Hi everyone, I've been having episodes of shortness of breath on and off for over a month. It used to only be occasionally but now I'm lucky if I can skip a day without having it. I can be busy or relaxing when it occurs, doesn't matter. When it happens I just feel so tired. Sometimes i have chest pain with it but I get that a lot so its not really abnormal for me.
I went to my GP today, chest X-ray was clear. Dr says if it keeps up I'll get a pulmonary function test but today he just said he had no idea and offered no other tests. I called my rheumy and he said SJS doesn't cause chest pain (right!) and that shortness of breath only comes from longterm disease. Does anyone have an idea of what this could be? I'm 33 years old and have only been seriously suffering for about a year, but I was sick 6 yrs before being dx. To me at least, 33 seems young to be having random shortness of breath, so I'm wondering if it's the SJS after all. Is this a common thing? I'm worried that it could be here to stay and it is interfering with my life, not to mention scary!
I've had bloodwork done for my chest pain and it didn't show anything, and im on prednisone and plaquenil. I'm not feeling well now, having a bad arthritis flare with inflammation and fatigue, but I wasn't flaring when it first started. Thanks for any input. If I could figure out what it may be I'll suggest it to the doctor.