Author Topic: Really Low Body Temperature - Any Advice?  (Read 17155 times)

Autoimmunity

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Re: Really Low Body Temperature - Any Advice?
« Reply #15 on: February 25, 2012, 06:31:31 PM »
I always have a very low body temp. (when I checked it last month as I was actually feeling feverish - it was 93 or 94; I haven't actually had a fever in over 15 years).  I have hashimoto's and I believe my low body temp is due to that.  You might ask the dr to check your thyroid antibodies. 

Joe S.

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Re: Really Low Body Temperature - Any Advice?
« Reply #16 on: February 25, 2012, 08:38:59 PM »
I am told that I do not have thyroid problems.
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eyeamdry

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Re: Really Low Body Temperature - Any Advice?
« Reply #17 on: February 25, 2012, 08:53:02 PM »
I take a small dose thyroid med, but was just tested for all 3 of the tsh's and all were within normal range.  My doctors refuse to consider that "we" have low body temps.  It's like I am lying even though their staff takes my temp with an automatic thermometer.  They swish it over my forehead.  But what do I know?  At 96.0 I know I have a low body temp and I go through spells of freezing.  I lie wrapped in an electric blanket all winter.  Sometimes in the summer too. 

On the other hand, I can turn hot and start sweating around my head, face in the flick of an eye.

Lucy

Autoimmunity

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Re: Really Low Body Temperature - Any Advice?
« Reply #18 on: February 25, 2012, 09:44:46 PM »
I take a small dose thyroid med, but was just tested for all 3 of the tsh's and all were within normal range.  My doctors refuse to consider that "we" have low body temps.  It's like I am lying even though their staff takes my temp with an automatic thermometer.  They swish it over my forehead.  But what do I know?  At 96.0 I know I have a low body temp and I go through spells of freezing.  I lie wrapped in an electric blanket all winter.  Sometimes in the summer too. 

On the other hand, I can turn hot and start sweating around my head, face in the flick of an eye.

Lucy

Until just this past year I have always had a normal tsh/t3/t4, etc.  I only knew I had hashimoto's as I had a positive antibody test.  There is an anti-tpo and another antibody test I can't remember.  I have had symptoms for at least 15 years.  My original endocrinologist ran the tpo test which was very high positive but would not treat me due to the tsh/t3 etc.  I therefore fired her and found a doctor who would.  Not saying you have hashis, but with your other autoimmune issues it isn't a giant leap that you could.  It might be worth it to have the antibody tests done.  Of course none of that helps if you still have a doctor who won't treat you.  Good website, hope it's okay to post this ? -stopthethyroidmadness dot com.

soycoffee

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Re: Really Low Body Temperature - Any Advice?
« Reply #19 on: February 25, 2012, 10:26:22 PM »
Until last fall, I had a "normal" temperature stuck at 96.8. A temperature of 99.4 was a fever. I've been tested for inadequate thyroid production, but my endocrinologist, 5 years ago, would not provide supplemental thyroid.

. . .
My guess is that for some of us it is thyroid related, some is autonomic nervous system related (our body thermostats don't work well), and some may be affected by anti-inflammatory meds.
Genko

Since getting Bell's Palsy, last October, I've been on Prednisone in varying doses, and my temperature is normal. I guess that means, in agreement with Genko_b's post, that (since the doc says it's not thyroid), it's either autonomic nervous system related, or affected by anti-inflammatory meds. I did take anti-inflammatory meds for a long time -- Ibuprofen -- but stopping them didn't bring my base temp up. So, since Prednisone did the trick, I vote for autonomic nervous system dysregulation.

Soycoffee

actingup

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Re: Really Low Body Temperature - Any Advice?
« Reply #20 on: February 26, 2012, 04:37:42 PM »
I have low body temp.  it has gone as low as 94.7.  It was a very scarey morning, vision very blurry.  So for me my body temp. was up and down.  I usually had high blood pressure and suddenly that was changing.  It was low then it went back to the high mark again.  Even higher than usual sometimes.
I was being told it was the Fibromyalia. One specialist said don't allow everything to be blamed on the Fibro. there was definately something else going on.  He told me to go to a Neurologist who's speciality was with the autonomic system.  These doctors are rare in my area. I went to one and He did autonomic testing guess what found out I had a dysfunction with my parasympathetic system. I was told the body temp. is not dangerous just another symptom to deal with:(  I hope this was a bit helpful.

