Author Topic: You take TOO MANY medications! Grrrrrrrrr.  (Read 5015 times)

Carolina

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You take TOO MANY medications! Grrrrrrrrr.
« on: April 09, 2012, 03:54:14 PM »
Ok darling angels,

I had another well meaning person say that to me!

Yes, I've taken some things that caused problems.....but it wasn't that they were too many, it was that I had the weird rare reaction.

I'm not going to itemize each thing and ask them to decide what I should STOP taking!

I've even asked doctors who say, Gee that's a lot, to look down the list and tell me what to stop.

They NEVER have an answer.

My heart and cholesterol/blood pressure meds?

My Pilocarpine/salagen for saliva?

The Cymbalta for pain?  Since I can't TAKE regular RX pain meds, that would be cruel and unusual.

The Omeprazole that allows me to take Aleve for pain?

The Nasonex which allows me to breathe through my nose so my mouth doesn't turn into the Sahara at night?

Really, which one would or should I take away? 

In fact I have a new medication to try to lower my cholesterol, a powder I put in water.

And that anti fungal thing for my toes (creeps me out too!).

I don't even MENTION the OTC things, like the N acetyl cystine that was recommend by my otolaryngologist to help my hearing loss (thank goodness I"m not diabetic),  And my HEARING RETURNED. 

Was is the NAC I took for 3 years?  I dunno, but I'm sure sticking with it.

Or the Methyl B-12 I'm taking to try to undo my Peripheral Neuropathy?  Research at NIH shows it can work
so WHY would I stop it now?

I know, I do take a lot.

I was talking to a lady with RA, and I thought she would be sympathetic, but she said,Elaine you're just taking toooo many things.  You must stop.

Do you ever get that?

You must.  Imagine what they would say if they could actually SEE what I'm taking.

 :o

Ok THAT cheers me up.  I must be truly warped..

Hugs.  Elaine
« Last Edit: April 09, 2012, 04:02:07 PM by Carolina »
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Daisy1234

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #1 on: April 09, 2012, 04:07:30 PM »
Hi Elaine:

I guess too many meds must be in the eye of the beholder.  I'm currently on 21 different prescription medications (have been on as many as 24 different presciption meds at one time) and always my specialists keep trying to add more to the list.  BTW, none of the prescription meds I have are for either anxiety or depression or insomnia, they are all just to treat my many symptoms and manifestations of Sjs.  On top of that, I'm also getting Cytoxan and Rituxan infusions as well as chemotherapy. 

But anyway, if you feel that a specific medication is making a positive difference to your quality of life and your overall health then go ahead and take it.  If alternatively, you can find something that works as well for your symptoms but is not a prescription med then more power to you.  Your doctors should be your guide in this not a bystander however well meaning they might be.  Also one has to rely on one's own good judgement about whether a medication is effective for them.  Its never about what others think anyway, they don't live in our skins.

Just take care of YOU.
Hugs,
Daisy

DesignerS

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #2 on: April 09, 2012, 04:17:27 PM »
It really isn't funny! But I guess I have a warped sense of humor right now. Maybe its the 60 mg. steroids I am taking! LOL I cannot pick one out of the bunch that you should stop taking. They all seem important to me! It is so hard when others don't understand ::) But you KNOW you are not alone in this group:)

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ohiolady

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #3 on: April 09, 2012, 04:25:09 PM »
I second what Daisy said.  None of us want to take the meds we do but find it necessary for our quality of life.  I would have NEVER dreamed I'd be taking the number of meds I take, which is not nearly as many as some.  But, it is what it is and we do what we have to do.

Doggone those well meaning people. :)

Hugs,

Anna
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lori

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #4 on: April 09, 2012, 05:17:17 PM »
yes yes yes...i so get ya!!!! heard it many times. i just smile now and say yeah i am on alot and change the subject!!!!


hugs

lori

4Kids

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #5 on: April 09, 2012, 06:10:16 PM »
I am 36. I am new to this.and I take:

Restasis
Cod liver oil
Fish oil
vitamin e
Prenatal vitamins
Iron
B12
Salagen
Plaquenil
Metformin
Spirolactane
Arthrotec as needed
Probiotics
Nystatin as required
Diflucan as needed

I carry all this as I need it. I have xylitol lozenges as well.

If anyone dared say something to me, I gladly invite them to trade me lives.
Plaquinel, Restasis, Salagen, Arthrotec, Cod Liver Oil, B Vitamins, Palafer-C, Plaquinel, Metformin, Spironlactone, Biotin

mshistory

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #6 on: April 09, 2012, 06:14:06 PM »
My husband teases me about the size of my medicine cabinet. But I'm glad you posted this, Elaine, because I was wondering what people took to avoid the stomach pain with naproxen because naproxen works so much better than ibuprofen for me - I'm going to ask my doctor about that! So see - something good for someone else came from your medication use - ha!
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jazzlover

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #7 on: April 09, 2012, 06:20:23 PM »
Yes, so annoying!!!

I had someone suggest the other day that I should exercise and maintain a good diet... and all would be well. Hey, been doing that for decades... until my foot/back/neck pain stopped me many months ago.

