple of years ago 4 extractions plus two more cavities. Dry mouth sux.

Regarding your dentist's attitude? That alone would prompt me to find another dentist. Actually I did find another dentist when I was dx'd initially with sicca. My mouth was dry as a desert and I felt my former dentist SHOULD have picked up on that and did not. He was more interested in "puppy mill" dentistry than the patient.

If you do decide to find another dentist, do get your xrays (particularly if you got a panoramic xray), as some insurances won't cover xrays if you had them recently done.

Oh, and my new dentist (like Andrea's) said no more fruit juices - NOT EVEN DILUTED.

I found my new dentist via my dental insurance. Then called the one they suggested and laid it out up front and on the table with receptionist what my dental needs were. Plus in my situation (post TBI) communication style of the provider is a biggee for me, so I needed one that wouldn't talk tooooo fast.

I've been very happy with my new dentist - had her a year now.

Hugs and do keep us posted.

Amanda

SJS-Primary; Hashi's, Post surgical hypothyroidism, Hypoparathyroidism, Spondylolithesis, L&C Facet Arthropathy, Fibro, gluten intolerance, TBI, Radiculopathies, Neuralgias, Osteopenia, GERD, Asthma, Allergies. Sphincter Dyssynergia. OSA, Fasciitis, Cervical Spondylosis, Cancer, etc etc etc

warmwaters

  • Hero Member
  • *****
  • Posts: 1872
  • Just keep swimming - Dora
Re: Cavities, cavities, all in 6 mos.
« Reply #3 on: February 01, 2014, 10:21:10 AM »
Ditto - get a new dentist. If he knew what Sjogren's was, he wouldn't say what he said.

Only way to find out about the assessment is to go to another dentist. You legally have every right to your x-rays, so simply request a copy.

And when you call a possible new dentist, as if s/he has any experience working with Sjogrens.
Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers

Pisces24

  • Guest
Re: Cavities, cavities, all in 6 mos.
« Reply #4 on: February 01, 2014, 12:46:29 PM »
Prior to SJS I had great teeth too. My dentist for awhile didn't think I was taking care of my teeth at all. BUT he finally came to the realization that it WAS the Sjogrens, I think he actually read about it.

Odd thing the oral surgeon I have to see now because of my teeth knew about Sjogrens. He said I was one of the few patients he had where the teeth deterioration WAS because of a disease, not laziness.

Sorry you have to go thru that "stuff" with your dentist. You might check around and try to find one that understands about how disease affects the teeth no matter what a person does.
Good Luck!

ellieas

  • Full Member
  • ***
  • Posts: 154
Re: Cavities, cavities, all in 6 mos.
« Reply #5 on: February 01, 2014, 12:47:58 PM »
Hi Tinker, I had the same thing happen to me twice and the dentisit was very sympathetic about the SS. He said i wasn't my fault. I always had regular checkups. One time I had 9 cavities and needed them filled plus 2 crowns. Things were good for 6 years. No cavities. Now I have moved to a new State and my new dentist gave me the best exam ever.Very sweet. But, she said that I had so much decay, infection and bone loss  that she cannot save my upper teeth.  I only have 6 on the bottom with a bridge. She favored implants with dentures-which she would send me to have done at a specialist.
I found,through a referral by friend, a dentist who is a specialist and knows alot about SS.He quietly inferrred the same thing. Now he wants to speak to rheumy and onc because with low immunity,implants may not be an option. Oh and the meds I took for osteoporosis didn't help my jaw either!
Have to see him in 2 weeks for decision time.
Through all this garbage, though, I could not have asked for nicer and concerned people.  You deserve someone better than the last dentist for yourself.

Hugs,
Lesley
sjogrens dx'd 2010, non hodgkins Lymphoma(1999), fibromyalgia, age 65, keep trying Plaquenil, Zoloft, Forteo, ibuprofen, love being near my kids

ohiolady

  • Hero Member
  • *****
  • Posts: 2201
Re: Cavities, cavities, all in 6 mos.
« Reply #6 on: February 01, 2014, 01:17:20 PM »
Tinker,

I would consider Evoxac 3 timers daily.  No oral product replaces our own saliva which is stimulated by Evoxac.

