Author Topic: I need some guidance  (Read 6831 times)

irish

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 13472
Re: I need some guidance
« Reply #30 on: July 24, 2010, 11:29:19 AM »
Sarah, You are a further testimony of what our mind can do. Add in an enormous amount of faith and endurance and anything is possible. We may not be "normal" or whatever that is, but I truly believe that those of us who have suffered and learned from the experience have received a great gift. Thank you so much for that inspiring post--it offers much to those of us who suffer on a daily basis.

We have learned that life is truly precious and even is spite of our suffering we are still able to bring something to this life. If all we can do is to hold our grandchild and love them that is ,indeed, a good reason to still be on this earth.Irish ;D

eyeamdry

  • Guest
Re: I need some guidance
« Reply #31 on: July 24, 2010, 01:54:23 PM »
I had a dr on the phone onetime asking whether I should bring my 80+ y/o father in law to ER as he claimed he was having a stroke.  He had been in that drs office earlier in the day about the same problem.  It was now midnight and the old man was insisting and I asked the dr what to do.  He said he didn't know what I should do.  I said, "well, dr. you are an A--H--E," hung up on him.  I called my husband who was working to meet me at the hospital.  I managed to get the old man in the car and head for the hospital.  It was raining so hard I could hardly see.  My father in law said, "I think I'll have a cigarette, it might make me feel better."  I thought to myself, you may as well have 12 because at this point it doesn't matter.

The bottom line was that my FIL was indeed in the process of having a stroke.  He ended up permanently paralyzed on one side of his body.  This was about 20 years ago and they didn't have all of the new stuff.  My FIL never did regain movement in his left side and spent the last 6 years of his life in a nursing home. I should have gone to that dr personally and smacked him in the kisser.

navydad

  • Guest
Re: I need some guidance
« Reply #32 on: July 24, 2010, 04:42:59 PM »
I had a dr on the phone onetime asking whether I should bring my 80+ y/o father in law to ER as he claimed he was having a stroke.  He had been in that drs office earlier in the day about the same problem.  It was now midnight and the old man was insisting and I asked the dr what to do.  He said he didn't know what I should do.  I said, "well, dr. you are an A--H--E," hung up on him.  I called my husband who was working to meet me at the hospital.  I managed to get the old man in the car and head for the hospital.  It was raining so hard I could hardly see.  My father in law said, "I think I'll have a cigarette, it might make me feel better."  I thought to myself, you may as well have 12 because at this point it doesn't matter.

The bottom line was that my FIL was indeed in the process of having a stroke.  He ended up permanently paralyzed on one side of his body.  This was about 20 years ago and they didn't have all of the new stuff.  My FIL never did regain movement in his left side and spent the last 6 years of his life in a nursing home. I should have gone to that dr personally and smacked him in the kisser.
Shame you didnt smack the guy,, I hope there all resting today after having a great saturday with there friends and familys while we are left to try and survive another day,, I dont find joy in much of anything,, even going outside today just brought burning to my feet,, nothing stops that,, sons wanted to take me mini golfing,, i had to beg off,, I dont like burning,, Id ont like my arms and hands hurting som uch I want to cry,,, how do you find joy from pain,, pain that neve lets up,, ya,, I kow,, get theee to a pain clinic,, I guess being a zombie is better then living in a world of hurt

irish

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 13472
Re: I need some guidance
« Reply #33 on: July 24, 2010, 09:37:19 PM »
navydad, I guess I have finally reached the end of my tether. I try, we all try, and you apparently don't understand what we are saying. How can we say it any different. Have a good week. Irish

eyeamdry

  • Guest
Re: I need some guidance
« Reply #34 on: July 24, 2010, 10:07:33 PM »
Navydad, we are all in the same boat as you are, in one form or another.  We wouldn't be here otherwise.  I need two knee replacements, one is to fix an old one, plus surgery on my big toe and that's just the beginning.  When I had breast cancer was really the scariest time for me.  That was 6 months after Sjogrens dignosis.  ONCE YOU HAVE CANCER, YOU ALWAYS FEAR IT COMING BACK.

