Author Topic: Hello - i'm new to SjS  (Read 12471 times)

Deimos

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Re: Hello - i'm new to SjS
« Reply #15 on: June 13, 2011, 12:44:10 PM »
Melinda - thank you for your feedback.

I hope you don't mind me suggesting that it might be a good idea to find a counselor who deals with chronic illness to help you deal with these worries that are tormenting you. Just a few talks with someone might really help. I think the mental part of this is sometimes the hardest.
I'm eager to listen to all the ideas you have and I'm already aware that I may need a few talks with specialist.

Actually, more young couples should take "life situations" into account, and many times they don't. Do you know what I mean?  Such as, they are both working when they buy a house, maybe one child or no children, no health problems and they take a large loan for as much as they can afford.
I know exactly what you mean - taking as high loan as the bank gives is stupid to me. A lot off ppl has done so not taking under consideration that interest rates may go up - in Poland a lot of ppl took loan in CHF because of low interest rates in Switzerland not taking under consideration exchange rate risk. PLN became weaker in relation to CHF which drives monthly instalments much higher - PLN/CHF rate was at 2,00 (3 years ago), and the exchange rate has risen to 3,30 (65%). A lot of ppl have diffculties in paying of the debt now.

I would like to base my decisions regarding mortgage on a good grounds. Has anyone of you seen some statistical data on how long in average ppl are able to work after SjS diagnosis?
I have read somewhere that it takes in average 8-10 years to develop full blown symptoms. Does anyone of you have access to this kind of research?
I understand that noone can say for sure how the sickness will develop but some statistical research is the best basis i can think of - I cannot base my decisions on pure belive that the sickness won't progress.
« Last Edit: June 13, 2011, 01:41:31 PM by Deimos »

buddybelle

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Re: Hello - i'm new to SjS
« Reply #16 on: June 13, 2011, 01:59:39 PM »
Hi:
I am by no means an expert on real estate. However, if you live in the US real estate can be a risky investment. Housing prices continue to decline and it was just reported today that the major banks have a growing back log of properties that are having to be "short sales." As these properties are dumped on the market, housing prices are expected to go down even more.

That being said, if you have the money to purchase and feel comfortable that you can remain in the home until prices rebound then home ownership is a feasible option.

I think the days of purchasing a home as an investment are gone for a while.

Good luck,
Buddybelle

Joe S.

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Re: Hello - i'm new to SjS
« Reply #17 on: June 13, 2011, 02:42:49 PM »
I would not say anything about Sjogren's and do the best you can to work the 7 years and get it paid off. If possible before the end of the 7 years.
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nancylee

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Re: Hello - i'm new to SjS
« Reply #18 on: June 13, 2011, 04:14:56 PM »
My advise is to try to not let this change your life. Buy a beautiful house. Plan wonderful vacations. Have more babies, Live live live!!!!

nancylee

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Re: Hello - i'm new to SjS
« Reply #19 on: June 13, 2011, 04:18:56 PM »
ps  I am cutting off all my hair tomorrow. I am tired of worrying about how much hair I am losing...


buddybelle

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Re: Hello - i'm new to SjS
« Reply #20 on: June 13, 2011, 05:46:42 PM »
Hi again:

It is difficult to balance living for today with planning for tomorrow. Each person has to find their own comfort level.

I have tended to be cautious in making my life decision because I am more security oriented. However, as I get older I am getting more inclined to live for the moment.

Deimos

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Re: Hello - i'm new to SjS
« Reply #21 on: June 14, 2011, 01:11:15 AM »
I am by no means an expert on real estate. However, if you live in the US real estate can be a risky investment. Housing prices continue to decline and it was just reported today that the major banks have a growing back log of properties that are having to be "short sales." As these properties are dumped on the market, housing prices are expected to go down even more.

In Poland the prices dropped when the global crisis started - but generally as we are developing country there is long-term tendency for the prices to go up. The flat I bought in 2006 has gained no less than 40% in value up till now. Current prices seem quite reasonable so I consider the investment in real estate in Poland as safe.
« Last Edit: June 14, 2011, 01:13:13 AM by Deimos »

Joe S.

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Re: Hello - i'm new to SjS
« Reply #22 on: June 14, 2011, 03:52:29 AM »
In the US our prices have dropped by about 50% or a little more. A report from Argentina suggest that there are three waves to the foreclosure cycle as the bankers make obscene profits and take over the national currency. The last wave in the foreclosure cycle is scheduled for December of 2011. 2012 is scheduled for more "food shortages".Things will turn around and get better starting in 2013 if there is no more run-away greed.

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Meld256

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Re: Hello - i'm new to SjS
« Reply #23 on: June 14, 2011, 11:29:13 AM »
I'm glad the housing market is so much more stable there in Poland than here in the US.  So, that seems to be one big concern you don't need to deal with. Good!