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62

slccom

  • Guest
Re: Cavities, cavities, all in 6 mos.
« Reply #7 on: February 01, 2014, 01:51:28 PM »
Hi Tinker, I had the same thing happen to me twice and the dentisit was very sympathetic about the SS. He said i wasn't my fault. I always had regular checkups. One time I had 9 cavities and needed them filled plus 2 crowns. Things were good for 6 years. No cavities. Now I have moved to a new State and my new dentist gave me the best exam ever.Very sweet. But, she said that I had so much decay, infection and bone loss  that she cannot save my upper teeth.  I only have 6 on the bottom with a bridge. She favored implants with dentures-which she would send me to have done at a specialist.
I found,through a referral by friend, a dentist who is a specialist and knows alot about SS.He quietly inferrred the same thing. Now he wants to speak to rheumy and onc because with low immunity,implants may not be an option. Oh and the meds I took for osteoporosis didn't help my jaw either!
Have to see him in 2 weeks for decision time.
Through all this garbage, though, I could not have asked for nicer and concerned people.  You deserve someone better than the last dentist for yourself.

Hugs,
Lesley

You need to be extremely careful if you are on bisphosponates for osteoporosis. People have lost entire jaws from dental work. You need to find a dentist who is an expert on the topic BEFORE you have anything done.

I AM meaning to frighten you.

Sharon

ellieas

  • Full Member
  • ***
  • Posts: 154
Re: Cavities, cavities, all in 6 mos.
« Reply #8 on: February 01, 2014, 02:20:38 PM »
Hi Sharon-Thank you. I was not on Fosamax which is the worst.But, that is why I went to this dentist. He is a periodontist and a prothodontist. He has done many research papers and lectures all over the world. He took a CAT scan of my jaw and is consulting with my other doctors first. I am very lucky to have him here at University of Rochester. I stopped taking the meds in June.

Thanks for your help.
Lesley
sjogrens dx'd 2010, non hodgkins Lymphoma(1999), fibromyalgia, age 65, keep trying Plaquenil, Zoloft, Forteo, ibuprofen, love being near my kids

litliwlowa

  • Hero Member
  • *****
  • Posts: 1780
Re: Cavities, cavities, all in 6 mos.
« Reply #9 on: February 01, 2014, 02:27:53 PM »
Hi Tinker, I had the same thing happen to me twice and the dentisit was very sympathetic about the SS. He said i wasn't my fault. I always had regular checkups. One time I had 9 cavities and needed them filled plus 2 crowns. Things were good for 6 years. No cavities. Now I have moved to a new State and my new dentist gave me the best exam ever.Very sweet. But, she said that I had so much decay, infection and bone loss  that she cannot save my upper teeth.  I only have 6 on the bottom with a bridge. She favored implants with dentures-which she would send me to have done at a specialist.
I found,through a referral by friend, a dentist who is a specialist and knows alot about SS.He quietly inferrred the same thing. Now he wants to speak to rheumy and onc because with low immunity,implants may not be an option. Oh and the meds I took for osteoporosis didn't help my jaw either!
Have to see him in 2 weeks for decision time.
Through all this garbage, though, I could not have asked for nicer and concerned people.  You deserve someone better than the last dentist for yourself.

Hugs,
Lesley

You need to be extremely careful if you are on bisphosponates for osteoporosis. People have lost entire jaws from dental work. You need to find a dentist who is an expert on the topic BEFORE you have anything done.

I AM meaning to frighten you.

Sharon

Adding to what Sharon said, my dentist flat out told me if I EVER had treatments for osetoporosis again, I can count on no more extractions. It came up in discussion as I was wondering if I could try the pill form, as I can't take any of the alternatives (Forteo, Reclast, Prolia, etc).

Her explanation was the risk was too great of the extraction site not healing, resulting in a permanent open wound and gateway to future infections. Not good for me in my view as I am allergic to all but ONE antibiotic.

I've had osetoporosis dx'd since 2009.

Every dentist I have ever had expressed concern about the affect on the jaw of these osteoporosis treatments (dx'd 2006 with osetopenia and was on those biphosphonates then).

Oddly enough, not one of my MD's either knew about it or thought it important enough a consideration when rx'ing.

Amanda
SJS-Primary; Hashi's, Post surgical hypothyroidism, Hypoparathyroidism, Spondylolithesis, L&C Facet Arthropathy, Fibro, gluten intolerance, TBI, Radiculopathies, Neuralgias, Osteopenia, GERD, Asthma, Allergies. Sphincter Dyssynergia. OSA, Fasciitis, Cervical Spondylosis, Cancer, etc etc etc

ellieas

  • Full Member
  • ***
  • Posts: 154
Re: Cavities, cavities, all in 6 mos.
« Reply #10 on: February 01, 2014, 02:56:34 PM »
Hi Amanda-I did use Forteo with no problem.What would be the alternative if you took the pills and needed a tooth pulled?

Lesley
sjogrens dx'd 2010, non hodgkins Lymphoma(1999), fibromyalgia, age 65, keep trying Plaquenil, Zoloft, Forteo, ibuprofen, love being near my kids

slccom

  • Guest
Re: Cavities, cavities, all in 6 mos.
« Reply #11 on: February 01, 2014, 03:03:04 PM »
Leslie, I'm so glad you have an expert dentist. That makes me feel better.

