Author Topic: New DSM-5 criteria for "somatization disorders" could label us Mentally Ill  (Read 8700 times)

keithmarty

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Re: New DSM-5 criteria for "somatization disorders" could label us Mentally Ill
« Reply #15 on: December 21, 2012, 08:54:38 PM »
Apparently, there will be a whole lot of changes with the DSM-V. In the "Autism World" (my son has Autism), everyone is up-in-arms because the changing criteria will incorporate two similar dx into the 299.0 Autism Spectrum Disorder (ASD).  Many fear that they will no longer fit any criteria and will lose their dx, which means losing services, etc. Specifically, Asperger's Syndrome (AS) and PDD-NOS are separate dx in DSM-IV, but do not exist in DSM-V as they supposedly fit under ASD.

I haven't read the article in this post yet, but one of the replies mentioned the difference in "medical illness" and "mental illness". That distinction seems clear enough to me.  Does the article say that SJS will be included in the DSM-V?  Or is it a similar dx that one might "fall" into instead of SJS?  How would qualifying for disability with the SSA be affected either way (easier or more difficult)?

In my case, depression, anxiety, and migraines preceded my noticing symptoms of SJS. Had they not, I can certainly see how living with SJS could have brought them on!

MaryBee7

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Re: New DSM-5 criteria for "somatization disorders" could label us Mentally Ill
« Reply #16 on: December 22, 2012, 02:34:21 PM »
Apparently, there will be a whole lot of changes with the DSM-V. In the "Autism World" (my son has Autism), everyone is up-in-arms because the changing criteria will incorporate two similar dx into the 299.0 Autism Spectrum Disorder (ASD).  Many fear that they will no longer fit any criteria and will lose their dx, which means losing services, etc. Specifically, Asperger's Syndrome (AS) and PDD-NOS are separate dx in DSM-IV, but do not exist in DSM-V as they supposedly fit under ASD.

I haven't read the article in this post yet, but one of the replies mentioned the difference in "medical illness" and "mental illness". That distinction seems clear enough to me.  Does the article say that SJS will be included in the DSM-V?  Or is it a similar dx that one might "fall" into instead of SJS?  How would qualifying for disability with the SSA be affected either way (easier or more difficult)?

In my case, depression, anxiety, and migraines preceded my noticing symptoms of SJS. Had they not, I can certainly see how living with SJS could have brought them on!

God Bless you, keithmarty for that last paragraph!  About the only thing I have going for me right now is a PCP who said to me on Friday "I know you've had bouts of depression in your life, but I do believe it is worse now due to dealing with this (SjS) long term, I don't see your symptoms as caused by primary depression."   It makes all the difference in the world to be understood and believed in. 

Chrisb

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Re: New DSM-5 criteria for "somatization disorders" could label us Mentally Ill
« Reply #17 on: December 22, 2012, 04:46:54 PM »
My gp said I was anorexic and that's why I was so thin. She also said I was imagining that my hair was falling out and my eyes and mouth were dry. She said I had a mental disorder and I was chemically imbalanced. Nich eh?

slccom

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Re: New DSM-5 criteria for "somatization disorders" could label us Mentally Ill
« Reply #18 on: December 22, 2012, 05:23:55 PM »
My gp said I was anorexic and that's why I was so thin. She also said I was imagining that my hair was falling out and my eyes and mouth were dry. She said I had a mental disorder and I was chemically imbalanced. Nich eh?

