Author Topic: New DSM-5 criteria for "somatization disorders" could label us Mentally Ill  (Read 8901 times)

crmak

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I thought we were supposed to be getting farther away from the Dark Ages, not closer.  >:(

THE BRIT

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  I have also had the fun of neuros pushing it back to psych.  The trouble is I do have a history of depression and bipolar for over 30 years so it is really easy for them to go that route.  If you feel seeing someone might help then try, but I have found that they see one little psych drug on your med list and it is an instant that is the reason why.  That is why I like my little rheumy so much because he accepts that this is a part of me, but that I have AI as well. When I was seeing an APRN for my psych meds they worked together and he thought she was great. What is it with neuros?  Why are they the worst, I know they go to med school a longer time than others so I guess they think they know everything.  It is so frustrating and at times you just want to bounce their little heads on the wall until they see the light.

gold55

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I had a neuro surgeon who was supposed to be assessing my back problems write in a letter that I didn't have SJS and my back was that of a 58 year old.....he said I was relating all my nerve and joint/muscle pains to SJS and (without seeing my + bloodwork for SJS) stated that this was all most likely to somatization issues.  Ha!  then why are my doctors checking all my bloodwork every six months for organ problems and why do they have me on meloxicam and why did they send me for a nerve conduction study??  Actually, a lot of the pain is coming from serious back issues and some of my meds are keeping my back in check, according to my rheumies.  The neurosurgeon basically said there was nothing in my back worth operating on and that other 58 year olds don't have....degenerative disc disease, two herniated discs resting on the nerve roots of my legs and severe spinal stenosis.  Ha!  That's a walk in the park!!!  I don't plan to ever see that dope in the future unless I end up with something very serious that he could have prevented by attending to my back issues.....I'll be happy to see him in court!!!! 
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

irish

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I was treated like a "mental case" for close to 40 years. At one big clinic in my state I actually had some really heated conversations with doctors. I would tell them that "this is not psychiatric, it is autoimmune" and they can placated and documented all this psychobabble about me.

When I got to my immunologist he looked at my previous documentation and just shook his head and said " I can't believe they had the nerve to even document this". There are a lot of really weird people out in the world who are not very stable, and a lot of them are doctors.

When I got all my diagnoses I wrote an 8 page letter to this clinic and filled them in on all the stuff that they had misses. They misses my sjogrens, my myasthenia and my low t-cells cause they had felt I was nutz. Years earlier I had 2 episodes of severe back pain between my shoulder blades after eating pork. I just rolled in bed several hours in agony and felt that it was gallbladder. The doc told me I needed a referral to psychiatrist. I told him, "no thanks" I see one now for depression and this is not depression.

Needless to say, I stay away from that clinic and it makes both me and them happy. Irish

MaryBee7

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"Ma'am, you're depressed."   

It's depressing, all right.  Being in your office depresses me.  I really enjoy losing hours of life sitting in your waiting area, filling out papers that you'll never read...and paying specialist fees that I cannot afford. 


LoopyFlowers

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I am really upset I have Primary Sjogrens with RA and all the positive blood results for antibodies Ra, Lo , High ESR, ANA positive. positive biopsy of saliva glands, low lymphocytes, Severe Vit D deficiency and iron deficiency and I am depressed due to crippling fatigue and joint stiffness and pains. I asked to see a psychaitrsit who has labelled me with Somatisation disorder due to non specific aches and pains. He knew nothing about Sjogrens and could not think outside the box. What can I do to get this challenged I feel more depressed thsn ever.
loopy flowers

odie

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I am really upset I have Primary Sjogrens with RA and all the positive blood results for antibodies Ra, Lo , High ESR, ANA positive. positive biopsy of saliva glands, low lymphocytes, Severe Vit D deficiency and iron deficiency and I am depressed due to crippling fatigue and joint stiffness and pains. I asked to see a psychaitrsit who has labelled me with Somatisation disorder due to non specific aches and pains. He knew nothing about Sjogrens and could not think outside the box. What can I do to get this challenged I feel more depressed thsn ever.
loopy flowers

Did the psychiatrist prescribe anything?  If all you got out of the visit is a label and you don't agree with it write a letter to the shrink detailing why you went to see him and demand that it be included in his report as part of your medical record.  And then seek another shrink who will listen and help you.  It wouldn't hurt to provide him with some literature about Sjogren's to educate him.

