Thanks for the responses. My apologies for the delayed reply... Is there a way I can get notified when someone replies? This is pretty new to me...LOL!
Everyone is is so kind and I'm so grateful for that. Believe it or not when I was initially diagnosed, I read many posts and was able to obtain great comfort from them.
Gardenlover-thank you very much for the information. The scratches appear from no where. I can literally feel my skin "tearing". It will sting, burn and when I look, there is a scratch. Really odd. I will check back with my derm and mention your "dx". I'm very curious as is my husband.
Iraisin-you are correct in the love received via these boards. It simply amazes me.
Slccom- I've been checked for drug possibilities and was told that's not the case. I am, however, aware of the many side effects the drug carries and that is why my rheumatologist is decreasing the dosage. She wants me to start Imuran...but, I'm very hesitant. Since changing my diet, I literally feel like a new person (no gluten, soy, grains, vinegar, pork, etc). I'm so sorry to hear about the brain damage at birth...apparently, it did not effect your heart (you sound like an amazingly sweet person). I pray that all goes well with you.
Thanks again for your responses. Many hugs to everyone,