Author Topic: Joints in fingers and toes  (Read 4958 times)

mom16

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Joints in fingers and toes
« on: November 13, 2010, 06:12:11 PM »
Hi Everyone,

I'm wondering if anyone else has problems with pain in the joints in their fingers and toes. It used to be I would wake up and my fingers were stiff. Now they seem to swell some during the night and then both my fingers and toes hurt during the day. Is this something that is likely to get worse?

Karen
Primary SJS with small fiber neuropathy.  Plaquenil, Neurontin,  and Cymbalta
Female-46

eyeamdry

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Re: Joints in fingers and toes
« Reply #1 on: November 13, 2010, 06:29:25 PM »
Hi Karen-

This sounds familiar to Sjogrens!  Do you notice the pain get better after getting up and moving a bit?  I also have this and my hands are always swollen.  I can't wear my wedding ring any more and refuse to have it made bigger.  I'm wearing a cheapie gold band we bought in a Vegas pawn shop.

Are you on any meds for Sjs?  Plaquenil or methotrexate?  I do sometimes use ointment on my hands although I always tend to get it in my eyes afterward.  My doc gave me a Voltaren Gel that is worth trying. I believe it's by RX only.  Hope things get better for you.  Lucy

P.S. Try a heating pad OVER your hands sometime and see if the heat helps.  I do this also.
Lucy
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Kerrikins

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Re: Joints in fingers and toes
« Reply #2 on: November 13, 2010, 06:42:16 PM »
Pain in my finger and toe joints is one of my worst symptoms! One of the most painful, anyway. I believe that arthritis in the extremities can be pretty common with SJS. I've been on prednisone and plaquenil for a while now so it's not as bad as it was, but it the arthritis in those areas still makes it's presence known every day. I can't say that it gets worse for everyone, but it does seem to have gotten worse over time for me. I'm 33 now so I kind of worry about how bad it may end up getting. In the beginning I would just get a twinge now and then but it became daily and relentless. Another thing is, it used to be just in the fingers and toes but now the pain is also throughout the bones in my hands and feet, and less often, wrists and ankles. My feet and wrists are stiff in the morning but I had that problem even before the joint pain, when I didn't know anything was wrong with me. As for swelling, before the prednisone I had a lot of inflammation to where it hurt to move my hands but now it's at a level I can live with outside of flares. Are you on any meds? Really my joint pain feels like a walk in the park compared to the way it was before I got treatment. I still get flares and daily random pains but it isn't relentless anymore. Best wishes,
Kerrikins
« Last Edit: November 13, 2010, 06:44:05 PM by Kerrikins »

mom16

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Re: Joints in fingers and toes
« Reply #3 on: November 13, 2010, 07:02:52 PM »
Thanks for your replies, yes I do take plaquenil.  I guess I just assemed that that would take care of it, but now that the pain is more pronounced and constant through the day I'm not so sure. In the morning moving around does bring some relief but now I seem to be feeling worse as the day goes on. At times it feels like a bar pushing down hard on my toes.  That along with nerve pain...ouch!
« Last Edit: November 13, 2010, 07:16:59 PM by mom16 »
Primary SJS with small fiber neuropathy.  Plaquenil, Neurontin,  and Cymbalta
Female-46

mom16

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Re: Joints in fingers and toes
« Reply #4 on: November 13, 2010, 07:58:16 PM »
Is it considered arthritis?  In that case I wonder if some of the over the counter medications would work?
Is Plaquenil the main thing that works?

