Hi Navydad,
Good to see your post. I know we have all been worried about you. I just recently joined the board, but have been a long-time lurker, so I am familiar with your situation. I agree that you need to get yourself to the ER ASAP. The symptoms you are experiencing, esp. with your bowels, sound serious.
I live near Pittsburgh and my rheumatologist is at West Penn. I'm not sure if it's permitted to mention names here on the board, so PM me if you would like her name. She is very good and has addressed all of my concerns.
Please take care and keep us updated.
Cathy