Daisy1234

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Re: Really Low Body Temperature - Any Advice?
« Reply #21 on: February 27, 2012, 01:01:16 PM »
Thank you everyone for your replies.  Went to my PCP today who is at a loss to explain what is going on with the low body temps I've been experiencing.  She had bloodwork drawn to check my thyroid function but as I am rather thin, I personally don't suspect hypothyroidism.  PCP was wondering if the prednisone I am on is causing this but I don't think that is the case either, more than likely its some type of autonomic dysfunction and more progression of Sjs in my body.   

Its hard to believe that my Sjs can get any worse at this point as I already have NHL caused by SJs as well as Interstitial Lung Disease caused by Sjs and Gastroparesis caused by Sjs and a whole list of organs affected by Sjs goes on and on.

Daisy

Piebird

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Re: Really Low Body Temperature - Any Advice?
« Reply #22 on: March 01, 2012, 12:07:12 AM »
I have always had a low temp. As a kid my parents never knew why I didn't show a feever when I was sick. One day they took my temp while I was healthy.

reallyneedsanap

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Re: Really Low Body Temperature - Any Advice?
« Reply #23 on: March 01, 2012, 11:06:30 AM »
Daisy,
Did you call your oncologist?  It could be related to lymphoma. 

Daisy1234

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Re: Really Low Body Temperature - Any Advice?
« Reply #24 on: March 01, 2012, 01:10:35 PM »
Hi MaryElven:

No didn't call my Oncologist as I don't consider this an emergency but will bring it up at my next appointment if things don't settle down.  Chills are  B symptoms which are definitely related to Lymphoma and you are certainly correct and observant to bring this to my attention so thank you.  However what I am experiencing is more than chills, its an out of whack body thermostat.  I do appreciate the suggestion very much though and will mention it to my Oncologist the next time I go.

I'm still thinking more than likely its my neurological system affected by Sjs (Autonomic Dysfunction).  I've been experiencing all sorts of interesting health developments lately including collapsing fairly frequently due to some type of overwhelming weakness that comes on suddenly and without warning, arm and hand going numb for hours at a time, vision issues (much worse than normal) and a recurring Malar rash on my face (which both my Rheumy and my PCP have seen during my appointments including the appt with my PCP earlier this week) even though I don't have Lupus.

Only time will tell I suppose.

Daisy

ohiolady

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Re: Really Low Body Temperature - Any Advice?
« Reply #25 on: March 01, 2012, 02:47:42 PM »
Daisy,

You are in my thoughts and prayers always.  You have been through so much and I will be so happy when you are done with treatment.  I think chemotherapy can be so very hard on your body and you are getting a whopping dose.  How much longer do you have?  I believe you will continue on the Rituxan for two years, right?   But, how long till you are done with the other cocktail? 

Sending you a big hug!

Anna
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Kidney Cancer Survivor   
Female   Age: 62

Daisy1234

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Re: Really Low Body Temperature - Any Advice?
« Reply #26 on: March 01, 2012, 03:17:21 PM »
Hello Anna, thank you as always for your caring and concern and I know you speak from your own challenging experience with treatment as a result of the kidney cancer you battled yourself.

I'm back on the chemo cocktail until April if all goes as is currently planned, then its on to the Rituxan maintenance program, again that is if the Oncologist doesn't change up the plans again.   Oncologist is watching me very closely and reviews my treatment at each visit.  The Oncologist has also told me several times that treating my cancer has been much more difficult because my general health without the cancer is already quite precarious.   

I do believe that I am receiving very good care from all of my doctors and specialists though and am very grateful for that.  My PCP, Oncologist, Rheumatologist, and Respirologist have been calling me at home themselves rather than going thru an assitant or a nurse too and I know that most people don't get that level of care and really appreciate their hands on touch.

But I have to say that I'm still really looking forward to when the treatments are all over with.

Daisy

Joe S.

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Re: Really Low Body Temperature - Any Advice?
« Reply #27 on: March 01, 2012, 03:52:28 PM »
I was running a fever today when I saw the doctor. He did not believe that 97.9 was a fever. Normal is 96.8
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
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Bucky

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Re: Really Low Body Temperature - Any Advice?
« Reply #28 on: March 16, 2012, 07:29:35 AM »
((Daisy)) - how are you doing dear?

As always, thinking of you and wishing that SjS would give you a break already!

Hugs,
Bucky
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