Ok everyone...input please.
The chest pain issue is possibly esophageal spasms. The GI at Hopkins says esophageal damage (resulting in or including spasms) is another gift of Sjogren's. Anyone else with this? The chest pain is pressure, with a squeezing at the front base of the throat. There is also pain in the jaw and sharp pain in the back (just opposite of the chest). Very much like a heart attack, but arteries showed only 40% blockage here & there, so they hoping it's just the spasms. However the stress test showed heart wall and reduced blood flow, so still looking there as well.
I have a manometry test for check for spasms on tuesday. Anyone had one of these? They said it is only uncomfortable to insert the probe via nose into esophagus. Is this true...no big deal??
I have severe gastroparesis (empty test was a whopping 4%) and GERD, so no surprise if there is damage to esophagus and spasms. They gave me nitroglycerin spray and said long acting nitrate will be used based upon results.
Any comments or experience with this would be helpful. Thanks
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis. Sero-neg w/+ lip biopsy. Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran