Author Topic: "teeth" pain?  (Read 2581 times)

cargillwitch

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"teeth" pain?
« on: November 28, 2011, 06:26:05 AM »
I am somewhat new to diagnosis( but like many was aware something was amiss for awhile) so I am still trying to tease out what is sjs and what may be other issues.
Three nights ago I awoke in the middle of the night with severe pain in what I though were my bottom back molars. After lying with it for 45 minutes or so it seemed to drift to my bottom front teeth on the same side. Being aware of referral pain I tried to isolate the area and get a few more hours sleep!
 I phoned the dentist first thing the following morning and was able to see him for evaluation.X-rays of the area showed no abcess ( which i didn't believe I had as the pain was not "yet" to that level) nor any inflammation or cavities either.  the pain continued to waffle along the whole line of teeth and I was unable to chew on that side until this morning.This has never happened to me prior. Although I have had intermittent gland pain along the jaw line for many months now this was quite different and located in a very different area.
 Anyone else have issues like this related to sjs?
47 female, Sjogrens ,Raynauds,degenerative disc disease.Rheumatoid Arthritis, gastroparesis.

Joe S.

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Re: "teeth" pain?
« Reply #1 on: November 28, 2011, 06:29:10 AM »
Yes, it sounds like an infection. I use frequencies to kill bacteria when that happens to me.
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Narablueeyes

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Re: "teeth" pain?
« Reply #2 on: November 28, 2011, 06:47:15 AM »
I am somewhat new to diagnosis( but like many was aware something was amiss for awhile) so I am still trying to tease out what is sjs and what may be other issues.
Three nights ago I awoke in the middle of the night with severe pain in what I though were my bottom back molars. After lying with it for 45 minutes or so it seemed to drift to my bottom front teeth on the same side. Being aware of referral pain I tried to isolate the area and get a few more hours sleep!
 I phoned the dentist first thing the following morning and was able to see him for evaluation.X-rays of the area showed no abcess ( which i didn't believe I had as the pain was not "yet" to that level) nor any inflammation or cavities either.  the pain continued to waffle along the whole line of teeth and I was unable to chew on that side until this morning.This has never happened to me prior. Although I have had intermittent gland pain along the jaw line for many months now this was quite different and located in a very different area.
 Anyone else have issues like this related to sjs?

My teeth have hurt for years.  I used to think it was sinus related but they hurt whether I have sinus issues or not.  The dentist hasn't a clue and the doctor is even more clueless.  Ice cold liquid and ice cold yogurt, ice cream, etc...helps the most.  Advil only when it get really bad.  I just learned to live with it.

Madison Granny

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Re: "teeth" pain?
« Reply #3 on: November 28, 2011, 08:14:51 AM »
I have that too.  My dentist thinks it might be in my jaw joint.  The nerve in the joint.  I have TMJ.  I've been checked by my dentist at least 3 or more times and no infection or cavities have been found.  I think it could be SJS related as SJS affects the nerves.  I just have learn to live with it too.
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A66eyroad

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Re: "teeth" pain?
« Reply #4 on: November 28, 2011, 08:22:43 AM »
I'm with NaraBlueEyes --- I've had tooth pain for years, even in teeth that've had root canals (read: no nerve should mean no pain).

It gets worse and better with no rhyme or reason. Sinus problems make it worse. Sometimes Advil helps. Otherwise I've had to just learn to live with it.
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Dolly Dimples

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Re: "teeth" pain?
« Reply #5 on: November 28, 2011, 09:53:53 AM »
  My daughter has had what the Docs say is sensitive teeth, sometimes she feels as tho they are being yanked out!
      She is also very Allergenic  to different substances too, 
              Between us both, hard to say who gets the weirdest symptoms.
                Such is the life of a Sjoggie!,      Dolly x

Rachel F.