Now, your health concern question: I don't know of any statistics out there (and I am no expert in any way) that state how any particular person's Sjogren's will progress in any length of time.  I can say that it seems that for most with very mild symptoms like you, it would be a very slow process, meaning many years.

Any stats I've seen are for people who aren't diagnosed until they see severe symptoms like when I was diagnosed; fatigue, joint pain, eye and mouth/teeth issues, not able to function normally.  And that says that a third of those will stay the same, a third decline, and a third go into remission.  But part of the frustrating part of this is that we do not know who that will happen to.
For you, it seems that you would have never known unless you had the blood work. So this is a very, very slowly progressing thing. And you may NEVER have any serious problems.

You have a lot going on! A new diagnosis, a new child, and needing to buy a new home. I think my head would be spinning! 
I would suggest to give yourself some time to deal with the diagnosis; it takes all of us a long while.  It's a process we need to allow ourselves time with...

I don't think anyone can advise you about buying the house. It's really up to you and your wife. I can tell you are a responsible and intelligent person. You are looking at all avenues, and that's good. 
Please don't "overthink" this to the point you cannot enjoy all the good things in your life. I'm assuming you have a good career, a wife, a new child and you are able to buy a new home. You seem to have many blessings. I wish you well in your decision and wish you happiness and peace of mind.
Take care,
Melinda

Meld256

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Re: Hello - i'm new to SjS
« Reply #24 on: June 14, 2011, 01:23:31 PM »
Looking at my post again, I certainly didn't mean to sound like a "send-off" .  Keep us posted, ok?  You can bring all concerns here anytime, about anything.  We are here to support and encourage one another.  ;)

You may want to start a new topic if you have more questions, and that way you may get more responses. This is a very helpful group; I know they have made a huge positive difference to me.

buddybelle

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Re: Hello - i'm new to SjS
« Reply #25 on: June 15, 2011, 10:29:41 AM »
Deimos:

Patze

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Re: Hello - i'm new to SjS
« Reply #26 on: June 16, 2011, 07:29:16 AM »
Hi Diemos,

Let me also welcome you to the SJS World and family!  I too hope that you find the board as wonderful and informative as I have!

Take care of yourself -

Patze
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irish

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Re: Hello - i'm new to SjS
« Reply #27 on: June 16, 2011, 10:00:30 PM »
Deimos, I am the old grandma and I am quit slow to spend money. I have to think about things and run a calculator on things to see what is the best deal in the long run.

If it was me, knowing what you know about your health, I would buy a house that is older but still in good shape. I would try to keep my mortgage as low as possible. This sjogrens is really hard to predict and no one ever really knows what the future holds. Also, no one knows what the future holds anyway!!!

The bottom line is you want to live comfortably and be able to support your wife and child without going overboard. I wouldmake sure to budget my income and save money every month for the future. It may be that you wife will be working after the kid/kids are in school and that is something that would help.

In the US there are many couples who are now having the dad stay home and be a house husband. This has come about due to the high unemployment rate. Also, there are many women who are making more money than their husbands and it is more logical to have mom work full time and have dad stay home. If your health would happen to progress to the point that you can't work and you would have to stay home this lifestyle might appeal to you. You would enjoy it much better after the children were able to go potty by themselves. ::)

I hope that you can find a great house that fits your needs. Joe is right about not buying the first one. Take your time cause often the right one is just waiting down the road. You will know it when you see it. Good luck. Irish ;D

Jen_in_GA

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Re: Hello - i'm new to SjS
« Reply #28 on: July 09, 2011, 06:54:59 AM »
Just dropping by to say HI! Welcome to the group.  :) I have family that lives in Poland. Hopefully I'll get to go visit them one day.

Deimos

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Re: Hello - i'm new to SjS
« Reply #29 on: December 05, 2011, 01:08:07 AM »
   Hello,
Last Friday I started taking budenofalk. My current diagnosis is AIH type 1 + secondary SjS.
I have done fibroscan in order to check the stage of fibrosis. It showed f0-f1 fibrosis - and the doc said I had my liver is in quite a good shape. It seems things have been caught early. We are going to check my ALT/AST  levels in 3-4 weeks.
 
In November I promised my wife that I would finally get things right with doctors.
I was afraid of my blood results after 7 months of my break from doctors. I have done tests on Thurdsday: ALT was 83, AST 43, blood morfology - perfect. I'm happy the results did not go sky-high (I was afraid of it as there was no treatment, some alcohol and antibiotics).
My doc puts everyone on budenofalk - he seems to be very patient-oriented, friendly and he has an opinion of a good specialist.

AIH forum contains defenitely the largest number of "great news/remission" posts. Therefore I hope my AIH can be well controlled and I will be in remission soon.

I feel really well, I'm so full of energy. I have sometimes light symptoms form my digestive tract.

I  hope that I'm a "light case" and the pills will really help to get all the results within proper ranges and will lead to long-time remission.
« Last Edit: December 05, 2011, 02:35:24 AM by Deimos »