Author Topic: Would you have a hysterectomy?  (Read 12711 times)

iraisin

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Re: Would you have a hysterectomy?
« Reply #15 on: April 25, 2012, 12:11:50 PM »
look into uteran ablation. I had it done, was able to keep the hormones from ovaries. I had mine done by Novasure. It's been awesome. My monthly pain and even PMS was gone for over a year. My gyno kept one strip of the endometrium in place - which just last month started shedding - didn't this month though. When it did last month, I did have a bit of PMS (minor in comparison) and some cramping (again, minor). It has changed my life and I didn't have to go on hormone therapy.

My Sjogren's symptoms are worsening - but I can't relate that to the ablation treatment. Good luck to you. BTW, Novasure has a website - check it out and talk to your doctor about it. Good luck

slccom

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Re: Would you have a hysterectomy?
« Reply #16 on: April 25, 2012, 12:30:52 PM »
If you do have the hysterectomy, I was told by a friend to religiously adhere to the weight lifting limitations for the full duration of the time they tell you. She didn't, and has paid for the rest of her life for that.

I hope you soon feel better!
Sharon

SueAnn

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Re: Would you have a hysterectomy?
« Reply #17 on: April 25, 2012, 01:25:28 PM »
When I had the D&C and Ablasion they put me under, I wouldn't do it any other way.

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Katybarstool

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Re: Would you have a hysterectomy?
« Reply #18 on: April 25, 2012, 01:43:17 PM »
I had no choice with the hysterectomy. I had had two endometrial ablations previously for very heavy bleeding. Then collapsed in agony. It seems the second abltation had selaed my tubes, and the next period time causedpain like in an ectopic pregnancy. Had I not had the hysterectomy, my life would have been in danger. Apparently, ablations are contra-indicated for women who have previously had their tubes tied.

I know I had Sjogren's before the surgery, but it definitely became more prominent afterwards. How much was due to the psycholoigcal trauma, I really do not know.

Good luck with whatever you decide.

Kathyx 

4Kids

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Re: Would you have a hysterectomy?
« Reply #19 on: April 25, 2012, 01:53:06 PM »
Novasure Ablation was what they attempted to do, but I need to be put under as the sedation methods just didn't help and I kept leaping away from the dr on the table.

I will definitely try that first, hopefully I will get in soon.

No tied tubes here. I wouldn't allow it! lol.

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cargillwitch

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Re: Would you have a hysterectomy?
« Reply #20 on: April 25, 2012, 03:27:07 PM »
I am a nurse working exclusively with women- PLEASE keep your uterus and ovaries!( the uterine ablation works REALLY well for many many women with bleeding issues!)
 
It is changing but for several generations getting rid of women's reproductive organs was thought of as routine
 " You aren't having anymore children are you? well we'll just nip them out and your life will be smooth sailing" it sounded like they were doing you a favour!

Everything in our bodies has a purpose. the uterus  helps to suspend and support the bladder and other internal structures- take it out and almost inevitably bladder and other prolapses follow. Requiring more surgery.
 
The ovaries play a key role in hormone production and regulation of processes within the body( and yes secretions from exocrine glands does appear to be one of them!) long after menopause. We like to think we can replace them with man-made or animal/plant based hormones but each women's hormones are unique.Getting your perfect mix is like trying to find a needle in an alternate universe.

 I often wondered if we suggested to men having penile, testicular or prostate problems that we just'"take them out for them". If they would begin to view female organs with the same reverence they do their own . Maybe they would then work to preserve  them with the same ferocity!
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4Kids

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Re: Would you have a hysterectomy?
« Reply #21 on: April 25, 2012, 03:51:47 PM »
I called and i am on the wait list for another one to four months.


I have bladder problems already. My SIL is of the opinion you should get rid if your cervix, uterus, ovaries.and breasts. I guess if it is the last resort for me I will do it but I wish or hope rather I don't have to make that call.

Part of me just wants to have another baby and nurse some more... I love that.
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iraisin

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Re: Would you have a hysterectomy?
« Reply #22 on: April 25, 2012, 04:38:34 PM »
oh yea, I was out like a light. I cry at needles - there was no way I could handle that with a local. And too, I couldn't handle 10 people working around my hoochie while I'm awake either. I'm w/you there. WoW! you really bring back some unpleasant memories in regard to bleeding. I feel for you, and I really, really hope this works for you.

Belsey1

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Re: Would you have a hysterectomy?
« Reply #23 on: April 25, 2012, 11:09:22 PM »
I was definitely put to sleep for my ablation.  Any other way was never an option or I would have opted for it no matter how many people in the room.  I have an unrealistic fear of being put to sleep.  My doctor thought I was going to have to have psychiatric evaluation and treatment prior to my hysterectomy.  However, I got out my prayer book and prayed for hours every night for about 10-12 days prior to the surgery.  On the 3rd day before my surgery I awoke to a peace I could have never believed possible and knew I would be ok.

Back to the ablation...in the recovery room, the nurse said something about standing on my head.  When I questioned her, she said Honey you were turned in more directions than you would ever want to know about.  Guess that is why it was better for me to be asleep.

I wish you luck and like many have advised you, make the best decision for you...and if you are one who prays.......pray, pray, pray.

4Kids

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Re: Would you have a hysterectomy?
« Reply #24 on: April 27, 2012, 06:20:21 AM »
One more question:

TMI Warning.  Irish and Cargillwitch, if you notice this, I am curious of your response.

