I saw my neurologist today as I'm in the middle of a bunch of tests/doctor appts etc. I am trying to find out why I cannot walk like a normal person.. I also have problems breathing with just a little exertion and the two seem to be connected. I will find out more in the near future, I hope as this has been bugging me especially since our trip in Sept to Laughlin, NV.
It has gotten so that I have my husband drop me off at the nearest entrance to where I am going in the hospital or mall and have him park the car and meet me inside. I'm using a cane and have been using it off and on for about a year. I had my last knee replacement one year ago and it seems that I have gone down hill since. The implant and surgery was a success and I healed well and quickly. I do have numbness from the surgery, but I expected that.
Today, I had doppler (ultrasound?) done on my legs. They are checking for bloodflow in my legs. The tech cannot diagnose, but he did say "he didn't see any obvious problems." Then I went on to have EMG's on my legs. A tech did the first part which was to put in a needle and then give zaps of current which keeps getting stronger. The second part of the test was the dr himself (neurologist) putting needles into my legs and reading the screen for what he was looking for. I didn't question him while he was working on me so he could concentrate. At the end, I asked him what he knows so far. He said I had to have an appt so he has time to put everything together. He did say he thought it was Sjogrens causing my problems. When he put in needles (one at a time @ 10 each leg)I could not feel the actual puncture/pain of the needle. Only in one or two places did I feel the pain of the needle. So far, I know my leg muscles are strong and he agrees. I believe I am having creeping numbness in my lower extremeties and it's affecting my ability to walk.
It is very scary thinking of this getting worse and I'm already having a hard time walking any where. I can't go any place by myself as I'm afraid I can't get back to the car. I can drive ok, but just can't go. :-)
Has anyone on here become lame from Sjogrens? I mean more than a painful joint or joints. I have themj, but I think that my body is having trouble "reading" what it's supposed to do. Maybe nerves not getting the message to the muscles? I have an appt with him soon. I wanted to know if anyone else has been troubled by this. "Again, I don't mean sore muscles or joints, but actual problems walking. Thanks. Lucy