Im kinda in the same boat..have tried all other therapies, and could not tolerate the side effects. I havent had rituxan in almost 3 years, and decided to give it another whirl. Im going to try having some saline injections every few days after in the hospital to help me with my hyrdration. My POTS really does a number with this. Ive been on 20mg of steriods for the last 3 years, and its taking its toll, not to mention, doesnt seem to work as good either. Guessing I need more of them, which I wont do.
Seems your doc might be able to write the order up in a different way to get the benelysta approved? not sure if its just approved
for lupus or maybe RA too? sometimes if they put a diagnoses of RA/Sjogrens/autoimmune etc?
More than likely, most of us have the overlapp of autoimmune diseases anyways?