If you're interested in collecting some raw data from us here on the site, I'm sure many people here would give you all the lab values they know and complete lists of symptoms and probably medication lists as well. f you could post a questin asking for exactly what you need so that you don't get swamped with stuff you don't need, I'm sure many will respond.
We pray everday for more research, we want to be understood and to understand, we want better treatments. If this is your field of research, the n God Bless you.
By the way, I love Baklava, I make it home when I've got enough energy to stand he hour it takes to set it up, make the honey syrup, an hour baking etc
I also make Tabouli Salad (sp?) and stuffed grape leaves. I live way up in the Georgia mountains so getting the supplies I need has been tough. Some days I find myself wishing for a Gyro more then anything in the whole world. I don't miss Florida, but I sure miss the Greek food in Clearwater Beach.
My symptoms are very Lupus like. Major non-erosive arthritis, swelling and redness in hands and feet. Dry eyes, mouth and genital areas. Hives, Mylar rash on face, fatigue, fatigue, fatigue, migraine headaches,possible gastroparesis, hair loss, neuropathy, brain fog,several bouts of costochondritis, and just a constant feeling of ill health.
My Ana was positive 1:1280, my F was 65, my SSA was 8 and my SSB was 16. I've never had a high sed rate and all my other labs are within normal range.
I think I read somewhere on here that those with positive SSB often have the sunsensitivity. I am so sun sensitive that 20 minutes in direct sun, will cause a major flare up within 2 days.
Feel free to ask anything else. Always glad to help research in this field.
Peace Be With You and many prayers for you Mother.