Author Topic: Embarrasing and difficult situation  (Read 7389 times)

gurs

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Re: Embarrasing and difficult situation
« Reply #30 on: December 20, 2012, 03:24:49 AM »
Im kinda going through something similar..I had my abdominal CT scan a few months ago, which showed I had some inflammatory colitis, thickening of the large intestine and rectal area...a small kidney stone. We'll, it then kinda explained some of my tummy issues. I had
a colonscopy a few weeks later, and the the doc said I was fine, he saw nothing but a touch of inflammation? what the heck?
We also agreed that they cannt see what is really going on on the outside of the colon etc...they only look at the insides? sooooo,
now my gyno thinks I might have some adhesions/scar tissue/endo from my hyster 7 years ago and only way to tell is with lapascopic surgery? wish they had better testing?

Lucy, at least you can get to bottom of this. If everything checks out, then it might be a pelvic floor issue/muscular/sjogrens neuro issue?
Hope you can figure it out sweetie!!!

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

eyeamdry

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Re: Embarrasing and difficult situation
« Reply #31 on: December 20, 2012, 11:02:38 PM »
I had pool therapy today for strengthening my legs and knees.  Imagine my fright about spending an hour in a small pool and the possibility of me having *yes* an accident.  Last night I took a gas x pill and a couple of tbsp of Pepto as I didn't have any other kind of stuff to take.  I ate lightly and my pool therapy was at 2 pm and it went well.  I thought I'd be sore after, but I didn't seem to be.  Tired though.  Not too tired to go to a casino though!!  Hubby was on board so we stopped at home for a few changes of attire.  Yes, I put on one of those paper "things" just in case. 

I ate a small side of mac and cheese for supper and we played slots and had a good time.  I even won close to $400--and that was spending only $20.  Hubby won a bit too and he doesn't really play much.  I have my next pool therapy on Monday and I assume I'll be doing the same.  I've done these same exercised before when I went to regular pool classes.  I have hopes this will strengthen my legs so we can go to Fla for a few weeks this winter.  Lucy

ashewoman

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Re: Embarrasing and difficult situation
« Reply #32 on: December 20, 2012, 11:33:26 PM »
Never be embarrassed to talk to us about these things.  My doc says IBS is very common in Sjogren patients.  And I've had similar problems.  While the going unexpectedly is embarrassing, the not going for a while is so painful when you already hurt all over. I heard a joke one time I have to share here.

The parts of the body were having a discussion one day about who was the boss. The brain thought he should be boss because he did all the deep thinking.  The heart thought he should be the boss because he did all the important feeling and pumped the blood thru out the rest of the body which in his opinion was more important.  The stomach growled out that without his contribution the rest of the body would starve.  The mouth claimed the stomach wasn't doing that job alone.  The intestines agreed.  The arms said "well we hand the food to you" and the feet said "how long do you think it would take you to get to the fridge without us?"  Finally the butt hole squeaked, "I'd like to be considered for the boss of this body." All the other body parts laughed so hard they hurt his feelings.  So the butt hole shut up for 3 days straight.  At the end of that three days, the brain was fuzzy, the stomach was in agony, the mouth was gasping for air, the heart was pounding, the hands were shaking and the feet were stumbling.  "You win! You're the boss!" they said. So the butt hole relaxed his hold on them and everyone was okay again.

HA HA!  GG

fordhammsw

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Re: Embarrasing and difficult situation
« Reply #33 on: December 21, 2012, 07:50:53 AM »
I'm late in the game to this post, but first, of course, get to your doctor right away - but my experience has been that anything I have put in  mouth for dryness - oramoist, biotene gel or spray etc., causes me severe diarrhea, no matter how little I use.  I may be an unusual case, but you might want to avoid this stuff and see if your symptoms get better.  You have my profoundest sympathy; I've been where you are.

prunella

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Re: Embarrasing and difficult situation
« Reply #34 on: December 21, 2012, 10:29:34 AM »
ROFL.
Ashewoman, thank you!!
Age 61; Blood type 0-; Sjogren's Dx 2005, sero-negative; plaquenil, 200-400mg/day; lunesta; vivelle dot; omega3, 4gm/day; CoQ10;  vit D3. Wheat free; dairy free. Homeopathy and acupuncture help enormously.

Duchess

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Re: Embarrasing and difficult situation
« Reply #35 on: December 21, 2012, 07:50:15 PM »
I like that.It is so funny.

Thanks!

Duchess
58 y/o, Sjogren's, Lupus, Raynaud's, Mitral Valve Repair, Asthma, Myofascial Pain. Plaquenil, Inhalers, Ibuprofen,Exovac, Vitamin D, Vitamin B-12, Omega 3, Eye Drops, Quinipril, Massage therapy.

ashewoman

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Re: Embarrasing and difficult situation
« Reply #36 on: December 22, 2012, 02:04:46 PM »
Duchess and prunella-- laughter will always be the best medicine.... except never ever laugh at your hiney hole.  They don't take jokes well.  LOL  Very very serious business going on south of the border. ;)  GG

gold55

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Re: Embarrasing and difficult situation
« Reply #37 on: December 22, 2012, 07:45:52 PM »
A girl I work with had horrible gastro problems because she was chewing a lot of sugar free gum.
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

MaryBee7

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Re: Embarrasing and difficult situation
« Reply #38 on: December 23, 2012, 03:53:17 PM »
the sorbitol and other sweeteners in gums give me crampy feelings.  I got super sick once eating "diet cookies"  ha, thinking wow these are really good...until they hit my gut...Sorbitol!    I'm also doing the Race To The John thing...then next morning it's constipation.  Smooth running bowel my entire life.  I'm sure my ex rheumy would blame that on sleep apnea too.    ;D

eyeamdry

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Re: Embarrasing and difficult situation
« Reply #39 on: December 23, 2012, 09:27:02 PM »
I'm taking one Imodium pill at night per my dr.  His suggestion was very simple--like duh, I paid all this $$ to have you tell me what I'd do anyhow?  I am trying to gauge going away with my meals and when I think I might need to be near a b.room.

I'm also eating small meals several times a day hoping to avoid a full stomach.  What can I do, but just wait and see if any of this helps.  I am doing PT twice a week in a pool.  Let's hope I don't have an accident while in there.  Fortunately, the pool is a small "endless pool" and it's right close to the b.room.  I go tomorrow to PT and I almost forgot about it being Christmas Eve and all. 

EllaBlue

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Re: Embarrasing and difficult situation
« Reply #40 on: December 24, 2012, 02:46:29 PM »
Hi eyeamdry...I have not had time to read all of the replies, but this happened to my girlfriend and it turned out to be a bad kind of colitis. She found out through a colonoscopy.
Please do get checked, AND if you already have and I missed it, I am sorry. I will try to read through the replies after the holiday.
MY BEST TO YOU
Ella