I got my test results from the lab (my rheumy says I have to wait until next Wednesday to see her to discuss them) and I am a little worried. I 'll give you a little background first:
I have always tested positive for ana, ever since I was a teenager which I know can be normal in healthy people as well. Periods have always been heavy and lasting for weeks, leading to a life-long battle with anemia. Low platelets began 11 years ago with 1st pregnancy. My mom has SLE, and her sister has Sjogren's. My daughter (10) has a thyroid goiter with normal thyroid levels.
So I'm a tiny little skinny thing with a hard labor job. Was a stay at home mom for 10 years, then 1 1/2 years ago got the only job I could find, which being hard labor, is exhausting. I began to fall asleep driving home every day. I thought it was because of getting up at 4 am every morning and that I didn't get much sleep with 3 little kids and online college at night. In the last week of October I got a lot of pvc's. Annoying, but no big deal. Then November 7th I completed and turned in a paper for school just fine, only to have the very next day an issue with being able to comprehend the next assignment. I just couldn't understand the words. Like they had been written in words that just didn't go together. I couldn't process questions or directions. And I began to drop things from my right hand. And trip to my left. Only to my left... My cardio put me out on medical leave so I get a lot more sleep now. I am tired all the time and nap everyday, I forget everything, have episodes of sleep paralysis occasionally, sudden severe anxiety when driving, I stumble a lot, my fingers are slow, like when they are really cold, and now they fumble when I try to pick up little things like pencils or pennies. And of course arthritis in almost every joint. And sadly, I am miserably cranky, nasty and can't remember the last time I laughed. I do have dry mouth and eyes (especially when I wake up), and can't wear contacts for the last 2 years due to they dry out in seconds after I put them in, and drops last a minute or two at most.
So I made an appointment with my family dr., and was sent to many docs and had lots of tests. My cardiologist put me out of work for 3 months. She said I have sinus arrhythmia, bradycardia, mildly leaky tricuspid and mitral valves (no prolapse). Nothing bad enough to do anything about and she really thinks the heart issues are secondary to something else. Neurologist said the bradycardia could cause my symptoms (the beats get down to 30 a minute quite often) and should be treated. I had an mri done last month, eeg done yesterday, a sleep study done last month, and will have an emg
done at the end of the month. And lots of repeated blood work. I saw a new rheumatologist 2 weeks ago and had blood work done. These are the results:
Everything is Normal except what is bold
Lupus Anticoagulant Comp~ none detected
CBC with Diff/Platelets
Iron and TBC
Anticardiolip ab, iga/g/m qn
Beta 2 glycoprotein I ab, g, a, m
Antiextractable Nuclear Ag
CCP antibodies Igg/Iga
Sed rate westergren
Creatine Kinase total serum
Complement C4 and C3
C-Reactive Protein, quant
Antithyroglobulin ab BUN/Creatinine Ratio= 24 highBUN=20
(this is normal, but the highest # in the normal range)Sjogren's anti-ss-a = <0.2 NORMAL
Sjogren's anti-ss-b 1.2 highVitamin D, 25 hydroxy= 16.8 LOWFerritin, serum= 10 LOW
(I have been as low as 6 before and my hemo didn't worry)Thyroid Peroxidase (TPO) Ab =41 high Antinuclear antibodies IFA 1:160 High, Homogeneous pattern; antigen detected~ DNA (ds, ss), histone; suggested disease association: high titers - SLE
*Some things to note~ Blood work done 2 months ago showed:
BUN at 12, now 20
BUN/Creatinine ratio was 13.3, now 24
Platelets were 131, now 157
High MPV 12.7 with the low 131 platelets (wasn't tested this time)
T3, T4, TSH all were in the middle of normal range
So can anyone shed a little light on what might possibly be going on here? The Sjogren's is high for the b, but not the a. Lupus said none detected. Bun/creatinine ratio and BUN doubled in the last 2 months, but the creatine is normal. Platelets are FINALLY normal after 11 years.
Someone please help me understand. Does this mean I have Sjogren's?