Author Topic: "At least it's not lupus" said the bad rheumy I just met  (Read 5610 times)

mshistory

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #15 on: October 05, 2011, 10:03:08 AM »
Funny that this has come up as I had just asked my Dr how Lupus and Sjogrens connected. She said the simple answer is Lupus attacks the skin and Sjogrens attacks moisture producing glands and like to attack the  lungs but other wise they both can attack any organ and symptoms are a lot alike.

I always appreciate the posts about doctors who take Sjogren's as seriously as other autoimmune diseases!
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

mshistory

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #16 on: October 05, 2011, 10:05:22 AM »
that's a good one :D  I just found out the psychiatrists out here no longer "talk or discuss problems with patients".....they only give out drugs!   So if I want to discuss a chronic illness with someone I have to go to a social worker or a psychologist!!!!  I was floored!!!  They charge $300 for 15 minutes of going over your medications??  Boy, I'm really behind the times!!!!!!!

Off topic, but this is true pretty much all over the country now unfortunately. All my psychiatrist does is manage my meds at $250 a visit.  ::)
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

gold55

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #17 on: October 05, 2011, 10:14:49 AM »
sorry it's off topic.....I blurted it out after reading the joke on psychiatrists :(  Guess I'll have to open up my own topics prior to blurting out...I'm still new at this forum stuff, sorry.
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

mshistory

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #18 on: October 05, 2011, 10:27:32 AM »
I meant MY post was off-topic - I didn't mean to make you feel like you shouldn't have posted that!
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

gold55

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #19 on: October 05, 2011, 10:32:06 AM »
hahahha hahaha I ended up posting my 'very first topic' so I feel not so new anymore!!!!
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

Carolina

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #20 on: October 05, 2011, 11:22:34 AM »
Sigh, when doctors try 'humor' or make an attempt to cheer us up, it usually falls flat.

Stick to what you know.

BTW I prefer doctors under 50.....even under 40.   Most current information and not so stuck in prior practice and belief systems.  IE Lupus is worse than Sjogren's.   

Just tell him that irritated you the next time you see him.   Sometimes weird stuff comes out of our mouths and we don't really realize how wrong or serious it can be to others.

Hugs

Elaine
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irish

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #21 on: October 05, 2011, 11:58:34 AM »
I have to respond to the remarks about the psychiatrists and their management of care. The job of the psychiatrist is to help distinguish between the medical problems and the psychological problems, Years ago ( and I am talking years ago) the psychiatrists were seen as listeners, ie the people laying on the couch, etc,. talking about all their issues.

That no longer holds true. Much of the time there can be medical issues that impact the body in such a way that depression and other emotional issues can come up. Also, yes, there is the need for the diagnosis of the specific psychiatric illnesses. However, when it comes to talking and listening sessions the psychologist comes into play.

Psychologists don't prescribe medication but they can give recommendations to the psychiatrist on what they think is going on with the patient. It is now a full time job for the psychiatrists to  become the medication managers for all patients.

It is a necessary job and one that I think would be boring as heck. I see my psychiatrist about 3 times a year for a short "med check" which gives the doctor the ability to assess me and my psychiatric needs. This allows him to continue to presctibe or to change my medications. Yes, it does cost a lot---even if insurance pays most of it.

The reason this has come about is because most of the world is now on medication and someone has to be in charge of making sure the meds are presribed safely. This is also known as a "CYA" by the medical profession and it also involves the insurance companies also.

The psychiatrist is still doing his job, it just isn't what they started out doing years ago. There are so many meds on the market now that it takes someone who deals with them on a full time basis and knows the actions and interactions. I would not feel comfortable (my opinion) having my GP order my antidepression drugs. I have a very hard to manage depression due to my drug sensitivity so I am very happy with the system as it stands now.

I would encourage any of you who see psychiatrists to ask them just what their job description is in regards to your care. This way you can see if what they plan for you and what you expect of them are going in the same direction. Good luck all. Irish ;D

mshistory

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #22 on: October 05, 2011, 12:20:07 PM »
I have to respond to the remarks about the psychiatrists and their management of care. The job of the psychiatrist is to help distinguish between the medical problems and the psychological problems, Years ago ( and I am talking years ago) the psychiatrists were seen as listeners, ie the people laying on the couch, etc,. talking about all their issues.

That no longer holds true. Much of the time there can be medical issues that impact the body in such a way that depression and other emotional issues can come up. Also, yes, there is the need for the diagnosis of the specific psychiatric illnesses. However, when it comes to talking and listening sessions the psychologist comes into play.

Psychologists don't prescribe medication but they can give recommendations to the psychiatrist on what they think is going on with the patient. It is now a full time job for the psychiatrists to  become the medication managers for all patients.

It is a necessary job and one that I think would be boring as heck. I see my psychiatrist about 3 times a year for a short "med check" which gives the doctor the ability to assess me and my psychiatric needs. This allows him to continue to presctibe or to change my medications. Yes, it does cost a lot---even if insurance pays most of it.

The reason this has come about is because most of the world is now on medication and someone has to be in charge of making sure the meds are presribed safely. This is also known as a "CYA" by the medical profession and it also involves the insurance companies also.