The reason I didn't "smack" the doc was because I was on the phone with him.  I don't find joy in much either as it becomes harder to walk.  But, I can watch a favorite tv show.  I can eat a favorite snack.  Most people like to hold or see their grandchildren.  I can't do that.  I have none and never will have any.  That's all my friends talk about.  Does it bother me?  Not really.  I can remember on one occasion I let my mind wander..  I do get tired OF LISTENING TO THEM GO ON AND ON ABOUT HOW ADORABLE AND SMART their gkids are.  But after a couple of times, I suggest changing the subject. 

The decision to go to the pain clinic is up to you.  It's possible you will go to the clinic and still complain.  What if they can help and you never find out?
If you find out they can't help, you are no worse off.  Lucy

Suzie

  • Guest
Re: I need some guidance
« Reply #35 on: July 25, 2010, 05:55:34 AM »
Anaesthetists are the BEST pain experts. I wanted to kiss mine, when he gave me an epidural after 24 hours of a 36 hours back-ache labour.

I'd have shot myself if I'd had a gun, seriously. Then...bliss!

Seriously, these guys know their drugs.


navydad

  • Guest
Re: I need some guidance
« Reply #36 on: July 25, 2010, 10:14:19 AM »
navydad, I guess I have finally reached the end of my tether. I try, we all try, and you apparently don't understand what we are saying. How can we say it any different. Have a good week. Irish
you have a good week too,,

navydad

  • Guest
Re: I need some guidance
« Reply #37 on: July 25, 2010, 10:21:51 AM »
Again, thank you for all your replys,, its alittle better today I was actually able to pound a nail before I dropped the hammer in pain,, better then yesterday when I couldnt even pick it up,, again thanks all for your replys and good luck to all of you,, I hope your battles are small and your gains are big, thanks for everything

inga

  • Guest
Re: I need some guidance
« Reply #38 on: July 25, 2010, 01:43:54 PM »
If your hands hurt badly, see a hand specialist....you may have severe hand arthritis and that can be treated with a tendon transfer....your radial nerve is also in the region and if the arthritis is bad enough, it hits that nerve and the pain is truly unbearable.  I have opted for this surgery, despite having SFN.

On your sinuses, do you have MRSA?  OR perhaps you need to be on rotating antibiotics, including antifungals....also guiafenasin to thin those secretions.

As far as pain goes, there are several kinds of drug familes that are used, and all of them have downsides......opiates and narcotics can constipate, but they are generally effective.  Antiseizure meds do mess with your cognition but, it beats being a downer due to pain.

I think  you should get into a physical rehab program...it hurts, yes, but, you will build some muscle, even with the neuropathy.

As far as family goes, I don't discuss my disease at all with my kids....THEIR worst fear is that this could be genetic.....watching an ill parent and wondering if this is what is in store for them is not easy.  They want to see you enjoy life.   Can you take a trip, even a nearby one for a week and then tell them about the trip and the fun that was?  That may be better than trying to discuss your disease.....becuz, no one truly understands...they just don't.  My kids want to see me happy, and if I want to see them, I better darn well be happy.

ohiolady

  • Hero Member
  • *****
  • Posts: 2201
Re: I need some guidance
« Reply #39 on: July 25, 2010, 03:05:43 PM »
I think Inga has a great idea about our kids.  The last four years have been one thing after another for me, including a scare with cancer.  And, Lucy is right, when you've had cancer the fear of it returning never goes away, especially when your doctor reminds you this can happen.  I do push it out of my mind until the next scan.  But, I try to be up for my kids because they just can't deal with mom being down.  I've always been there for them and the strong one and I need to conitinue to be mom.  Also, I try to not burden my friends with my illness either.  I try to look around and see that someone always has it worse than me.  It really does help to develop this perspective.

Anna
SJS  Hashimoto's   Mild Raynauds  GERD  Gastroparesis
Restasis, Evoxac, Dexilant,  Domperidone, Zofran and Synthroid. Fish Oil, Vit D and B12  R lipoic acid,  Acetyl L Cartnine, Vitamin B1, and The Perfect Food Green and Fruit supplement

Kidney Cancer Survivor   
Female   Age: 62