Author Topic: Mystery Diagnosis - Sjogrens Youtube show  (Read 4630 times)

finallyadx

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Mystery Diagnosis - Sjogrens Youtube show
« on: May 13, 2013, 08:31:57 AM »
http://www.youtube.com/watch?v=5bahu5kZY-g&feature=share&list=UU4Jo7KhmZ1V7-kQDu43BZ9Q

An amazing story about a woman named Linda who struggles with multiple symptoms through the years and struggles to get a diagnosis...Interesting stuff.

Primary ss dx 2013, plaquenil, vitamin d, iron supplements, vitamin b12, d-mannose for chronic UTI's, magnesium for heart palpatations and Zinc

Nancy60

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Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #1 on: May 13, 2013, 04:20:34 PM »
That was a really good description of Sjogrens and how hard it can be th diagnose, how it effects patients. Thanks for sharing, I put it on my Facebook page since its similar to how it effects me. Maybe some of my family or friends will kind of get the idea.

Nancy

Cassi307

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Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #2 on: May 13, 2013, 04:51:04 PM »
Great video. The perfect educational piece to help educate those around us so they stop thinking we are crazy.
Thanks so much.
Sjogren's, seronegative RA,  ckd, hyperparathyroidism, asthma,  osteoporosis, tremors, macular degeneration. Meds:  cardizem cd, low dose Prednisone, Rituxan, Preservision, calcium with d

Velcro

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Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #3 on: May 31, 2013, 09:15:52 AM »
That is a great video!  Thank you.

MirkeshCat

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Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #4 on: July 25, 2013, 11:34:35 AM »
Very great video! I can feel with that woman!!!!
male, 37, married with children :)
Paramedic
SjS, Graves, PTSD, chronic EBV
Thyroxine, Plaquenil, Betablockers

powderpuff

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Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #5 on: July 25, 2013, 09:44:02 PM »
I've watched this episode several times prior to my diagnosis. I can relate to her now.

Thanks for sharing.

ellenkerr

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Re: Mystery Diagnosis - Sjogrens Youtube show
« Reply #6 on: July 25, 2013, 11:39:35 PM »
Great video that explains sjs and the impact to your life.  I definately want my family to see it so maybe they could understand me a little better.  Thanks for sharing this with us.