Karen
« Last Edit: November 13, 2010, 08:15:25 PM by mom16 »
Primary SJS with small fiber neuropathy.  Plaquenil, Neurontin,  and Cymbalta
Female-46

Kerrikins

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Re: Joints in fingers and toes
« Reply #5 on: November 13, 2010, 08:20:23 PM »
Over the counter NSAIDS may help the pain, Ive heard of a lot of other people taking them. I'm allergic though and cannot, i take prednisone daily  instead. Take care,
Kerrikins

navydad

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Re: Joints in fingers and toes
« Reply #6 on: November 15, 2010, 09:53:37 AM »
first it was the middle finger on my right hand that locked,, then it wasthe middle and finger next to my little finger on my left hand that locked,, now they lock all the time,, especially at night,, its painfull and its hard to get them back straight,, now the pain is in th4e bones or joints in the wrists,, and along with the finger tips numb,, its maddening, I told my GP about it time and time again,, he told me I was dehydrated,, and gave me muscle relaxers, now we all know thats not it,, what it is I have no idea, my hands are about useless,, I have to keep my arms close to my side,, I try to hold them up some and they just hurt and get dragged down back to my side,, I dont understand,, I really dont

Scottietottie

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Re: Joints in fingers and toes
« Reply #7 on: November 15, 2010, 10:16:54 AM »
Hi

If you go to About.com and look up arthritis there are about 100 different kinds of it. Inflamed joints, for whatever reason, is arthritis. 'arth' = joint 'ritis' = inflammation. I would think that sore fingers and toies fall into that definition.

Take care - Scottie  :)
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DragonflyC

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Re: Joints in fingers and toes
« Reply #8 on: November 15, 2010, 10:22:38 AM »
You could be having a flare.  Are you able to tolerate prednisone?  It might be worth trying a few weeks on a low dose to bring the flare under control if you can. 

I recently had a bad flare that expressed itself mainly as arthritis, and meds really helped.  My joints are always a little stiff, but now that I've been treated they don't hurt anymore. 
SJS, Hashimoto's, Raynaud's
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navydad

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Re: Joints in fingers and toes
« Reply #9 on: November 15, 2010, 10:40:32 AM »
I dont know if its the joints or the tendons,, I guess its one and the same,, something is messed up

inga

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Re: Joints in fingers and toes
« Reply #10 on: November 15, 2010, 10:49:16 AM »
Lupus in particular affects the small joints, fingers, feet and wrists.

I had to have a thumb arthroplasty.

LizM

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Re: Joints in fingers and toes
« Reply #11 on: November 15, 2010, 12:47:52 PM »
i always ache in my fingers, feet and wrists.  Also, my right hip is very painful.  I started on Plaquenil in September, but not sure if I feel any better or not.

Liz

inga

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Re: Joints in fingers and toes
« Reply #12 on: November 15, 2010, 12:56:22 PM »
Liz, that hip could be a trochanteric bursitis.

I think that tendonitis and bursitis is underappreciated in the AI diseases.....it is very prevalent, and very disabling.

Also there is a kind of erosive arthritis of the small joints that is also very painful disabling.  (Which is why I had this extensive surgery.)

I have all of these issues, and I don't know why the docs do not really mention these more.
« Last Edit: November 15, 2010, 01:01:10 PM by inga »

warmwaters

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Re: Joints in fingers and toes
« Reply #13 on: November 15, 2010, 06:28:30 PM »
Fingers and wrists, and foot bones. Oh, yeah.

No swelling, just pain. It comes and goes. Sometimes I put a heating pad or ice directly on them, which helps some.

Using them doesn't help at all, when they are hurting, they are just hurting.
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DSPeter

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Re: Joints in fingers and toes
« Reply #14 on: November 15, 2010, 08:37:15 PM »
NavyDad,

My middle finger on my left hand had been locking and painful for several years.  I finally went to a hand specialist and he dx as trigger finger.  He gave me a cortisone shot in the inside of my hand near the knuckle area.  It helped for a few monthes so I returned to dr.  He suggested that I have surgery to have the tendon released.  I had the surgery and my finger does not lock down anymore and the pain is gone.  I am now getting the same symptoms in my right middle finger.  Only drawback to the surgery, I now have dupetrens (sp?).  Dr assured me that it is not related to my surgery but I will wait until right hand is worse before I go in to Dr.