Author Topic: Blotches on skin (look like bruises); anyone else?  (Read 4342 times)

amberjolie1

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Blotches on skin (look like bruises); anyone else?
« on: November 11, 2010, 06:12:13 PM »
I went to my GP today to show him what looked like bruising on my arm (also have on my elbows, and down the backs of my legs).  I originally thought maybe it was due to the Plaquenil, which I stopped in the summer because it wasn't helping anyway, but it got worse.  Also went off Salagen last week to see if it had to do with that; again, no better.  My doc thought it was erythema multiforme, some sort of skin pigmentation problem that occurs with connective tissue diseases.  And that there's nothing really to be done about it.  Which kind of sucks because I really didn't want to walk around with purply blotches all over my body; was hoping they could do something for it.

I was just wondering if anyone here had that sort of thing too.  He asked me what my diagnosis had been with my rheumy, who is leaning toward Primary Sjogren's, although he said there's still a possibility for CREST scleroderma.  Then he wrote down Sjogren's/CREST, and then ordered some more bloodwork to see what was going on (last set had been a year ago).  I'm wondering if he's thinking it might be more like CREST.  Anyone here with Primary Sjogren's that have this sort of thing?
« Last Edit: November 12, 2010, 07:23:45 AM by amberjolie1 »

amberjolie1

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #1 on: November 12, 2010, 07:24:07 AM »
Bump.

marilyn143

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Re: Erythema multiforme, anyone?
« Reply #2 on: November 12, 2010, 07:26:06 AM »
Bruises and more bruises I can never get rid of them.seems like my legs especially have tons of little bruises to go with all the red spolches I always have. not too darn pretty! grrr i wish I could be more helpful.

Babs659

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #3 on: November 12, 2010, 07:45:33 AM »
I do not have it, but I have heard of it with Sjs.  A woman I work with has rheumatoid arthritis and she gets purpura really bad.  It is a form of vasculitis.  I don't know if there is any treatment for it. ???

Patze

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #4 on: November 12, 2010, 08:57:47 AM »
Hi Amberjolie,

I too have that, and got it once so bad up and down my legs that it even raised the eye brows of the rheumy.  Now he didn't mention what it was, but he's concerned that I might also have vasculitis (also have other symptoms).

For years I would get "bruises" and I'd not remember ever bumping into things and stuff like that (the family was convinced that I was pretty clumsy, but I wasn't really (bump into the usual stuff until I got glasses in my teens, then even that stopped)).

Now a days, it can be a "patch" here and there, while other times it would be up and down my legs like someone was a dark painting.  I do know that the warmer I get, the more the "patches" appear.

Have you shone the patches to your rheumy yet?

I'm sorry but I can't speak of CREST, and I do hope that you'll get a definitive answer soon.  And hopefully another more knowledgeable member will stop by soon with some more answers for you.

Take care of yourself, okay? 

Patze
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amberjolie1

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #5 on: November 12, 2010, 09:22:21 AM »
Thanks for the replies!

I showed the rheumy my arm but not my legs.  He didn't seem to have any useful info about it, but that it could have been caused by the Plaquenil (but that was about 3 months ago I saw him, and it's definitely not from the Plaquenil now).  I don't see him again for another year.

My GP pretty much figured it had to do with the SJS and said there wasn't anything that could be done with it.  Fun.

I've had these patches since about June-ish, and nothing's gotten any better, they just get steadily worse over time.  And nothing's seemed to have changed since the weather got a bit cooler, so I don't think it's from the heat.

One good thing, though, is since I can be confident it's not from the Salagen, I can start it up again.  My mouth was feeling extra dry without it. :)

Patze

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #6 on: November 12, 2010, 09:37:31 AM »
That's interesting Amberjolie that your doctor thinks the "bruising" is connected with SJS.

I'm glad that you'll be able to restart the Salagen, having a dry mouth is no fun.