Sharon

ellieas

  • Full Member
  • ***
  • Posts: 154
Re: Cavities, cavities, all in 6 mos.
« Reply #12 on: February 01, 2014, 03:16:13 PM »
Thank you Sharon-I am lucky to have him(doesn't hurt that he has a continental accent and is very cute).Although Ionce took Actonel, I was switched to Forteo. Forteo actually reverses the damage done by the other meds(biphos--)

Looking forward to seeing him on the 12th after he consults with other specialists. Well, not Exactly looking forward to the options. LOL

Hugs,
Lesley
sjogrens dx'd 2010, non hodgkins Lymphoma(1999), fibromyalgia, age 65, keep trying Plaquenil, Zoloft, Forteo, ibuprofen, love being near my kids

litliwlowa

  • Hero Member
  • *****
  • Posts: 1780
Re: Cavities, cavities, all in 6 mos.
« Reply #13 on: February 01, 2014, 04:36:17 PM »
Hi Amanda-I did use Forteo with no problem.What would be the alternative if you took the pills and needed a tooth pulled?

Lesley

There is no alternative for me except go to a less mindful dentist willing to extract in that circumstance and no way will I do that.

Mind you, my dentist is considering my ENTIRE medical picture in addition to dental picture. The risks for me of taking biphosphonates far outweigh the benefits. I have a greater risk of another extraction than another broken bone. Just two years ago, I still had three antibiotic options left. 2012 developed allergy to levaquin and arithromycin. Only one left now is clindamycin.

Dental infections are high risk anyway and I have a history of them turning ugly very fast. I have what's left of a permanent bridge that dentist is watching very closely. Half of it already went south (thank you Sjogrens) which resulted in 2 extractions plus a bridge resection. The remaining permanent bridge is showing signs of being problematic recent months.

My osteoporosis at this point is being managed by my endo via regularly checking D, calcium and PTH levels and adjusting supplementation dose accordingly.

I did discuss with my endo going back on the biphosphonates and he agrees with dentist. Keep in mind that my medical situation is extraordinarily complex, so my sense is my dentist's advice was specific to me.
SJS-Primary; Hashi's, Post surgical hypothyroidism, Hypoparathyroidism, Spondylolithesis, L&C Facet Arthropathy, Fibro, gluten intolerance, TBI, Radiculopathies, Neuralgias, Osteopenia, GERD, Asthma, Allergies. Sphincter Dyssynergia. OSA, Fasciitis, Cervical Spondylosis, Cancer, etc etc etc

Tinker

  • Hero Member
  • *****
  • Posts: 763
Re: Cavities, cavities, all in 6 mos.
« Reply #14 on: February 01, 2014, 09:23:12 PM »
Thanks everyone for your insightful replies!

I always thought this would never happen to me.  I've been so vigilant about going to the dentist every 6 mos.  And I have never had 7 cavities in 6 mos. 

This dentist is a new one cause I had to have 4 front teeth crowns (this was because of discoloration of a silver filling I had between the front two teeth in my 20"s.  Then as the years passed I got some small cavities on each tooth next to the front teeth.  The crowns didn't turn out right and I asked my dentist to fix them, which he did.  But I wasn't comfortable anymore going to him.  I wrote about this here so some of you might remember this sob story.   lol

My new front teeth or ok now but don't look like the originals.

What was so helpful here is hearing that::
1) some of you are on NO sugar
2) Fossamax is not for me.  I was on it but stopped about a yr ago.
3) Cavities can happen rapidly. 

And that's where I am.  I have lots of crowns and I don't see what good they are if that ridge on the inside just collects debris and is inherently a bad situation.  That's where all the new cavities are.

I'll be looking for a new dentist.  I already knew I wasn't going back so now I want a dentist who isn't asking me to pay for the tv at my chair, the ultrasound tooth cleaning device, and a fancy office.  Some dentists are just too expensive for me, and I have insurance.

This dentist did put a flouride varnish on my teeth 6 mos ago (insur. won't pay for it) and again this time.  Wonder how many cavities I would have had if no varnish??

I bought flouride rinse and have been brushing and flossing like crazy.  No sticky stuff.  Bought sugarless hard candy to help get the saliva flowing but it has no taste and I'd rather do without.

I'm going to harden up my sensitive teeth and get a new dentist in the next month. 

Thanks everyone.  I am sad that so many of you have suffered with these serious dental issues.  I hope it will not be my fate as well.  I'll be getting the saliva meds too.                              Tinker