Author Topic: Another day at hospital  (Read 8426 times)

really?

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Another day at hospital
« on: September 04, 2011, 08:53:38 AM »
Well we spent another day at Hospital,, severe abdominal pain, of course they did they stupid bloodwork, everything ok, told them stool is just running out of me, they could hear the stomach just making odd sounds,, bent over doule,, so they give me a GI cocktail, didnt do anything,, chest exray, nothing changed from last time,, had acident this morning, just ran out of me,, I told them the pain was going down my legs, feel on deaf ears,, begged to be admitted to see what is going on,, but they wouldnt,, so now I cant eat,, doubled over in pain,, and they just refuse to treat anything, so tired of it
  Blowing uge clots of blood out of my sinuses,, salivary glands are not wokring at all now,, just some sort of white goo,, tonugue is black, throat feels closed,, but nothng ever shows up,, its just getting worse and noone cares,, no one,,

jazzlover

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Re: Another day at hospital
« Reply #1 on: September 04, 2011, 09:24:56 AM »
VERY sorry to hear!!! Have you tried something like Diflucan for possible candida/yeast? Black tongue and the runs sure sound like it.

Doctors know nothing these days.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

really?

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Re: Another day at hospital
« Reply #2 on: September 04, 2011, 09:42:06 AM »
I just dont understnad it,, its not like I am not clear in whats going on,, I told them the pain is running down my legs,, spitting out cotton balls of goo,, how can everything be normal when its not,, they just send you on your way,, in my case,, doubled over,, staggering, gagging,, I dnt understna it at all,, only thing they said was theres nothing acute,, all bloodwork came back normal,, I know dam well this is killing me whatever it is,, My son is home,, and he can see it,, I think he is going to take me back today or in the morning,, when they see the stuff pouring out of me,, and see inside my mouth, and hear me screaming,, they will have to do something,, my wife says I look like ilm crazy now,, yes im crazy from dying this slw horrible death,, they just wont listen,, sorry,,

gurs

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Re: Another day at hospital
« Reply #3 on: September 04, 2011, 10:08:23 AM »
Really,

Werent you on some antibiotics recentley? you might have some severe systemic yeast going on. Ive been very ill-alot like you
for the last 4 years. It all started when my yeast got out of control. They wont test, for that or cant, or dont even bother. Most doc's arent
aware of how ill that can make you. They wont acknowledge it as a problem.

I would demand a course of diflucan for at least 2 months to see if it helps you at all. What have you got to lose?

Can you go to another hospital too? in your area? maybe another doc can help..it only takes 1.

Hang in there buddy..right there with you.

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

rnathans

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Re: Another day at hospital
« Reply #4 on: September 04, 2011, 10:35:55 AM »
I know you are at the end of your rope and very frustrated with physicians but I think you might have more success with getting admitted and having your problems addressed by working with your regular specialists. The ER docs are doing what ER docs do. They are not specialists who can address the neuro, ENT and GI issues you have. Have your son try to advocate for you with your regular docs.
So sorry you are suffering so.

really?

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Re: Another day at hospital
« Reply #5 on: September 04, 2011, 10:37:45 AM »
I know you are at the end of your rope and very frustrated with physicians but I think you might have more success with getting admitted and having your problems addressed by working with your regular specialists. The ER docs are doing what ER docs do. They are not specialists who can address the neuro, ENT and GI issues you have. Have your son try to advocate for you with your regular docs.
So sorry you are suffering so.
I was at the university hospital,, its getting worse by the minute,, my guts feel like ther being squeezed apart,, my mouth is a mess,, I know antis turn teh tongue black, but with my salivary glands all messed up,, i;m just making some osrt of white stuff thats choking me,, I canbarely walk, legs burn so bad,,   we trieed that,, my wife begged them to admit me,, but they just wont,, now today I am chilled,, and just so sick,, the blood clots coming out of my sinuses feel like my face is swollen,, its just one big mess,,

sewandsew

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Re: Another day at hospital
« Reply #6 on: September 04, 2011, 11:03:06 AM »
I, too, worry about you being in the hands of ER docs.  They are just "bandaid" focused and see chronic illnesses as not being an emergency.  Does you GP know how you have been failing in the past couple weeks?  If not, he's the next one to call.   Maybe your son could call and do some demanding.

We are all here for you and hoping for help-.  Only wish we could do something for you as we feel helpless for you.



anita

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Re: Another day at hospital
« Reply #7 on: September 04, 2011, 11:12:46 AM »
Are you still taking the antibiotics?  Have you asked about IV antibiotics.  It's the ENT and GP's job to admit you, not the ER for chronic problems.   The ENT is not going to address the neuro problems and vise versa, so you have to get your GP coordinate your care with the appropriate specialist.  And he is the one you need to beg to admit you, not the ER.  You need a new GP if he is not willing to over see your care to cover all systems.
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

gurs

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Re: Another day at hospital
« Reply #8 on: September 04, 2011, 11:34:43 AM »
Doesnt yellow usually indicate infection? white can be yeast..have they done cultures on the white stuff?

