Author Topic: Disability Question Again?  (Read 1049 times)


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Disability Question Again?
« on: September 28, 2010, 12:07:27 PM »
I just wanted to ask some of you that might know. I have my file that my psychiatrist finally sent with a lot of nagging. It has all the notes she put down, even though she said because she has closed shop because she has to cut down on her own stress due to lupus that she will not fill out any papers. Do you think all the papers in my file will be good?

It lists my major depression  and sjogrens.

Also do you think I should have my eye doctor send my paper work? He of course knows of my sjogrens, and diabetes. He did say I have the beginnings of cataracts also.

We are doing our best, and through this we have seen some real love.

susanep :)
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi


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Re: Disability Question Again?
« Reply #1 on: September 28, 2010, 12:29:14 PM »
Make copies of everything and send it to your caseworker,, call her and ask for her fax number,, also have your caseworker send your eye doctor a functional paper to fill out,, no matter how small you may think soemthing is,, send it in,, I found out that if I called her and told her I was sending her more stuff or was seeing more dcotors,, it made things easier,, and it never hurts to have your congressmen look into your case if it gets held up,, I did that,, you will get a release form for them to look into your case,, they cant influnence it,, but can ask about it,, i had my senator look into it also,, flood them with  paperwork from every doctor


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Re: Disability Question Again?
« Reply #2 on: September 28, 2010, 12:46:47 PM »
The file sounds more like "supporting" documents.  Send all of them. 

However, most important would be the "diagnostic" documents.  Whether it be labs (for SjS or your thyroid), lip biopsy, etc...any documents that were used to diagnose you. 

Don't forget the routine follow-up documents as well.  They will show how often you require follow-up care at your PCP or any specialist (something disability paperwork will ask about).

Good luck
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran


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Re: Disability Question Again?
« Reply #3 on: September 28, 2010, 02:37:11 PM »
Susan, any dr of mental health worker you've seen in the past number of years ? should be included.  If you have seen a new psychologist since the other one closed up, have them do the paperwork. 


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Re: Disability Question Again?
« Reply #4 on: September 28, 2010, 03:03:57 PM »
Susan, It is too bad that your psychiatrist had to quit work and with autoimmune no less!! I would send information from every doctor you can find. Also, when you fill out the stuff they want done make it long and hit every little thing. I took a sheet of paper and numbered the categories---actually ended up with several sheets of information to their questions. I also sent a list of every doctor I was currently seeing with the telephone numbers and addresses. Also, made a list of all the ailments that I had over the years that resulted in the application for disability.

I started way back when I was a kid when my allergies started and just had a very long list of stuff that I had experienced with no resolution. I also made a list of all the antibiotics I had been on in the past 5 years or so. I have a purse calendar and every doctor appt is listed on this calendar and then the name of the antibiotic and ailment that was treated. I can go back 15 years in my life and almost relive some of the stuff in my mind. Keeping these calendars helps when you need info regarding past health. It is really helpful.

I made a note of all the things that I currently found difficult and made sure to list every thing I could think of. It was very interesting when my hubby filled out his part as he noticed things that I didn't. Every time I went to the doc during the application process I would call up my case worker and tell who I saw and what was done. I was told to keep her updated and I did. Out of sight and out of mind makes them forget you so I was always in her review mirror!!! Go for it!!

There were times I was so darn pooped and ill that I could hardly sit at the computer but I just plugged along and finally got it done. Like was mentioned, the more paperwork the better. They seem to thrive when they get a lot of documentation .Don't forget any of your docs cause they all have something to add to the pot. Good Luck! Irish ;D