I get clots and then I get gushes. This is how I tend to bleed. It is like something did not heal right from my 4th child's c-section. I bled for 4 months after he was born. I had a LOT going on and very little help. None of my kids sleep well, I rarely sleep through the night. So the lochia lasted 4 months and my period started where it left off after that. I was nursing so not fair.

So now I do not really trickle blood, I usually bleed in gushes. About one pad's worth. Yesterday was 6 pads only (not so bad, day 2 is my heaviest day) and today I had one gush after laying down all night. That is reasonable I know but does anyone have any ideas about the clots (sorry if gross, but they are smaller than quarter size mostly) and the gushes.  I have not told the dr that part and probably should. He doesn't ask millions of questions and I don't always know what to offer.

Thanks for listening...
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Cindy

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Re: Would you have a hysterectomy?
« Reply #25 on: April 27, 2012, 06:47:57 AM »
4kids I know it may not help but have you thought about a second opinion? Maybe another doctor will give you more options. Not all the doctors want to perform a hysterectomy in young people like us, unless is extremely necessary,

cargillwitch

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Re: Would you have a hysterectomy?
« Reply #26 on: April 27, 2012, 08:57:57 AM »
you should have had a break from periods with lots of night nursing-too bad!

I also nursed all four of my children( in terms of years for each one- I am a La Leche League Leader as well as nurse and doula)).

But on to the healing after cesarean- sounds like it was imperfect at best- should have been looked at more closely at the time.

Clots are usually a sign of either fibroids  ( blood pools around them then clots somewhat before your  movement usually forces them out) or too much progesterone production. I think I recall reading you did have polysistic ovarian syndrome so this would mesh with that.
6 pads in a day is a lot .

Have you thought of working to balance out your hormones with a naturopath? Most mainstream docs treat just symptoms and rarely look at the larger picture that the bleeding is being prompted by something hormonal that needs to be addressed.
Evening primrose oil, flaxseed oil,black currant all have been used for generations for leveling out progesterone over- production that leads to the endometrium " overbuilding" itself and causing heavy bleeding. If you are so inclined researching these and other dietary measures might be very useful and non-invasive.
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4Kids

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Re: Would you have a hysterectomy?
« Reply #27 on: April 27, 2012, 09:23:53 AM »
I.wish we had help w the naturopathic stuff. It costs so much, that is why I haven't went.

I checked, yes I have all symptoms of too low progesterone. I am on my fourth pad and it is day three today, and 10am.

Clearly not time for hysterectomy but time to get to the bottom.of it. I may have to dip.into savings.and try the naturopath.
 And figure it how much.and hopefully something other than exercising to.help.  I just do not have the oomph. I try but it is hard.

Eta I thought pcos meant I have too low progesterone?
« Last Edit: April 27, 2012, 09:47:34 AM by 4Kids »
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irish

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Re: Would you have a hysterectomy?
« Reply #28 on: April 27, 2012, 01:52:34 PM »
I have lost track of all the hormonal stuff as I am older and 22 years past the hysterectomy. I do know that it sounds like you are bleeding a lot. I always had to wear 3 pads when I worked just to prevent a real bad accident. I wore 3 at night also plus a bath towel on the bed.

I know what you mean by the gushes and I did that most of my life. Not always real bad but enough to make my life miserable. I am going to be quite graphic so the men can leave now!!!lol

One of my OB?GYNs told me that if women would be standing up with their legs apart the blood would drain more freely from their uterus and the clots wouldn't be as frequent. Well, that sounds well and good from someone who doesn' actually experience a period.

I still say that when you are passing a lot of clots you plus bleeding in between you are bleeding too much. Sounds like you need a good work up or second opinion just to sort out all the information that you have been given from us and from the doctors.

It is very possible that you could have a little area in your uterus that has not healed properly eith where the internal incision was or the area where the placenta was. Absolutely anything is possible in a woman after she has a baby. We have hormones and we have interesting body parts that are very specialized that need very specialized attention. I wish you well in your search.

Just out of curiosity does the act of nursing make any difference in your bleeding. Maybe this isn't so much a uterus issue as a hormonal issue related to the other glands in the body. Thyroid, etc. If nothing else maybe an endocrinologist would have a better grasp of this situation. Good luck. Irish ;D

4Kids

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Re: Would you have a hysterectomy?
« Reply #29 on: April 27, 2012, 02:00:10 PM »
Actually, I think I have noted more clots/gushes since stopping nursing.  I wish I paid more attention.  I did have heavy periods while nursing, since the birth of my second daughter in 2007.

Thank you for all your insight.

I phoned my Gramma:  she had the clots and gushes, and a hysterectomy at 43. Hers were worse than mine are. I do lose a lot of blood. 2x the iron supplements these heavy days I guess.  Same thing, I guess but worse. She was very run down and nothing could catch her up. The hysterectomy was worth it to her and "perked" her up. No problems since, other than severe bladder trouble.  :-\

I agree something didn't heal right. I had a hernia on my incision from chasing my dd2 out on the street at 36 weeks. They found it and fixed it during my son's c-section. Perhaps that was it? I better get it all checked out further. I LOVE my ob/gyn but.  I have also had 4 c-sections. So 4 c-sections and a gall bladder surgery in slightly less than 7 years.  Kids are so WORTH it.

All this has really proven I guess we need some further investigation and I had better organize all these thoughts etc before I go. I tend to get so worked up during gyn appts I forget my name  :-[.
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