The psychiatrist is still doing his job, it just isn't what they started out doing years ago. There are so many meds on the market now that it takes someone who deals with them on a full time basis and knows the actions and interactions. I would not feel comfortable (my opinion) having my GP order my antidepression drugs. I have a very hard to manage depression due to my drug sensitivity so I am very happy with the system as it stands now.

I would encourage any of you who see psychiatrists to ask them just what their job description is in regards to your care. This way you can see if what they plan for you and what you expect of them are going in the same direction. Good luck all. Irish ;D

Actually, some states do allow psychologists to become certified to prescribe medicines (I live in one of those states but my psychologist husband has no interest in pursuing this certification since once you start prescribing meds, it does become a full time job). The NY Times ran a great article a while back about the transformation of the psychiatric field from a focus on talk therapy to drug therapy.
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

gold55

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #23 on: October 05, 2011, 12:47:15 PM »
this has all been new news to me...thanks for your clarification!  jill
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

Sooki

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #24 on: October 05, 2011, 02:53:04 PM »
Sounds like he's looking forward to retiring and is sliding backwards.  Wouldn't he have been embarrassed about what the other 5 docs would think of him, not knowing if the glands were swollen??  A good rheumy is golden, worth the search and possible travel.  I don't think he's looking at increasing his knowledge base here.
68 yo, Sjogren's, Lupus, Hashimoto's, fatigue, MGUS, peripheral neuropathy, ocular rosacea
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Patty

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #25 on: October 05, 2011, 03:34:45 PM »
My primary dr is young - 30ish I think. She is surprisingly knowledgeable about autoimmune, but does not like to handle any rheumatological issues. I think this is because she does not want to interfere with what my rheum is doing and feels she is not knowledgable enough in that area. She is always up to speed on all my recent specialist appts too.

warmwaters

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #26 on: October 05, 2011, 07:52:32 PM »
On the topic of psychiatry, I read a wonderful book by an Arizona psychiatrist in her 50s who talks about the evolution of psychiatry as a "healing integrative profession" where she worked with patients, helped them find services, and prescribed medicines, as needed,  to a driven-by-the -numbers insurance-oriented profession, where she doles out medicine, and the task of actually talking to people is delegated to less expensive psychologists, whom she rarely gets to meet.

Unfortunately, brain fog is obscuring the name of this book, which I'd love to recommend!


Going back to my rheumy visit - On further reflection, the business of getting the five other doctors may have been to impress me!  In other words - he's got such clout that he can walk out of the room and bring back 5 other doctors in 5 minutes.

Don't worry too much about off topic - one thought leads to another.
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gold55

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #27 on: October 05, 2011, 08:11:38 PM »
yea, my mind is still boggled by the new role of the psychiatrist.....this has to be soooo boring for them!   I don't mind seeing a Psychologist who specializes in chronic illness however, the patient ends up getting so many doctors involved and so many copays owed that the patient really suffers more from the confusion and lack of physician communication rather than benefit from all the specialized expertise and care!!!    >:(   
Dx#1:  dx changed to Sicca Syndrome + UCTD (how wonderful)
Dx#2:  Osteoarthritis and high cholesterol
Meds:  my golden retrievers, my doodle, otc tylenol, ibuprofen, mobic, vitamins, omegas, oral pilocarpine, liguid chondroiten/glucosamine with

Carolina

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #28 on: October 07, 2011, 03:42:16 PM »

At least it's not stupidity (foot in mouth disease), which happens to be MY problem.

jeez.

I"m still thinking about that doofus doctor.

Hugs

Elaiine
Female-Elaine,76-CVID-pSJS-IC-PN-CAD-Osteoarthritis-COPD-SFN-Knee/Shoulder Degeneration-SIBO-Intertrigo-Act.Purpura-Anemia-Copper Def-Raynaud's-Meniere's-Hiatal Hernia-Achalasia-IVIG Gamunex-Medrol-Gabapentin-Atenolol-Pilocarpine-LDN-Nasonex-Lipitor-Estrogel-B-12-Iron-D-Mannose-NAC-Co-Q10-D3-Omega 3

puccini914

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Re: "At least it's not lupus" said the bad rheumy I just met
« Reply #29 on: October 08, 2011, 09:57:25 PM »
My Rheumy once told me "Be happy you're not sicker".  This at a point when I was already on Plaquenil, and 25mg of Methotrexate along with 13 other med that help manage my symptoms.  We were kind of at my drug limit, aplace I'm still at only now I am sicker.  Now I have systemic SJS and my hips and legs are jumping on the the inflammation bandwagon and I heard the one thing I never thought to hear from a Rheumy,"maybe it's time you look into stronger pain medication".  I'm already taking Lortab 325/10 4 times a day everyday.  I no longer worry about what the future is going to bring, because whatever it is, it will get here soon enough.  Why waste precious time on worry?  I live with what I've got, stress a bit until I find a way to live with it and then try to move on.  I know that life won't get any easier, so I better not spend anytime making myself any weaker.  We've all got to find what makes us strong and cling to it everyday.  There's no room for weakness when you've got an AI, only time to enjoy what you still have.