Author Topic: Vitamin D Deficiency  (Read 25523 times)

Rhonda

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Vitamin D Deficiency
« on: October 14, 2010, 08:21:46 AM »
My last bloodwork shows my Vitamin B12 level is nearly non-existent and my Vitamin D level was <8  which my rheumy said IS non-existent and needs aggressive therapy.    I eat very healthy,  get Vitamin B12 shots weekly and now on Vitamin D 5000 iu daily.  What's this all about?

I am so frustrated - it seems I just can't seem to get lined out and feeling better.  When I read about all the dangers of Vit D deficiency, it's scary but, I try not to think about it so as not to stress out.   I finally scheduled an appointment with the GI dr to see what his take on all this is.

Anyone else having problems with Vitamin deficiencies?  Particularly Vitamin D?

Thanks. 

LizPetillo

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Re: Vitamin D Deficiency
« Reply #1 on: October 14, 2010, 08:45:15 AM »
I've got no Vit D.
They wanted me on 50,000 a day.
I said no way.  Kidney stones!!
I was taking 1,000 a day until April when all this sjogrens hit.
I suppose I should go back to taking the vit D tablets.
It's just that I'm reacting to everything now ... I'm nervous.

Scottietottie

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Re: Vitamin D Deficiency
« Reply #2 on: October 14, 2010, 09:14:07 AM »
Hi  :)

I'm on a Vitamin D supplement. Mine was existant - just not enough of it and I'm quite happy to take a presribed supplement as I really don't want to end up with 'rickets'.

Very low B12 can be another autoimmune condition called pernicious anaemia. My sister in laws both have as did my MIL and also my best friend. B12 shots seem to keep them going.

I put my low Vit D down to avoiding sunlight as it is the best way of making Vit D - but not if it makes us ill!!

Take care - Scottie  :)
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livewssj

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Re: Vitamin D Deficiency
« Reply #3 on: October 14, 2010, 09:39:35 AM »
HI, I was also on Vit D 50,000 iu weekly for about 9 months. Now, my Vit D is up and only have to take it once a month for now.
I did not feel any difference with all my symptoms.

sewandsew

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Re: Vitamin D Deficiency
« Reply #4 on: October 14, 2010, 10:07:34 AM »
Yep.  Low vitamin D also.  Take supplements.  Also take B12 shots and sublingually.  It's the lack of sun I fear.

Rhonda

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Re: Vitamin D Deficiency
« Reply #5 on: October 14, 2010, 10:50:45 AM »
Interesting... oh the joys of SJS!  My rheumy wants me to see the GI doc just to be sure... but at age 51, I know he is going to want to do that darn colonoscopy - and I am not interested in going there!  LOL!!!

Thanks guys!

kwolfsheimer

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Re: Vitamin D Deficiency
« Reply #6 on: October 14, 2010, 10:53:34 AM »
I was on prescription Vitamin D, then took supplements.  Then I started taking the Calcium wit Vit D, but stopped that after I heard a report that calcium supplements can cause build-up in the arteries for women with a history of stroke/heart attack in their family. I not menopausal yet, so my doc said it's OK to lay off the calcium for a bit.  I need to get back on the Vitamin D, but haven't been tested in a while.

I know that I have heard the buzz about Vit D deficiency being linked to auto-immune, cancer, fatigue, and other things.  

Even if you are eating well, drinking milk, and all that jazz, you may still have a deficiency.  But after bringing up your levels, you may be able to cut back to just a multi-vitamin.

Hypermobius

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Re: Vitamin D Deficiency
« Reply #7 on: October 14, 2010, 11:09:38 AM »
You know I was going to recommend tanning beds, as some studies have shown them to be as effective and in some cases more effective at replenishing vitamin D levels than oral supplements......But, I guess the whole light sensitivity thing from plaquenil pretty much kills that idea.

That's the exact reason why I haven't started my plaq dosage yet...I too have vitamin D deficiency that I'm trying to overcome by a little time in the sun as well as 5000 IU supplements. I want to squash this before it gets worse and I hope this helps before I start my plaq regiment.

Rhonda

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Re: Vitamin D Deficiency
« Reply #8 on: October 14, 2010, 11:33:02 AM »
I wish I could do the tanning beds... however, I break out in a rash from head to toe when I get near those things.  The sun pretty much does the same thing too... even before I started Plaquenil. 

I started the Vit D and am giving myself the injections of B12.  I just hope we can get the levels back up before any damage occurs.  Rheumy says low vit d is associated with several different disease processes. 

I have been trying to sit on the front porch - just out of the sun, but outside.  Hope that helps!

Navigator

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Re: Vitamin D Deficiency
« Reply #9 on: October 14, 2010, 12:11:46 PM »
There are some people who genetically are predisposed to having a hard time absorbing Vit D from the intestines from food.  Cholesterol increases the absorption of Vit D. in the body soooo....high cholesterol means you are able to absorb more Vit D....but most of us are taking drugs to lower our cholesterol...so..between the two...and sunscreen,  we have low Vit D.   I too had low Vit D. and took 50,000 IU every other day for three months.  Now I take 2000 IU per day which is what most researchers believe will be the new recommended dosage for those over 50. 

I had no side effects taking either level but when you get into the 50,000 IU range need to do that with doc. supervision.  Last time I checked my level was 43.   Below 30 is not so good.

If you live north of I think it is the 34th latitude there is not enough sun from late fall to late spring for your body to manufacture Vit D. sufficiently.  I think that is somewhere south of Tenn. but I could be wrong on that.

Given all the things low Vit D. can result in seems to me to be something to getga handle on.
Hashimotos thyroiditis, Primary SJS, IBS, autoimmune hearing loss, leucopenia, arthritis,asthma.
Synthroid, Plaquenil, Crestor, Evoxac,Vit D , Fish Oil, Restasis, Daily Walking, Sleep, Baby aspirin, Probiotic, avoid gluten,dairy and sugar, hearing aide, gratitude, big dog

Babs659

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Re: Vitamin D Deficiency
« Reply #10 on: October 14, 2010, 02:37:55 PM »
Well, my D was very low (11) and I was getting plenty of sunshine and my total cholesterol is about 230, so I don't know about those causes.  My ferritin level was also 11, so I'm thinking malabsorption (?)
« Last Edit: October 18, 2010, 03:48:08 PM by Babs659 »

Scottietottie

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Re: Vitamin D Deficiency
« Reply #11 on: October 14, 2010, 04:58:20 PM »
Hi Hypermobius

I got sensitive to the sun way before I was on Plaquenil. SjS can cause sensitivity all on its own. Another one of those things that can be individual rather than one size fits all.

Take care - Scottie  :)
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inga

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Re: Vitamin D Deficiency
« Reply #12 on: October 14, 2010, 05:27:55 PM »
Low Vitamin D is linked to pain.

http://www.medscape.com/viewarticle/516238_2

I think this link will work since the article was on public domain, not in the subscription service.

inga

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Re: Vitamin D Deficiency
« Reply #13 on: October 14, 2010, 06:50:46 PM »
One more thing, you may want to have your kidneys checked.  Low vitamin d is associated with acidosis.

Also, net search osteomalacia, a potential outcome of low vit d.

Patze

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Re: Vitamin D Deficiency
« Reply #14 on: October 14, 2010, 07:01:21 PM »
Oh yes, have been taking a 50,000 pill once a week for shoot, six or seven months straight now, and I still have a low level, ugh. :-\


Patze
« Last Edit: October 14, 2010, 07:05:34 PM by Patze »
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