Your GP sounds like the one who is mentally disordered!
Sharon

anabanana

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I saw this post and can relate.
The first neuro, from the first appointment, suggested a prescription for ssris and shrink into the picture. Neuro kept pressing me on it every appointment afterwards and I refused. Then one time, when I was crying in response to being scared of my circumstance feeling like the dr didn't want to press further testing, the neuro said, Would you like me to write you a prescription to feel better.
I stopped cold and told Neuro that normal people cry when they are terrified when they are experiencing symptoms of a disease, a normal response, not something a drug will fix, only answers. Never went back...Then the second Neuro I saw was a big joke neuromuscular specialist, who sided with the last Neuro, who was a colleague in the same group so he wouldn't have to do much work. He was much more interested in my social history, what I did for a living to evaluate in his mind how stupid or smart I was, my private life, and was trying to imply something because I didn't have children. Must be that female hysteria, I thought. He brought up somatization/conversion BS, and I almost went to a psych so dr would get off my back, but then I changed my mind because it was a lie.
Never went back to that one, but went to his senior colleague. I got a better response, but this neuro kept pushing counseling, actually threatened me that no more tests would be done until I saw someone in psych. So I went for a few sessions and vented how disgusted I was with these neuros, never returned back. Then our neuro relationship was terminated, in not so many words other than, we are done he determined and abandoned me. Just sickening, I hope these doctors suffer like what we are going through...so that's my story. I will never go back to that group again, they call themselves specialists, with no compassion at all. The next neuro that suggests this I will decline immediately and tell them to focus on my physical illness, not some imaginary one...
« Last Edit: January 19, 2013, 08:40:46 AM by anabanana »
Focal lymphocytic sialadenitis less than 1 focus, Dry everything, Neuro symptoms, Muscle weakness, Fasciclations, High inflammatory CRP,Tremor,Balance issues,Dizziness.
Take vit-D3, fish omegas, calcium, magnesium w/B6, B12, Restasis, Systane Drops, Seronegative

irish

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The lawyers are waiting in the wings folks. They will be watching this like crazy as there are going to be some lawsuits without a doubt. We may find out just what the medical community is made of.

I, for one, think that there are also some very upset psychiatrists out there right now. Nothing worse than the government telling a doctor how to practice medicine and then opening them up to legal action if they don't comply. This is going to get very, very interesting. Irish

slccom

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Really bad news, folks. It is in the DSM-V.  Despite all the comments against it.
Sharon

Linda196

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All we can hope is that as much attention and compliance is paid to these guidelines as to those for the diagnosis of Sjogren's, because no two doctors appear to agree on which of the criteria for SjS mean anything!
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https://kiwiirc.com/client/irc.dal.net/#SjogrensWorld

MaryBee7

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Ana, I've posted on this issue already, but to update...will say that there are doctors in my town that I will never recommend to anyone due to how they responded to me, early on, with this illness.  One PCP told me that "until you get hold of this depression you will not be healthy"   and offered no testing, no listening to my history, and am assuming didn't look at any of the Too Long Questionnaire I'd filled out in her waiting room.  Each visit = money out of our pockets and too often, disrespectful treatment.

First rheumy experience was prime example:  my problems are post menopausal and depression related.  He said very early on that being ss-b positive I should have no more symptoms than dry eyes/mouth and maybe some dental issues.  I'm serious.  Quote "Most people with Sjogren's have only dry eyes and mouth but I guess you're different, huh?"   and it was not an acknowledgement, it was a dismissive comment.  When I gave him history on GI tract problems, skin rashes and hives, and flares of weight loss he really wouldn't discuss them.  Tell me what all that is about...?  It's about the patient in the next room, and a goal of seeing a certain number of patients per day.  I was sure if my blood work was positive, it would be "a breeze" finally to find the right kind of medical support and treatment.

I saw a therapist for a few months recently but have stopped due to money and because regardless of what SSDI wants to "see", I am not first & foremost depressed ... and medical bills precede counseling ones for me.   

I do find the research interesting on Sjogren's induced CNS  depression & mood disorders, would seem to me that this would be something in our favor.  Luckily I have a PCP who is listing depression as a by product of chronic medical illness. 

SjoDry

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I see a recurring pattern that is bound to get worst with this new label.

Out of curiosity...how many of you have been told to seek mental health treatment/counseling for your issues?

