Author Topic: Women issues  (Read 826 times)


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Women issues
« on: December 12, 2012, 06:09:12 PM »
I am not sure about how i feel about this. I had the depo shot 5 months ago and have had my period ever since. Also since receiving the shot I have had horrible flare ups every week-2 weeks. So I called the gyne and they said they were very concerned about this and I had to have bloodwork, ultrasound, and exam. Turns out bloodwork looks great and ultrasound and exam not so much. I have polycystic ovary syndrome. Dr said it was one of the worst she has ever seen. She said my symptoms don't match up with PCOS because usually it causes missed periods. Anyway long story short, I have to take hormones to help manage my period and PCOS. I am not happy about the hormones but the Dr said it was the only way to help both. She did say though if after 4 days of birth control if i had a horrible flare from it then I will stop taking it and try a different form that doesn't have hormones but most likely won't help with either problem.
Oh and I was told I probably would not ever be able to get pregnant due to how severe the PCOS is. That kind of hurt but i really wasn't planning of having children of my own. I would rather adopt. I don't want my children to have to go through the pain I have, so it would be best if I just didn't have any myself. I am just so worried about taking hormones. I'm in a flare right now that doesn't seem to ever end. Not sure how much worse this pain can get. Hopefully I have no issues with the new med.

Sleepy In Seattle

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Re: Women issues
« Reply #1 on: December 13, 2012, 08:04:16 AM »
I wonder if it would help to see an Endocrinologist (I think those are the specialists who deal with hormones, but I am not sure...), or an OB/GYN who specializes in hormonal issues? The problem is, this really crosses between Rheumatology (with the flares) and the hormone issue.

For me, hormones are a HUGE issue with the Lupus and Sjs....and I cannot take any kind of hormones as therapy because I also have APS, and it would greatly increase the chances of a stroke. I am pretty sure I have ovarian cysts (I have lots of symptoms and my mom had to have hers removed around my age because of cysts) but I have not really looked into it - too much other medical stuff going on. I know I should do it.

But YES - hormones (natural or prescribed) can ABSOLUTELY affect disease activity BIG-TIME.

I am sorry you're having to deal with all this....sometimes being female is a real pain in the rump!
Sjogren's, Lupus, Raynaud's, APS
Fatigue, Brain Fog, Autoimmune Hearing Loss, joint/muscle pain, dry mouth, clots in retina, etc
GF, "semi-Paleo" diet, Supplements, Plaquenil 400mg/day, Aspirin 325mg/day (for APS), Methotrexate 7mg/2x per week, Prednisone 3.5mg/day


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Re: Women issues
« Reply #2 on: December 13, 2012, 08:15:37 AM »
I am very sorry to about your pain. I hope that things get better for you. I am just curious as I do not know much about SJS yet, my daughter is only 10 and hasn't yet had her menses. Will that effect her flare ups?


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Re: Women issues
« Reply #3 on: December 13, 2012, 01:03:25 PM »

I'm sorry you are suffering so much. I had a similar bleeding problem when I took the mini-pill to try to reduce my bleeding! Yes, wierd I know.

However, following my total hysterectomy 7 years ago, I've taken oestrogen supplements for 6 years, and I've found the oestrogen definitely helps my joint pain. I know we are all different, but that is how it's been for me.

I hope you get some relief soon.