I wanted to hit him!
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Nancy60

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #8 on: April 09, 2012, 06:52:06 PM »
I am always a little wary about having company over for fear they will look in my bathroom cabinets and see how many meds I am on....you know people do this!  I take more than my 85 year old mother!

Nancy

stephL

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #9 on: April 09, 2012, 07:10:41 PM »

While in the midst of trying to find a diagnosis or what the heck was wrong with me, my family "surprised" me with an intervention and trying to take my son.  Not even the interventionist would open her mind.. In order to not fight the issue of my child, I agreed to stop meds and get mental evaluation. Now I spent the last 8 months in therapy trying to get over anger towards family, jeez


jackles that would soooo be a deal breaker for me. No matter what they say their intentions were, clearly they were trying to create professional documentation to discredit you. This can be used against you in court should they decide to pick it up again. Your family either wanted custody of your child or wanted him/her in foster care. Think about that. The best predictor of future behavior is past behavior. Be prepared in case they try to challenge your parental rights again in the future. I can't say what's right for you to do, but if it was me, I would cease all contact with anyone who attended that meeting and see an attorney to find out what my legal rights were. I'm sorry this happened to you!
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eyeamdry

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #10 on: April 09, 2012, 08:41:54 PM »
Quote
I am always a little wary about having company over for fear they will look in my bathroom cabinets and see how many meds I am on....you know people do this!  I take more than my 85 year old mother!

I have a very small bathroom and little storage room. Medicine cabinet is taken up with shaving stuff and toothpaste etc.  I have my meds in a kitchen cabinet.  I use a storage box made of plastic with a top for most of my meds.  I think I take 10-12 different kinds per day plus some vitamins and other OTC, but I get such GERD from all the pills, I can't find time or fit in the vitamins too without terrible consequences.  So if anyone looks in my cupboard, they might see all my meds.  That's fine, but I'll likely see them snooping.  I have no kids coming to my house so it's safe enough for me to do this.

I also am sick of people asking and repeating about how many things I take.  Even my GP I think is trying to reduce some of my meds.  I see him tomorrow, so I'll see.  Also, people who tell you to "get outdoors" and you'll feel better tick me off.  Sometimes I'll get a remark from my GP and even my rheumatologist about being a "bit overweight."  That I am, however nothing that is right on top of my worry list.  All of my cholesterol, sugar and other numbers are all very good.  I remind them of that and then there isn't much room to criticize my weight because it's not causing any apparent problems and I am a "mature female."  Lucy

Meld256

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #11 on: April 09, 2012, 10:11:15 PM »
Our dear Elaine,

It still amazes me what "well-meaning" people will say...or should I say "people who know NOTHING about our issues!" 

I also really like Daisy's reply; so well said, Daisy! 

I know, I know.  This can be so aggravating, but of course, it's really none of anyone's business what meds or OTC medical help we need. You know you can vent away to us anytime!  :)

Take care of yourself,
Melinda

slccom

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #12 on: April 09, 2012, 11:18:21 PM »
My husband has chronic fatigue syndrome, and instead of a linen closet we have a pharmacy! We stock up on the OTC stuff he needs when it is on sale, so we need a lot of space.  I have my own shelf, too, and the dogs have some space of their own. It is better to not store your meds in the bathroom, anyhow, because of the heat and humidity.

Jackles, your family is disgusting! However, everyone, she is in Britain, where they think that everything that they can't see with their naked eyes is psychological.

The abuse they inflict on people with chronic fatigue syndrome is obscene, and they have driven many people to suicide.

My heart goes out to everyone who is being emotionally abused by their families.

Hugs everyone, Sharon

cargillwitch

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #13 on: April 10, 2012, 05:03:50 AM »
 many of you have listed supplements as " medications".

Probiotics, vitamin b12 , iron etc are found in foods .

Unless people feel food is medication ( which they REALLY should!!!)

If this is so ,they should also be checking out your fridge and cupboards to also see what lies there! LOL
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jodie

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Re: You take TOO MANY medications! Grrrrrrrrr.
« Reply #14 on: April 10, 2012, 07:54:22 AM »
Hi Elaine!

I think many of us have encountered these 'well-meaning types' that through no personal experience of their own feel the need to 'advise' us of the fact that we take too many meds.  If they could live in our shoes for a day, they might not be quite as eager to 'discontinue meds.'  I am not big on unsolicited advice, especially from someone that simply feels the need to tell me what I should/should not be doing, yet has zero experience to back up their claims.  I have been in your situation more than once re: 'you take too many meds' etc., and it does get tiresome, to say the least.  The only point I would make is to always make sure that whatever meds you take do not react adversely with any of your supplements, OTC meds etc., but I'm sure you know that already!  BTW, I also take alot of meds; all of them necessary to keep me going.

@Jackles - Get thee to a lawyer ASAP. This situation with your family is no joke, especially in terms of the threat of having your child taken away. 

So, as an old friend used to always say to me, 'Do you.'

Now is the time for you to 'Do you' and I'd start with a lawyer.  Take care of you and your child, get all the info you need in order to do so and protect yourself and your child as best as is possible.

Take good care,

Jodie