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Re: "teeth" pain?
« Reply #6 on: November 28, 2011, 05:50:05 PM »
Wow-- so glad you posted. I have traveling teeth pain too. Mine started as more of an electric feeling, but now is just aching from time to time. It's been about two years. Eventually I will need to go and have a specialist look at it... I do have three fillings in a row in the area where I think the pain usually originates. THe dentist said that could mean eventually a root canal. Of course nothing showed up on the xrays. I think it could also mean pain in one of the cranial nerves... there is a disorder where the cranial nerve is affected (inflammed) and results in pain in the teeth-- but it isn't actually originating in the teeth. people with MS often get facial pain. So maybe it just runs in the family of autoimmune disease? Of course, I am not diagnosed...

newhorizons

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Re: "teeth" pain?
« Reply #7 on: November 28, 2011, 06:19:55 PM »
Rachel, Teeth still have all mine plus 2 lower wisdom teeth.  Probably at least 30 years ago I had a root canal done on one of my upper teeth. When orthdo got in to area he remarked there was no need for a root canal but would go ahead and do one since all ready in there.

Went back to my dentist and told him what orthodo had said.  He said he wanted to look at my xrays again. He did and suggested taking another set of upper ones and raise the camera a little higher.  He brought them back in room and commented that no wonder I had my upper teeth hurt, the roots of my teeth and my sinsuses we on top of each other.

Thus, have learned that warm salt water held in mouth and gargled as well as warm compress or small sinus heating pad held to side of face helps.

15 yrs since Sjogrens diagnosis and now realize what has been diagnosed as TMJ in jaw joint is really the parotid glands empty at the top of the back molar .  If a small calcium stone of any size gets in gland and comes down parotid gland... lordy, pain is excruciating!!

My R side jaw joint still clicks as it has for many, many years (not TMJ) really think it is arthritis and it is getting worse and R side of face & sinuses swell,  even jaw joint, and
 upper teeth hurt and often will migrate down to lower teeth and even jawline and pain wrap around my ears creating a sensation of an earache.

Cargill(welcome aboard SW) and Rachel(do u have PN?) and others, sound familiar.  I'm a well seasoned senior sjoggie and find one must in 'trial and error' mode learn what works as we're all different.  As is evidence, my 40 yr. old daughter has Sjogrens' and different items work for her to what works for me.



 

YYC_ Mommy

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Re: "teeth" pain?
« Reply #8 on: November 28, 2011, 06:31:26 PM »
I have this as well. Also went to the dentist as I thought that something must be terribly wrong with my teeth.......everything was fine. After much pain and visits to my doctor it is due to my recurring sinus infections. I was given Nasonex to use and it has helped me greatly. I can tell if I don't use it for a while and the pain starts back again.

I also had an MRI that showed that I have inflammatory chronic sinuses.

Just wanted to share that it could be your sinuses. Hope you feel better soon!

Patze

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Re: "teeth" pain?
« Reply #9 on: November 28, 2011, 07:47:54 PM »
Hi cargillwitch,

Let me also welcome you to the SJS World and family!  Please do look around the board via the search engine located in the upper right hand side of this page as there are several topics on this issue and  there are tons of other topics/information that you just might find helpful.

I sure feel for you as I used to get pain that followed my lower and sometimes the upper teeth line towards the front of my mouth (just one side of the face though every time it "hit").  The pain was unbelievable....it was electric-like, and it started slowly and built up to spasms that would last on and off for days at a time. :o  I understand that chewing, talking, and a host of other things often triggered it, and it struck areas where I have caps with root canals too so I knew it wasn't my teeth.  If your dentist can't find anything, can you see a neuro about it maybe?

Is this related to SJS I can't say either (I'm not in any medical field), but is an interesting question to ask your rheumy/neuro.

Good luck and I'll keep my fingers crossed that you get an answer and some relief soon!

Take care of yourself and keep us updated, okay?

Patze
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sunkissed64

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Re: "teeth" pain?
« Reply #10 on: November 28, 2011, 09:55:52 PM »
When I first got Sjogrens almost 25 years ago on top of a blocked parotid gland that blew up like a balloon (I looked like I had mumps) and blocked salivary gland(ow I still remember that horrible pain) sometimes my joints would lock up including my jaw. My elbow was another big one luckily that hasn't happened anymore but it was like a rusty hinge that refused to budge. My jaw clicks sometimes and I sometimes get a spasm in my neck that feels like a jolt of electricity. Just try to keep your teeth clean and mouth moist because if I had to list one of the worst problems caused by Sjogrens is thousands of dollars in dental bills. Root canals, filling and temps that won't stay in place, the works. Hope the pain in your teeth is a temporary thing and that you learn to manage it without too much hassle. HUGS