Take care of yourself -

Patze
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Scottietottie

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #7 on: November 12, 2010, 10:19:27 AM »
Hi  :)

What pain killers are you on?  I got unexplained bruising and was told not to take NSAIDs any more. I've had a lot less bruising since I have not been on them. This is annoying because NSAIds have always been the most effective for pain control. Tramadol and paracetamol take the edge off but I miss Naproxen or Diclofenac.

Take care - Scottie  :)
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amberjolie1

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #8 on: November 12, 2010, 12:09:43 PM »
Scottie - I've been very blessed so far to not need painkillers.  So I know it isn't that.  And I've ruled out the meds I am taking, so I don't think it's a med thing.

Kamie - I'll look into that.  I'm not sure if I can do that myself or if I have to ask my GP about it. Don't know where you're from, but I'm in Canada, and I'm pretty sure I can't see any specialist-type doctors until I get referred by my GP.  But I'll ask him about it when he gives me the results of my bloodwork (he made it sound like he'd talk to me about the results, regardless of what they were, which is excellent - normally you don't hear back if there isn't anything notable).  Or maybe a Research Dermatologist works under different guidelines than a regular dermatologist.  We have a research medical school pretty close by, so I could start there.

Thanks again for all the info everyone!

becbec00

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #9 on: November 12, 2010, 04:35:04 PM »
I have had these what I describe as fingerprint bruises all over. I have gotten them since before I was dx and started on any meds so if they are the same thing as everyone is describing I don't think they are related to any meds.

Do they hurt like bruises? I would be interested in finding out if they are the same.

Becky

kwolfsheimer

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #10 on: November 12, 2010, 05:35:09 PM »
I bruise really easily and have them all over. I can run a bit anemic and I don't think that helps.

But I have noticed since I have gotten worse with the auto-immune stuff that I have been getting the purple veiny blotches everywhere.  On my face, my legs.  I thought it might just be normal aging, but now that I've seen people with Rheumatoid arthritis, I'm beginning to wonder.  I thought I had Primary Sjogrens' based on my lab results, but I have markers and symptoms for all the auto-immune.  All my docs hint at "other" issues. It's like a big mystery. I know that these purple splotches can be associated with inflammatory issues.

It's a good thing that you don't need the pain meds.  That's a blessing and I will hope that you a stay off of them!!


Patze

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #11 on: November 12, 2010, 05:52:47 PM »
Hi Becky,

I've gotten them since I was a kid (didn't take any meds other than an occasional aspirin or such), for more than forty years now and I've only really taken any kind of long term meds is when this mess started about six years ago so mine isn't med induced either (they don't hurt either).

Sometimes they are small like yours, and sometimes they are large (think fist size); they are awful to look at to be sure.

Take care of yourself -

Patze
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amberjolie1

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #12 on: November 13, 2010, 12:01:05 PM »
Mine don't hurt either.  Except the backs of my legs which are big purply blotches, feel a bit like a sunburn if I have to scratch them.

Pegasus47

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #13 on: November 16, 2010, 05:08:33 PM »
Hi:

I do get blotches on my lower legs, they start out like a blister- itches, feels a bit hot, then turns purple.  Steroid cream seems to calm them down.  If I go on low dose Prednisone, no blotches.

I was told this is just another symptom of autoimmune.

Pegasus

dawntildusk

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Re: Blotches on skin (look like bruises); anyone else?
« Reply #14 on: November 17, 2010, 02:24:14 PM »
Hi there I have primary sjogrens as dx by my rheumy through blood tests showing anti ro and anti  la and also have all the  crest symptoms too .Over the last 4 years the Doctor has had me on plaquenil which defintely helped with the extreme exhaustion .I get the brusing too but think it must be down to the meds .I have a some dark patches on my face which I am sure is where I have been in the sun and it has affected my skin really badly even for a short time while on holiday .It is frustrating as there are so many different symptoms I also have reduced lung function and bronchiatasis .For me it is the dry mouth and achy joints .Though now my appointments are yearly I find it is hardly worth contacting the rheumy as the next step is methotrexate I believe if the plaquenil doesn't keep things under control . I wondered how many people with sjs also get the pain in the elbow joints on the inside of each elbow joint there are spots of really painful sites .