Welcome, and I am sorry you have to have any of these conditions. Anything you do find out will be a help to you in adjusting your life. None of us wanted to have to adjust our lives, but sometimes we don't have a choice, and things just are what they are.
I am not sure I ever get totally use to it, but mostly I am now. (referring to changes in my life) It's more like I am just in another phase of my life. So I am doing all I know, and all I am allowed to enjoy it.
I have both sjogren's and lupus. I didn't know about the lupus until much later. It was found in a more extensive blood test.
The most active I have been in the past couple of years is this spring I have been putting out some plants in the yard, to have me a perennial flower garden with some small decorative rocks between them. I also have some hanging baskets on my porch, and for the first time, I have started a herb garden. So each day I have to regularly check on which needs watering, etc.
I also have 4 dog babies (full grown ones), and a big furry white cat. They keep me busy too. They are all so loving, and need care, but it's these things that are good stress relievers for me, and still give me things to do, and feel a sense of accomplishing something.
I also have been sewing, quilting, mostly smaller items, but I am working on one big quilt at the moment. My mother was a wonderful, talented quilter/seamstress.
In march my precious mother died, so I have really had to face many things, and she suffered terrible neuropathy, that I have had some small beginnings of.
Before I had to retire early, I worked as a special education teacher grades k-12 , and went to school later in life to do this. I was able to do this for 15 years before my illness put an end to it, due to extreme fatigue, pain, and even my memory. (I had to miss a lot of time at the school) But, I was able to have more time with my mother before she died.
Take care, and feel free to come here whenever you need to with anything. That is what we are all here for.