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

jazzlover

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Re: Another day at hospital
« Reply #9 on: September 04, 2011, 12:13:28 PM »
Yeast can kill too. Those doctors need to wake up!
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, recovered from Lyme disease

gurs

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Re: Another day at hospital
« Reply #10 on: September 04, 2011, 12:42:00 PM »
I couldnt swallow at all...the pain and burning was beyond compare. Doc's kept saying it was 'Acid reflux" or dryness from the SS.
I kept telling my GI doc it was prob yeast..he said "NO"..in the meantime, got sicker and sicker and they finally did an Upper endoscopy and low/behold..tons of yeast in my esophagues, which can be life-threatening. He was in shock. I had to stay on diflucan for 3 months.
He said normally people with AIDS only get it this bad, but I dont have AIDS, but I do have hardly no t-cells and selective immune deficiency, like AIDS. I now have to stay on diflucan 100mg everyday..I still have it though in places.

The sinuses are known to harbor yeast too! Yeast also makes everything super-duper dried out.

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

quietdynamics

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Re: Another day at hospital
« Reply #11 on: September 04, 2011, 12:45:42 PM »
Is there any chance you can go to a different ER?  One time I refused to sign the release form. I didn't get admitted, but at least they did call a specialist. Who I saw the next day.

I had bowel problems with gurgling, and accidents. I am now on Medication daily (4x's) and Metamucil after a colonoscopy. The specialist explained that Metamucil can act to relieve constipation or bind.  I use hydrogen peroxide for mouthwash.

I would eat old fashioned oatmeal (not instant,no simple sugars on it) with Greek yogurt or pineapple in natural juice....to ease your stomach, intestines.
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

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Daisy1234

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Re: Another day at hospital
« Reply #12 on: September 04, 2011, 01:36:25 PM »
Really/Navydad:

I agree with what some of the others on this thread are saying.  I don't think the ER is the way to go for you to get the treatment you need and deserve.  I've gone to the ER before and recently, in much distress and didn't get any proper treatment at all.  I have a story from just this May.  In fact when I arrived at the ER I was still able to walk although in pain but could still move my feet forward. 

However 7 long ER hours later and pretty much left to my own devices for the bulk of the time in the ER on a guerney in the hallway, I had only seen one resident and eventually saw an Internist who didn't have any idea what was going on with me.  I was eventually just told to go home and see my Rheumy as the internist didn't know what was going on at all.  For those long 7 hours, I just kept getting worse and worse and even though I was crying and screaming in pain, no one came over to see me.  Not a nurse, orderly and certainly not a doctor.  This ER does not allow anyone to accompany the patients, so I was there all alone, my husband was forced to stay in the waiting room and there was security to keep anyone not authorized from coming into the ER itself.   When I was finally discharged, I had to be taken out in a wheelchair (it turned out to be because I was having a major sarcoidosis flare which no one there seemed to have ever encountered before) and as the flare progressed I could no longer walk or stand.  Even though I was also still crying and screaming in pain one of the supervisor nurses in the ER had the nerve to ask me as I was being wheeled out of the ER by my husband if I felt all better now???

I had to wait about 5 days to get in to see my Rheumy but with the help of my family doctor, my Rheumy and my Respirologist, I finally got the the treatment I needed so badly.  The Rheumy told me what was going on with me within minutes of seeing me.  My family doctor and my respirologist admitted me to the hospital and all 3 doctors coordinated my treatment there.  I'm now of the opinion  that unless one is manifesting some pretty standard and understandable symptoms, the ER is not the place to go for a comprehensive or complicated approach as seems to be the case with you. 

Please try to get one of your specialists or your PCP to admit you to hospital under their care for proper treatment and comprehensive testing.  Maybe then you get the help you so desperately need.
You have my complete sympathy and concern.

Daisy


sunnybunny

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Re: Another day at hospital
« Reply #13 on: September 04, 2011, 01:38:57 PM »
here's a drastic thought...

have your wife type a nice letter listing EVERY one of your symptoms
and misery you are going through.

and then say "now heres what i am suffering through. All of you are my Doctors. Now start talking to eachother and coordinating before I die, or before I start suing one of you"

kind of viscious sounding i know, but you sound at the end of your rope :-(

this would have to get somebodies attention.
Just try to keep the verbage clean, and matter-of-fact...but stern and clear.
It's the docs and specialists that need to act, true the ER approaches things different unfortunately.

hang in there  ;)

Carolina

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Re: Another day at hospital
« Reply #14 on: September 04, 2011, 02:16:52 PM »
Make an appointment with the ENT that did the surgery.

Hugs

Elaine
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