I just wrote something but as I am new I was not sure if it would be seen. I have had S.S for 3 1/2 years and had to finally go to a university hospital to be diagnosed. I have extremely dry eyes, mouth and now the worst thing has been the worst itchy head I could imagine having (24/7). The dermatologist has given me 3 pages of prescriptions none of which has helped. It finally occurred to me that this problem may be Sjogren related. My rheumatologist said she couldn't do anything for me. The dermatologist is out of ideas and my internist said if I can't use an anti-histamine he couldn't do anything for me. What am I to do? I am at my wits end. I did try a coal tar shampoo (1%). Please HELP!!!
I recently discovered that my longstanding itchy head was due to exposure UV rays. Remedies are to change CFL bulbs back to incandescent bulbs, wear SPF head covering in areas lighted with fluorescent lights, get a wardrobe of SPF hats. I now use only Johnson & Johnson Baby Shampoo on my hair.
I recently saw a dermatologist who specializes in autoimmune problems, Sjögren's and dermatomyositis. She asked me about sun sensitivity, I mentioned the itchy scalp, and she agreed with the sun sensitivity cause idea, and encouraged me in the prevention strategies I've mentioned above.
« Last Edit: April 27, 2012, 12:20:34 PM by soycoffee »
Fibro, PN, IBS, A-fib, SjS, Bell's Palsy, Restless Leg Syndrome. No teeth. // Gabapentin, Prednisone, Dibencozide B12, methyl B12, Metafolin, Glucosamine Chondroitin, Guai, L Carnitine Fumarate, ALA, MSM for pain, K, zinc, multimin, All B, D3, benfotiamine, melatonin, DHEA, spicy V-8, TMG.