Author Topic: Vitamin D Deficiency  (Read 24053 times)

inga

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Re: Vitamin D Deficiency
« Reply #30 on: October 18, 2010, 05:15:03 PM »
Some people have metabolic disease that impedes absorption of Vitamin D, which is really cholecalciferol.

No those IV osteoporosis drugs will not fix this problem, and you could not pay me to take those.  Osteomalacia and osteoporosis are not the same, altho you can have both.  Osteomalacia is a lack of mineral content in bone, making them prone to stress fractures....and RIB pain is part of it.  Osteoporosis is brittle bones.  Either way, I am inclined not to take any of the osteoporosis drugs.  They don't know enough about bone metabolism yet to be tinkering long term with these things.

Also, medications can cause mineral loss.  Sometimes it is not as simple as just not enough Vit. D, it is a complex of issues.  Acid /base balance of the blood plays into it too.  dRTA results in poor Vit. D metabolism.

Sunshine is a good way to replace Vit D, but, in cold climates it is hard to get enough.  I am outdoors a lot, with NO sunscreen and still got low Vit D this year.  I raise organic eggs, so, we shall see if that makes a difference....with having dRTA, I doubt it, but I will do what I can to stop this, as it is about way more than bone.

Make sure you are supplementing with D3.

Pegasus47

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Re: Vitamin D Deficiency
« Reply #31 on: October 19, 2010, 04:52:46 PM »
Hi all:

I have been taking Vit D capsules for years- mostly 2000 IU/day.  My blood level is at 83. 

When I feel a cold coming on- I go to 50,000IU/day until symptoms are gone.  Then back down to 2000IU/day.

We don't get enough sunshine and Vit. D is critical for immune defense.

Go for it

Pegasus

irish

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Re: Vitamin D Deficiency
« Reply #32 on: October 19, 2010, 09:23:30 PM »
I am concerned about taking too much vitamin D when all is said and done. It is oil soluble so that means that it stays in our system and is not excreted like water soluble vitamins. Anyone have any research, information about this aspect. Irish ;D

inga

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Re: Vitamin D Deficiency
« Reply #33 on: October 20, 2010, 07:23:22 AM »
One can take too much and this was always my concern. 

I figured with working outdoors for half the year, I got enough D.  I was really shocked when they did my D this year.  From now on, I will have it done twice per year, at least.  It is so darn dark and cold here for 6 months per year....not to mention, I wonder if my skin absorbs it as it should....I wonder if my GI system absorbs it too.  I know with the acidosis, it isn't absorbed as well.

I always thought the D thing was hype, but no one could explain the bone pain, which is slowly diminishing now....we will see.

I need a bone scan still....I want a base line and to see if there is progress.

But yes, one can take too much D and blood level needs to be monitored.  There are two D tests, and the '25' is the one to watch, the '1,25' one is meaningless from what I read.  My '25' one is down to 23, and 50 is the recommended cut off according to resources.  Low D is associated with bone fractures, and I have had several, including a non-union, which took a year and a bone stimulator to 'heal'...when I went  in for a scan to see progress, they told me I had a new one!  Also it is associated with bone pain, which I have and thought it was neuropathy.

Anyway, make sure they do the proper test for Vit D.

I have seen now a few rheumatolgoists that are specializing in D metabolism disorders.  I am going to look at seeing one of these.

Spider

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Re: Vitamin D Deficiency
« Reply #34 on: October 20, 2010, 07:36:21 AM »
Hi

I quite agree sitting at the window in the sun or being out in the sun is the best way to keep your Vit D up. The problem is for me, is that I have SLE too and that is sun sensative so I shouldn't be out in the sun without sun protection. So it will have to be the tablets for now.

Livvie2

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Re: Vitamin D Deficiency
« Reply #35 on: October 20, 2010, 09:04:41 AM »
This is an excellent discussion on Vitamin D.   (Also, Susannep: thanks for the link to the Shoman article.) 

It reminds me to keep up with the Vitamin D Supplementation.

I live in  California, spend time outside, plus drink milk--so I was very surprised when I was first diagnosed with Hashimoto's that my Vitamin D levels were fourteen.
I supplement with Nature's Blend Vitamin D-3 (which is a liquid) (about 5000 units). I mix that into a concoction.  My levels went up to 30, which is low normal.
The 50,000 unit green pill that the doctors prescribe is a different form of Vitamin D (Vitamin D-2 I think) which some experts think is not as effective.

Livvie2

inga

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Re: Vitamin D Deficiency
« Reply #36 on: October 20, 2010, 09:14:50 AM »
It has to be D3 from what I understand.

Interestingly my mom had severe vitilgo.  I have a bit, but not like her.  I wonder if any of this relates.

DSPeter

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Re: Vitamin D Deficiency
« Reply #37 on: October 20, 2010, 04:35:18 PM »
Is it normal for a Dr to do a Vitamin D test after a diagnosis of Sjogrens?  Or do I need to ask?   I was just recently diagnosed.  Dr told me that he would run more tests at my appointment in December.

inga

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Re: Vitamin D Deficiency
« Reply #38 on: October 20, 2010, 05:16:44 PM »
I would ask.  I will be monitoring mine from now on.

Patze

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Re: Vitamin D Deficiency
« Reply #39 on: October 20, 2010, 05:25:48 PM »
Hi DSPeter,

Inga is right, sometimes you have to ask if it's not automatically done.

I have mine tested 3-4 times a year because the level will go up to the lower 40's/upper 30's and do the downward slide every time to 14-16 range (no doctor has been able figure out why).  Just had another test done last week, and I'm waiting to hear what this one is...

Take care of yourself -

Patze
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irish

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Re: Vitamin D Deficiency
« Reply #40 on: October 20, 2010, 09:55:39 PM »
I just started the vitamin D a couple weeks ago and the green capsule is D3 according to the label on my prescription. Irish ;D

Spider

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Re: Vitamin D Deficiency
« Reply #41 on: October 21, 2010, 07:22:32 AM »
Hi Peter,

Its not very common to have your Vit D tested in the UK, mine was only done as I was getting cross, as I was being told there was nothing wrong with me and I wanted to see a Lupus specialist.

My Endo was very concerned as he thought I may have problems with my parathyroids.

I take Calcium and Ergocalciferol just one a day to see if it makes any difference.

Go back to see Endo in Dec to see what next.

Scottietottie

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Re: Vitamin D Deficiency
« Reply #42 on: October 21, 2010, 09:05:03 AM »
Hi Spider  :)

I'm in the UK too and I had to jump up and down and make a fuss before I could persuade anyone to test Vit D. My GP refused and then a neurologist refused. Six months later I asked a rheumatologist about what I'd read on this site. He's Canadian and likes patients doing their own research. He tested me and I took immense satisfaction in telling both my GP and neuro that I was low in it - as I suspected. Sjogrensworld rocks!

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Spider

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Re: Vitamin D Deficiency
« Reply #43 on: October 22, 2010, 12:14:03 AM »
Hi Scottie,

My GP said he wasn't allowed to test Vit D as that was a consultant level blood test.

I am now without a Rheumi, yours sounds like a good one. I wish we could interview Rheumi before we spend years seeing them. I found it very difficult to get rid of my last Rheumi, and to have a choice doesn't seem to be that easy.

Joe S.

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Re: Vitamin D Deficiency
« Reply #44 on: October 22, 2010, 04:49:46 AM »
My endo is the one that asked for a recent D test. I take D3 because of the literature that I have read. I believe it came from this website http://www.lef.org/

There was a book "Life Extension" that I read on the Biochemical workings of the body that I found very interesting. If I find it in the stacks again it may make and interesting review.
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