I was, by the last amazing (I was told) diagnostician that I saw. He never examined me, diagnosed Fibro from across the room and
then told me that sometimes we just "have the perception" of dryness. I might wish to consider seeing a counselor.  Whatever.

SjoDry
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Female 55 y/o; SJS Primary; CVID; Autonomic Neuropathy: Chronic Digestive/G.I. issues; Leukopenia;Tachycardia; Bronchiectasis; High Blood Pres; R.A.;Chronic Pain; Sub~Q IVIG infusions~Hizentra; Plaquenil; Restasis; Gapapentin; Breathing/nebulizer meds; Pain meds;

anabanana

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So everyone, if we ever come into contact with a doctor who brings up depression/ mental illness, what are some good thing we can say to them to shake them up, it would be useful to be prepared?

Unfortunately, I am now on constant psych guard for doctors bringing this up, because it takes focus away from the real problem. Which makes me even more stressed when going to see a new doctor...

I am at a point where, even if my illness and lack of diagnosis is now causing me anxiety and feeling depressed that my life has stopped, I will never admit it from fear that it will be twisted.

Any thoughts on any of the things I mentioned above?
Focal lymphocytic sialadenitis less than 1 focus, Dry everything, Neuro symptoms, Muscle weakness, Fasciclations, High inflammatory CRP,Tremor,Balance issues,Dizziness.
Take vit-D3, fish omegas, calcium, magnesium w/B6, B12, Restasis, Systane Drops, Seronegative

Joe S.

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Ask the doctor to see his pych certification or where did he get his degree in psychology. Suggest that it is time for him to see a shrink.

I like to antagonize pompous blowhards that think they are gods or god's gifts.
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SjoDry

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I think statistics are good. I might reference the fact that it takes the average patient
7 years or more to become diagnosed. Part of the reason is that the physician focus is put on one or two symptoms such as depression,
instead of looking at the patient as a whole, thus, delaying a diagnosis and proper treatment. If there is a 'mis-diagnosed' statistic available,
that would be great. Unfortunately, the doctors who shoot from the hip & don't take time to look at everything, probably won't care about a statistic either. :-\
Sjodry
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Female 55 y/o; SJS Primary; CVID; Autonomic Neuropathy: Chronic Digestive/G.I. issues; Leukopenia;Tachycardia; Bronchiectasis; High Blood Pres; R.A.;Chronic Pain; Sub~Q IVIG infusions~Hizentra; Plaquenil; Restasis; Gapapentin; Breathing/nebulizer meds; Pain meds;

anabanana

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Thank you Joe. Sometimes I am afraid to really say whats on my mind because I'm scared that they will not help me after that...but then I am reminded that if they were really doing their job, they would stop trying to be a psych and really use their brain...I think it's disgusting how truly sick people are treated, because pulling the psych card takes the focus away from the drs inability or laziness and puts blame on the patient for feeling what they are feeling...
« Last Edit: January 21, 2013, 11:05:28 AM by anabanana »
Focal lymphocytic sialadenitis less than 1 focus, Dry everything, Neuro symptoms, Muscle weakness, Fasciclations, High inflammatory CRP,Tremor,Balance issues,Dizziness.
Take vit-D3, fish omegas, calcium, magnesium w/B6, B12, Restasis, Systane Drops, Seronegative

anabanana

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Sjodry,
Exactly, because they are not interested in helping us, its just a bs excuse to get us out of their office after a pricy consult, so it won't matter what we say, but we can put them in their place anyway. If we know that it will be the last time we see a bs doctor, we should just let it rip...say what's on our mind about their tactics...at least that will be somewhat therapeutic.
Focal lymphocytic sialadenitis less than 1 focus, Dry everything, Neuro symptoms, Muscle weakness, Fasciclations, High inflammatory CRP,Tremor,Balance issues,Dizziness.
Take vit-D3, fish omegas, calcium, magnesium w/B6, B12, Restasis, Systane Drops, Seronegative