Author Topic: Submandibular gland pain?  (Read 19486 times)

SLEEPY101

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Submandibular gland pain?
« on: July 04, 2010, 01:20:03 AM »
I just saw a diagram on the web that showed where this saliva gland was located. It is below your lower jaw. I have had a lot of pain there for 2 plus years. It is also tender to the touch and is swollen alot. Myself and my Docs thought it was due to my damaged thyroid. I am wondering now if it is pain in the saliva gland. I also have constant ear pain and pain right below where the other saliva gland is located. I am trying to make sure I describe all my symptoms in detail so my Dr can piece everyting together. Does anyone else have pain in the Submandibular gland?

beverly jane

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Re: Submandibular gland pain?
« Reply #1 on: July 04, 2010, 07:45:01 AM »
Yes I have had that pain for about 12 years.  It is on the same side as my hearing loss. The only thing that relieves it for me is H2O2 on cotton in my ear and a little Ben Gay under jaw. This is my homemade treatment.

Sarah

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Re: Submandibular gland pain?
« Reply #2 on: July 04, 2010, 08:29:58 AM »
I had my submandibular gland removed (right side).  The pain was very bad, could not turn my head.  I was told to have it removed.  Went for second opinion at Mayo Clinic and they said yes, it should be removed.  Mayo did the surgery.  Funny thing is, I asked Mayo if I had Sjogren's but they never mentioned it and it was about 2 years later that I had a lip biopsy and it was confirmed I had Sjogren's.  Had the usual problems, dry eyes, dry mouth, tooth decay (eventually lost them all).  I am sorry you are experiencing this pain.

LizPetillo

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Re: Submandibular gland pain?
« Reply #3 on: July 04, 2010, 09:08:06 AM »
OMG .. that's exactly what I have had for 5 years.  On the right side.  It's 'full' and painful and the pressure from it travels up to the ears and down to the throat to strangle me.  MRIs show nothing.  Prednezone helps with the swelling and pain, but it never really goes away.  It makes swallowing hard because it feels like its swollen to the size of a golf ball even though nothing looks swollen to an observer.  Ya'll mentioned the MAYO clinic.  That's our next stop if no one can figure this thing out.  If ANYONE gets more info on this ... please post it. 

Oh I'm so glad I found this site a few days ago!  I had given up hope.  Do I dare hope that someone can figure this out???? 

irish

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Re: Submandibular gland pain?
« Reply #4 on: July 05, 2010, 12:25:58 AM »
I just had my right submandibular gland removed last November. I had been having issues for years and every time I went in to see my ENT I could not see anything. In Nov I went in and he could see the stones in the salivary duct right away so I was given the choice to go and havae the stones removed or have the gland removed. It bothered me a lot but not the horrible pain. I would get some swelling and I would put heat on it off and on all day and then every single night I would go to bed with a rice pack on my neck, I think this helped keep it flowing enough to avoid a major plug up. I also would suck on lemon drops periodically which really causes a persons saliva to run.

I have had horrible spasms in both parotid salivary glands---thought I was going to die with those but not too much since. The minute I get some soreness I start the heat and massage gently to help the stones or sludge to move on out. Right now I am dealing with the submaxilary gland and have a sore lump on the floor of my mouth. Am doing the lemon drops, heat, massage, etc. I have learned to put one finger on the floor of my mouth on the side that hurts and then put a couple fingers on the outside---on the side on underside of chin. I rub both fingers together gently with the tissues and sore spot between my fingers. This helps to loosen the stuff in the tube. I also drink hot tea and would be smart if I bought some lemons and made homemade hot lemonaid.

I can't say that I miss the one gland that I lost, but I am thinking that this other one is going to end up being removed also. I don't know how dry I will get with these glands both gone. I noticed increased dryness after I had the first one removed. I am trying to take the guaifissen every day as it helps to thin the mucus some. This the like mucinex. You can buy the generic in a bottle in many drug stores and it is much, much cheapers. Irish ;D

Madderakka

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Re: Submandibular gland pain?
« Reply #5 on: July 05, 2010, 03:33:05 PM »
Yes. Mine right one is almost always swollen and I often have pain in my jaw and ear on that side.

LizPetillo

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Re: Submandibular gland pain?
« Reply #6 on: July 06, 2010, 01:46:10 PM »
I've had 2 scans ... and they can't see anything.  But it still hurts like heck.
2 differnet ENTs ... internist ... 2 Rhummys .... infetious disease 'specialist' .. no one can see anything.
Going to an endocronologist in 2 weeks.  University of Pennsylvania in Philly.
I hope they can help. 

Liz D.

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Re: Submandibular gland pain?
« Reply #7 on: July 07, 2010, 08:32:07 AM »
I find my right one is very sore and swollen when I get under stress.  Wondering if I am in a flare and this is part of it.  When things get calmer in my life, the pain and swelling go away.  But am always miserable in the meantime!