Linda196

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If you have RA, you have secondary Sjogren's, not primary; and if you have lab documentation of abnormalities, you have a physiological diagnosis.

It may be time for a new rheumy, and probably a new therapist.
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

anabanana

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I dont know...
My opinion is, stay away from metal health...
You may want or need to talk to someones, and think that these people will help you...
But bottom line is, you never know how they will perceive you, just because you cry and shake from stress, related to your health problems or the lack of answers about your health...
I feel like these people are trained to look for mental disease, and seems that these days, everything can be twisted into a mental disease...
Even doctors are trying to be psychiatrists, and worst, neurologists...trying to tell you, that its anxiety, somatization, BS,...when all you are experienceing is the stress of the physical illness, the unknown of what your disease is...

That has been my experience, and even when docs suggest going to mental health to help cope, I am suspicious of it....the only way I can begin to cope is when someone tells me what the heck my disease is...then, I can find a support group, plan my life better, hopefully get on some meds...
All that mental health therapists do is push drugs (my experience) immediately, and give advice that anyone could give you...which doesnt help much...trying to focus and be busy with other stuff, well...that only does very little...

When you dont have answers, that anxiety, stress, despair is always there...my 2 cents...
It is easy for people who have no idea what its like to talk about it...to sit in their cushy chair, go home, and live their extremely well paid life...
Focal lymphocytic sialadenitis less than 1 focus, Dry everything, Neuro symptoms, Muscle weakness, Fasciclations, High inflammatory CRP,Tremor,Balance issues,Dizziness.
Take vit-D3, fish omegas, calcium, magnesium w/B6, B12, Restasis, Systane Drops, Seronegative

odie

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the only way I can begin to cope is when someone tells me what the heck my disease is...then, I can find a support group, plan my life better, hopefully get on some meds...
All that mental health therapists do is push drugs (my experience) immediately, and give advice that anyone could give you...which doesnt help much...trying to focus and be busy with other stuff, well...that only does very little...

When you dont have answers, that anxiety, stress, despair is always there...my 2 cents...
It is easy for people who have no idea what its like to talk about it...to sit in their cushy chair, go home, and live their extremely well paid life...

SPOT ON!!!  You summed it up supremely. 

daisymae

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This is a very difficult issue and it seems that for every medical professional, there always are bad apples that we need to recognize and then find the good ones.

I am bothered by the stigma of a "mental health issue".  It is not just an "issue", it is equally a disease along with any of our physical diseases and symptoms.  Some of the reaction is a continuation of this stigma.  We have to learn that we need to treat our minds and mental health as much as we need to treat our bodies.  For example, depression is so common amongst those with a chronic illness, and SJs itself has a direct link to depression with CNS involvement.

Professionals who want to classify everything as a Somatoform Disorder, however, are biased and ignorant.  I truly believe that very few people are capable of making themselves this sick, nor would people want to make themselves sick.  It takes a very unusual mental health disease to make someone hurt oneself so dramatically.  To get to the bottom of this, it should take many hours of professional sessions to determine if there is a Somataform Disorder rather than physical disease.

Have we so little trust in people's knowledge of their own bodies and minds that we cave to these professionals who, in minutes, come up with far-fetched mental health diagnoses that could not be substantiated on proper evaluation?

I am a strong proponent of counselling and treatment for real mental health diseases.  Stigma be d..med! And I'm a believer in persistent self-advocacy.  Fire the bad apples; search for new and better health care providers; get second and third opinions; ask for copies of your medical records (reports, lab results, etc - they're your files); research and become informed; take an advocate with you to appointments - a friend who is in the health care field, or just someone who won't be bullied; be firm but polite as I believe becoming defensive and reactionary will only be met in kind.  If you have been seriously wronged and this has cost you financially, and if you have the energy, write letters to the professional's governing boards to outline the mistreatment and costs.  You may not get anything from it but it does get read by the professionals.

I will get off my soap box now...  :)