Liz D.
51 year old female
Sjogrens Syndrome (diagnosed 2004, but problems started in 2000), hypothryoidism, asthma
Plaquenil 400 mg; Synthroid 100mcg; Evoxac, Asmanex, Flonase, Protonix 40 mg., Prozac 40 mg.,  Xanax as needed.

romalo

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Re: Submandibular gland pain?
« Reply #8 on: July 08, 2010, 04:08:38 PM »
i just had a ct scan... checking for lymphoma, none found, but there was a calculus....  i guess it is just a calcium deposit.  My rheumy told me it causes the pain I feel at the jaw line below my ear.  Maybe it is that?

catsrule

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Re: Submandibular gland pain?
« Reply #9 on: July 09, 2010, 04:04:30 PM »
I had chronic swollen submandibular swelling for 2 years, the size of a golf ball and that's just what you saw from the outside. Subequently stones were found in the duct, 2 cm worth of them. They are still in the duct. The pain caused from the swelling was due to the stones which were trapped in the gland trying to come out through the duct opening. I found that when I pushed hard on the gland the pain went through the roof temporarily but I believe that is how I got those stones out and into the duct. While it was painful to do that, I did feel relief afterwards and I could feel saliva flow on some of those occasions. On the last incredbily painful flare I had, the floor of my mouth swelled, every gland appeared to stop producing normally, my tongue swelled and my throat swelled. My saliva became so thick that I choked on my own spit trying to swallow it. It scared the heck out of me. Given this, I don't necessarily recommend trying to work those stones out for yourself. At the time I didn't realize that's what I was doing. The last flare very well could have caused me to choke to death, that's how bad it was.

If you google salivary gland stones, you will find some ugly looking pictures of what they look like once they're in the duct. Mine come to the end of the duct during a flare and look like a big ugly white zit head. Yes, gross!!  Which is why I beleived my *first ENT when he said it was chronic infection that was causing it. I thought it was pus until I popped a gland stone out. I had it biopsied and it was confirmed a stone.

The first ENT I saw for my gland missed the stones on the CT scan. The 2nd ENT I saw brought the disc to a hospital where she reviewed them with a radiologist. This is because the hospitals radiology dept has different windows with which to view the results on and also because a radiolgoist is better trained than the Dr. in this area. She is the one who found them for me. I like her because her ego doesn't get in the way of her patient and she knows when to consult another expert where she is not the expert. The first ENT wanted to remove my gland, claiming I could die from the infection if it spread. What infection? He told me if he could not remove the gland he would no longer be my ENT. Hence the 2nd ENT. She is a gem.

Dr. Gem advised she did not want to dilate the duct to remove the stones as she could not guarantee she could get them all out. She is anti-surgery and that is why I love her. She advised that Mt. Sanai is currently using Sialendoscopy for this procedure. There may also be other facilities which use this technique. It's relatively new to the states. I will eventually look into this to get them out.

Dr. Gem also advised that a patient should not have a CT scan with contrast if stones are suspected as the lacrimal probe that is inserted into the duct to inject the dye could propel the stones further back into the duct or if still in the gland, further back into the gland where likewise, it could become inaccessible.

If you have chronic swollen painful glands I would strongly suspect that there are stones present and I would make sure I found a Dr. who was willing to entertain that idea rather than being treated for chronic infections for 2 years and an egotistical Dr who was bullying me into cutting my gland out as was my case. My gland produces plenty of saliva. It just directs itself around the stones to get out. My gland still occasionally flares, but not as often and the gland itself is always swollen. It?s the size of a marble and you can feel and see it there.

Of course, this is my story and I don't expect it pertains to everyone else. Some people do get chronic infections and some may swell because their particular flares cause that, who knows? Also, some people do need to have their glands removed if the flares are chronic and particularly painful, even when stones are found because they may not be accessible to remove otherwise. Who knows, I may end up having the gland removed for that very reason. I could still be producing more stones as I type! However I hope the story helps so that if you do suspect stones, you have gained some insight into why your gland may be swelling.

SLEEPY101

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Re: Submandibular gland pain?
« Reply #10 on: July 09, 2010, 11:36:20 PM »
Dear Catsrule,

  Thanks for your respone. Before starting this thread I never ever heard of salivary stones. It is somthing to check out and might put some puzzles pieces together. I went to the Dr yesterday. Met a FP dr for the first time and last time she didnt even exam me. Otherwise she would have felt my swollen area around my neck. I also always have a swollen uvella(sorry dont know how to spell}that sticks on the side of my tonsils. I have a hx of extreme sinus infections that cause migraine that will black me out and cause me to loose my memory. Had a CT that showed clogged sinuses I really would like to see a ENT. Just need to find another Dr who will refer me.